Re: Lupron- to Barbara
From: Shawna (anonymous@obgyn.net)
Sun Jul 30 15:01:34 2006
Hi Barbara.
My email address is: sjmusic7@msn.com
I had my second lap June 05. In Feb/March 06, I became very ill again.
My doctor did not want to perform a lap in under a year, which is why we
decided to try Lupron. From what I have been reading about scar tissue,
I'm thankful my doctor insisted on not giving me a third lap without
trying Lupron first. (At first, I was scared of the possible Lupron
side effects and didn't want it. I wanted a lap and was upset at him
when he said no. Now, I understand his decision and completely agree.)
Please let me know what your doctor decides.
Shawna
At Fri, 28 Jul 2006, Barbara wrote:
>
>Shawna,
>
>Thanks so much for your response, it is good to hear that the Lupron
>really helped you. I have been worried that I would be putting up with
>side effects for little to no real relief. I will know next week
>whether my dr wants to pursue the Lupron or whether I need surgery
>first. What email would you like me to use? Thank you again. Take
>care, Barbara
>
>At Thu, 27 Jul 2006, Shawna wrote:
>>
>>Hello Barbara. I have had two laparoscopies and was on Lupron from
>>April 4 to July. I'm very, very thankful that I tried it! The Lupron
>>really has helped with my daily Endo pain, but has not helped with my
>>Adenomyosis. Because my body responded so well and had minimal side
>>effects, I will have my second shot in 2 to 3 months.
>>
>>In my opinion, I believe that a truly healthy body will have an easier
>>time adjusting to Lupron. I always exercised with Winsor Pilates
>>because it's low impact and didn't jar my insides. I ate only healthy
>>foods: little sugar/sweets, avoided red meat and alcohol, and ate plenty
>>fruits and vegetables.
>>
>>Make sure you take vitamins!!!! Lupron can cause bone density loss, so I
>>can not stress taking vitamins enough! I took a daily multi-vitamin in
>>the morning. At night, I took extra Calcium Citrate plus Vitamin D. (My
>>doctor told me to take the extra calcium at separate time so the body
>>can absorb it better.) Also, try to get as much sleep as you can.
>>
>>In the first month, I had had a lot of migraines. In the 2nd and 3rd
>>month, I was bloated, experienced night sweats and had a lot of hot
>>flashes. I was very, very lucky! As I wrote, my daily Endo pain has
>>decreased dramatically and I have more energy. I hope that the second
>>shot will help to decrease my period pain.
>>
>>If you have any questions, please feel free to email me privately. Good
>>luck and I hope Lupron helps you!
>>
>>Take care,
>>Shawna J
>>
>>At Thu, 27 Jul 2006, Barbara wrote:
>>>
>>>Hello ladies, first I want to say how much I appreciate all of you and
>>>this forum, it is so nice to see that I'm not alone and to hear how all
>>>of you deal with this disease. I just came back from the Dr and I need
>>>another ultrasound tomorrow in order to determine if I need more
>>>surgery. I've had 3 surgeries in the last 2 years and am not really
>>>looking forward to more. He wants to wait for the ultrasound results
>>>first, and may suggest a round of Lupron instead of surgery. I have
>>>really not wanted to go on Lupron since I've heard (and read here) of
>>>the tremendous side-effects..but now I'm beginning to think it's the
>>>only option that I have not yet tried. I have started getting pains
>>>that seem to begin in my lower abdomen and extend into my thighs and
>>>hips...and just in the past 2 weeks I've gained 5 pounds which is very
>>>unusual for me. My breasts are sore and a bit swollen. I am wondering
>>>if any of these symptoms (on top of my usual abdominal pain)are being
>>>caused or worsened by the Levlite continuous birth control pill that I
>>>started in April? I could use any advice/words of wisdom that you all
>>>can offer about Lupron and about my symptoms in general. Thank you all
>>>so much. Barbara
>>>
>>>--
>>>Barbara Clowser
>>>
>--
>Barbara Clowser
>
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