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Re: Anyone got any positive stories to tell????

From: Hela (anonymous@obgyn.net)
Sat Jul 29 08:22:05 2006

Hi Louise,

I used to post on this site a lot in past, as I was desperate for support and information. I got so much better that I do not have a need to go here anymore really.. Just dropped line about some research news the other day (so if I have some news that apply to others, I like to pass it on).. I have no idea what worked for me, as I tried so many things! I am very active now (that helps too!) starting studying again while working full time, keeping myself full-on busy! I saw an interview with an endometriosis sufferer on the lunch news one day, she climbed some mountain (dont know where it was now) to raise awareness.. There is definitelly a lot change going on at least here in the uk!! When I told my boss I have endometriosis, she knew what it is and was very sympathetic! And I from my own experience can say: There is definitelly a good chance of getting endo under the control!!

Hope you feel better soon

take care

H. xx

At Thu, 27 Jul 2006, Louise wrote: >
>It seems that all the stories on here are negative and they depress me
>so much. As im sure 99 if not 100% of you are endometriosis sufferers
>like me, you can relate to how down you become and how iscolated you
>start to feel, especially when you are in an environment where everyone
>just looks at you like youre being stupid when youre doubled up with
>labour type pains, like at work or just in a shop. They just do not
>have a clue. They think youve just got "tummy ache". Why do we and why
>SHOULD we have to put up with this day in day out, year after year? im
>25 and have had this godforsaken disease for 10 years and it feels like
>a lifetime. I feel robbed of the last 10 years of life and fun. Ive
>been through child labour and endo pain comes very close indeed to that.
>With the technology out nowadays and with the amount of women suffering
>out there, i just cannot understand why nothing is being done to help
>us. Please can someone fill me with some hope as i just cannot take
>much more. I go in for my 7th laparoscopy next week to have it all cut
>away AGAIN, but i hold no hope in it not returning as i know that as
>long as i have ovaries it will keep coming back. I think im just
>looking for someone to talk to because i feel so low sometimes talking
>to family and friends because although i know they care and "try" to
>understand, they really dont. Help

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