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Re: Lupron and severe joint pain
From: paula (anonymous@obgyn.net)
Fri Jul 28 12:32:34 2006
Hello,
I began treatment with a one month dosis of Lupron five days ago.
Yesterday I woke up with pain in my right index finger and thought I
might have hurt it without noticing, but this morning the pain was
stronger and the finger is swollen. I asked my doctor and he said he
never had a patient react to the drug this way but that the action to
take was to start with an anti-inflammatory drug. I'm worried that the
symptoms will get worse. If anyone has had a similar experience or has
any suggestions please write back. Thanks a lot.
Paula
t Wed, 19 May 2004, crystal wrote:
>
>At Wed, 19 May 2004, Sayea wrote:
>>
>>Hi there,
>>
>>I have just completed a 3 month course of Lupron therapy for
>>endometriosis and fibroids. I opted to quit taking Lupron because of
>>some rather distessing joint pain that began about a month into my
>>injections and continues to this day. I have generalized pain in most
>>all of my joints, but especially in my fingers, wrists, knees, and hips.
>>I'm 33 and I feel like a very old woman. My hips hurt every time I get
>>up, and I can't make a closed fist anymore. Basically, all my joints
>>hurt. I can see from previous postings that others have had this
>>problem. Is there anyone whose had this problem and overcome it? Please
>>write if you have any suggestions or help to offer. Thanks, Sayea
>>
>>At Thu, 24 Jul 2003, Melissa wrote:
>>>
>>>Shellea,
>>>
>>>Thank you so much for responding. If it's okay, can I ask you a couple
>>>questions? With the joint pain, did it start all at once or slowly (like
>>>over the period of a couple weeks)? What joints did it affect? Could you
>>>move them or were they stiff? Were you on addback during the Lupron
>>>stint? I've been on estrodial 1mg, now upped to 2mgs. Did your joints
>>>pop and crack a lot? Did it ever hurt directly behind your shoulder
>>>blades, similar to someone encasing them in ice?
>>>
>>>I'd really appreciate any further help you can give. I'm like
>>>information starved here. I search the web but that's not the same as a
>>>real person's experiences. I'm probably only experiencing side effects
>>>(I hope!) but there is the chance I have osteoarthritis or something.
>>>
>>>Regarding the hysterectomy, if you have that much pain I would suggest
>>>considering it. I never thought I'd think something like that, but my
>>>time in pain has changed me. Before the lupron, I too was in pain about
>>>3 weeks out of the month. It had gotten onto my bladder but no one
>>>would go in to take it out so lupron was my only choice. Now I can
>>>actually drive in a car and drink as much water as I want, but I realize
>>>that will probably go away sometime after my hormones come back. I plan
>>>(or planned who knows now) on starting a family ASAP, then when the
>>>bladder stuff comes back opting for a hyst. It is inhumane to live in
>>>pain that much of the time. Remember that.
>>>
>>>Thank you again! Melissa
>>>At Wed, 23 Jul 2003, Shellea wrote:
>>>>
>>>>I had Lupron in 1999 and I still have all the joint pain that I had
>>>>then, all the Doctors I have told just shake their head when I tell them
>>>>that like they really dont believe me and keep writing their notes in my
>>>>chart. I had test and they came back that I have degenerative
>>>>artheritis. My Doctor did then say it COULD have been from the Lupron.
>>>>I still have endo and just went to the emergency room Sunday night and
>>>>then the Doctor yesterday. I refuse Lupron and now I have done
>>>>everything possible to stop the pain except hysterectomy and I am in
>>>>terrible pain at least 3 weeks out of the month. I'm at the end of my
>>>>rope and dont have anywhere to go except hysterectomy and dont want to
>>>>go there except what is a person to do next when your all out of
>>>>options? I hope your different from me and I wish all the best of luck!
>>>>
>>>>At Wed, 23 Jul 2003, Melissa wrote:
>>>>>
>>>>>Something has gone so wrong after I had my third shot of Lupron (I’ve
>>>>>been on addback therapy so “we” decided to take it for 9 months instead
>>>>>of 6) on June 14. The typical buttcheek pain moved down into my knees
>>>>>within a day or so. Only minor, I ignored it and kept up with my daily
>>>>>life. Then my knees went out. 3 days after that, on the 4th of July, I
>>>>>ended up in the ER with aching hands, feet, shoulders, hips, and jaw.
>>>>>And I thought it was bad then. A week and one doctor and one
>>>>>rheumatologist later, it was just getting worse, was now even in the top
>>>>>of my neck. Stabbing pains in my joints with mild redness and swelling
>>>>>in my fingers, inability to move properly, muscle aches in my upper arms
>>>>>and legs (it actually hurt to have a blood pressure band squeeze my
>>>>>arm!) and I was kinda light headed, having to take a lot of breaths just
>>>>>to speak. I ended going into another doctor because mine was gone, and
>>>>>my blood pressure was double what it usually is (190 over 60-something
>>>>>compared to 100/60). I asked for and was put on steroids, which I’m
>>>>>still on 20mgs a day until I can get back into the rheumatologist in a
>>>>>week. My joints still hurt, though not nearly as bad. Everything else
>>>>>has gone away for the time being.
>>>>>
>>>>>My OB/GYN, who ordered the shots, says she doesn’t think this can be
>>>>>from the Lupron because it wasn’t instantaneous (but it was in my knees)
>>>>>and it doesn’t sound like a Lupron joint ache. All the tests are coming
>>>>>up normal (or low normal, if you ask me. My white blood cells are at
>>>>>the very low end of normal) EXCEPT an Anti-nuclear antibody test. So
>>>>>I’m thinking that it’s some autoimmune reaction, maybe even drug-induced
>>>>>Lupus. I've got a long time to wait (7 weeks at least) to find that one
>>>>>out.
>>>>>
>>>>>SO why am I writing this? Cuzz I really have no clue what is going on
>>>>>and this is scary! Has anyone had a similar reaction? Does it go away?
>>>>>
>>>>>--
>>>>>Melissa
>>>>>----------------
>>>>>Peace, Love, and Compassion
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>>>--
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>>>Melissa
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>>>Peace, Love, and Compassion
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>>>----------------
>
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>I had the same problem with a 6 month thearpy of lupron and a few months
>>>----------------
>after the thearpy the joint pain was goone, but my endo was back full
>>>----------------
>>>----------------
>
>force .
>
>--
>Crystal
>
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