Re: Anyone got any positive stories to tell????
From: Jenny (anonymous@obgyn.net)
Sun Jul 30 08:56:20 2006
Louise, I'm with you; it is depressing. I used to post here a lot when
I was first diagnosed. It did help, but now I am getting overwhelmed by
all the sad stories. They need to be told and get out of our systems,
but it is very overwhelming to me. My empathetic side goes into
overdrive and I get stressed more, which isn't good for endo.
I now divide my time up between looking at this forum and looking at
positive info from other websites. I like to read articles about what
research is being done, advice on how people with chronic pain deal with
it, and reading books about improving my symptoms. Not much is known
about endo, but I feel a rush of relief when I hear that there are
scientists that devote their careers to solving this problem.
Here's my good news: acupuncture is helping me. Not everyone is helped
by this, but luckily I am one of them. I have tried bc pills, the IUD,
2 surgeries, and so far acupuncture has made the biggest difference in
my life. Another thing that is helping me is counseling. Also I highly
recommend "Turning Suffering Inside out" by Darlene Cohen. It is about
how pain is eventually inevitable for every single one of us, physical
or otherwise, but the amount of suffering we go through is in our
control.
Keep up your positive attitude and just balance out the bad news from
here with hopeful news from other places like online articles, books
(look on Amazon), and endo magazine (online). Maybe something new will
interest you and help you, like acupuncture did for me. Maybe you'll
try yoga or biofeedback or whatever it is that will help you.
Good Luck! ~ Jenny
P.S. Hela, what made you feel better?
At Sat, 29 Jul 2006, Hela wrote:
>
>Hi Louise,
>
>I used to post on this site a lot in past, as I was desperate for
>support and information. I got so much better that I do not have a need
>to go here anymore really.. Just dropped line about some research news
>the other day (so if I have some news that apply to others, I like to
>pass it on)..
>I have no idea what worked for me, as I tried so many things! I am very
>active now (that helps too!) starting studying again while working full
>time, keeping myself full-on busy!
>I saw an interview with an endometriosis sufferer on the lunch news one
>day, she climbed some mountain (dont know where it was now) to raise
>awareness.. There is definitelly a lot change going on at least here in
>the uk!! When I told my boss I have endometriosis, she knew what it is
>and was very sympathetic! And I from my own experience can say: There is
>definitelly a good chance of getting endo under the control!!
>
>Hope you feel better soon
>
>take care
>
>H. xx
>
>At Thu, 27 Jul 2006, Louise wrote:
>>
>>It seems that all the stories on here are negative and they depress me
>>so much. As im sure 99 if not 100% of you are endometriosis sufferers
>>like me, you can relate to how down you become and how iscolated you
>>start to feel, especially when you are in an environment where everyone
>>just looks at you like youre being stupid when youre doubled up with
>>labour type pains, like at work or just in a shop. They just do not
>>have a clue. They think youve just got "tummy ache". Why do we and why
>>SHOULD we have to put up with this day in day out, year after year? im
>>25 and have had this godforsaken disease for 10 years and it feels like
>>a lifetime. I feel robbed of the last 10 years of life and fun. Ive
>>been through child labour and endo pain comes very close indeed to that.
>>With the technology out nowadays and with the amount of women suffering
>>out there, i just cannot understand why nothing is being done to help
>>us. Please can someone fill me with some hope as i just cannot take
>>much more. I go in for my 7th laparoscopy next week to have it all cut
>>away AGAIN, but i hold no hope in it not returning as i know that as
>>long as i have ovaries it will keep coming back. I think im just
>>looking for someone to talk to because i feel so low sometimes talking
>>to family and friends because although i know they care and "try" to
>>understand, they really dont. Help
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