Re: Lupron and severe joint pain
From: Dena (anonymous@obgyn.net)
Fri Jul 28 17:46:11 2006
Hi Paula,
I can't imagine a doctor telling you that patients never complain about
joint pain. I had severe join pain while I was on Lupron, and I know a
lot of other women have had it as well. It actually got to the point,
after months (and this is not to scare you, I'm a rare case) on Lupron,
where I couldn't even get up to go to the bathroom on my own. I was
wheelchair bound and dependant on paying for Vioxx out of pocket just to
get through the days. I was living in hell and it didn't end until I
found another doctor, got off the Lupron, and waited for the drug to get
out of my body.
So you are not alone and joint pain is actually quite a common side
effect of Lupron. I hope you feel better soon and it doesn't get any
worse for you.
Take care.
At Fri, 28 Jul 2006, paula wrote:
>
>Hello,
>I began treatment with a one month dosis of Lupron five days ago.
>Yesterday I woke up with pain in my right index finger and thought I
>might have hurt it without noticing, but this morning the pain was
>stronger and the finger is swollen. I asked my doctor and he said he
>never had a patient react to the drug this way but that the action to
>take was to start with an anti-inflammatory drug. I'm worried that the
>symptoms will get worse. If anyone has had a similar experience or has
>any suggestions please write back. Thanks a lot.
>Paula
>
>t Wed, 19 May 2004, crystal wrote:
>>
>>At Wed, 19 May 2004, Sayea wrote:
>>>
>>>Hi there,
>>>
>>>I have just completed a 3 month course of Lupron therapy for
>>>endometriosis and fibroids. I opted to quit taking Lupron because of
>>>some rather distessing joint pain that began about a month into my
>>>injections and continues to this day. I have generalized pain in most
>>>all of my joints, but especially in my fingers, wrists, knees, and hips.
>>>I'm 33 and I feel like a very old woman. My hips hurt every time I get
>>>up, and I can't make a closed fist anymore. Basically, all my joints
>>>hurt. I can see from previous postings that others have had this
>>>problem. Is there anyone whose had this problem and overcome it? Please
>>>write if you have any suggestions or help to offer. Thanks, Sayea
>>>
>>>At Thu, 24 Jul 2003, Melissa wrote:
>>>>
>>>>Shellea,
>>>>
>>>>Thank you so much for responding. If it's okay, can I ask you a couple
>>>>questions? With the joint pain, did it start all at once or slowly (like
>>>>over the period of a couple weeks)? What joints did it affect? Could you
>>>>move them or were they stiff? Were you on addback during the Lupron
>>>>stint? I've been on estrodial 1mg, now upped to 2mgs. Did your joints
>>>>pop and crack a lot? Did it ever hurt directly behind your shoulder
>>>>blades, similar to someone encasing them in ice?
>>>>
>>>>I'd really appreciate any further help you can give. I'm like
>>>>information starved here. I search the web but that's not the same as a
>>>>real person's experiences. I'm probably only experiencing side effects
>>>>(I hope!) but there is the chance I have osteoarthritis or something.
>>>>
>>>>Regarding the hysterectomy, if you have that much pain I would suggest
>>>>considering it. I never thought I'd think something like that, but my
>>>>time in pain has changed me. Before the lupron, I too was in pain about
>>>>3 weeks out of the month. It had gotten onto my bladder but no one
>>>>would go in to take it out so lupron was my only choice. Now I can
>>>>actually drive in a car and drink as much water as I want, but I realize
>>>>that will probably go away sometime after my hormones come back. I plan
>>>>(or planned who knows now) on starting a family ASAP, then when the
>>>>bladder stuff comes back opting for a hyst. It is inhumane to live in
>>>>pain that much of the time. Remember that.
>>>>
>>>>Thank you again! Melissa
>>>>At Wed, 23 Jul 2003, Shellea wrote:
>>>>>
>>>>>I had Lupron in 1999 and I still have all the joint pain that I had
>>>>>then, all the Doctors I have told just shake their head when I tell them
>>>>>that like they really dont believe me and keep writing their notes in my
>>>>>chart. I had test and they came back that I have degenerative
>>>>>artheritis. My Doctor did then say it COULD have been from the Lupron.
>>>>>I still have endo and just went to the emergency room Sunday night and
>>>>>then the Doctor yesterday. I refuse Lupron and now I have done
>>>>>everything possible to stop the pain except hysterectomy and I am in
>>>>>terrible pain at least 3 weeks out of the month. I'm at the end of my
>>>>>rope and dont have anywhere to go except hysterectomy and dont want to
>>>>>go there except what is a person to do next when your all out of
>>>>>options? I hope your different from me and I wish all the best of luck!
>>>>>
>>>>>At Wed, 23 Jul 2003, Melissa wrote:
>>>>>>
>>>>>>Something has gone so wrong after I had my third shot of Lupron (I’ve
>>>>>>been on addback therapy so “we” decided to take it for 9 months instead
>>>>>>of 6) on June 14. The typical buttcheek pain moved down into my knees
>>>>>>within a day or so. Only minor, I ignored it and kept up with my daily
>>>>>>life. Then my knees went out. 3 days after that, on the 4th of July, I
>>>>>>ended up in the ER with aching hands, feet, shoulders, hips, and jaw.
>>>>>>And I thought it was bad then. A week and one doctor and one
>>>>>>rheumatologist later, it was just getting worse, was now even in the top
>>>>>>of my neck. Stabbing pains in my joints with mild redness and swelling
>>>>>>in my fingers, inability to move properly, muscle aches in my upper arms
>>>>>>and legs (it actually hurt to have a blood pressure band squeeze my
>>>>>>arm!) and I was kinda light headed, having to take a lot of breaths just
>>>>>>to speak. I ended going into another doctor because mine was gone, and
>>>>>>my blood pressure was double what it usually is (190 over 60-something
>>>>>>compared to 100/60). I asked for and was put on steroids, which I’m
>>>>>>still on 20mgs a day until I can get back into the rheumatologist in a
>>>>>>week. My joints still hurt, though not nearly as bad. Everything else
>>>>>>has gone away for the time being.
>>>>>>
>>>>>>My OB/GYN, who ordered the shots, says she doesn’t think this can be
>>>>>>from the Lupron because it wasn’t instantaneous (but it was in my knees)
>>>>>>and it doesn’t sound like a Lupron joint ache. All the tests are coming
>>>>>>up normal (or low normal, if you ask me. My white blood cells are at
>>>>>>the very low end of normal) EXCEPT an Anti-nuclear antibody test. So
>>>>>>I’m thinking that it’s some autoimmune reaction, maybe even drug-induced
>>>>>>Lupus. I've got a long time to wait (7 weeks at least) to find that one
>>>>>>out.
>>>>>>
>>>>>>SO why am I writing this? Cuzz I really have no clue what is going on
>>>>>>and this is scary! Has anyone had a similar reaction? Does it go away?
>>>>>>
>>>>>>--
>>>>>>Melissa
>>>>>>----------------
>>>>>>Peace, Love, and Compassion
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>>>>Melissa
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>>>>Peace, Love, and Compassion
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>>I had the same problem with a 6 month thearpy of lupron and a few months
>>>>----------------
>>after the thearpy the joint pain was goone, but my endo was back full
>>>>----------------
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>>force .
>>
>>--
>>Crystal
>>
--
Dena
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