Re: Another great support group. For LIsa or anyone else
From: anonymous@obgyn.net
Thu Jul 27 15:51:45 2006
I totally agree with what Misty wrote. This little support group is
very nice and intimate, and I absolutely love the women who write there.
I hope you find some time and visit, register and post a few posts
there....I'd love it if you did!! The website is:
http://health.groups.yahoo.com/group/EndoSisterhood/
Wishing you painfree days,
Inny.
At Thu, 27 Jul 2006, Misty wrote:
>
>Lisa,
>I learned from another member on this site about another great support
>group. It is called EndoSisterhood@yahoo group.com. The ladies at this
>site are very nice and the creators of this site also suffer. Once a
>week they offer a conference where you instant message each other. They
>welcome you with open arms. Give it a try. I look at both this site
>and the other one on a daily basis. I think it is good to know possible
>different treatments. I believe the group right now has less than 35
>members so it is a very pesonal site to get to know other sufferers.
>They are also trying to work on getting a counselor on the site to help
>us cope and to help inform our family and friends. I hope you try it
>and enjoy getting to know these people.
> Misty
>
>At Thu, 27 Jul 2006, Rosey wrote:
>>
>>Hi Lisa,
>>
>>Thanks so much for replying to my message! I really appreciate your
>>input and will consider your idea immediately. I think you have a great
>>point there, and believe that if I can do that in my class, then I will
>>do my best to set up another online support group of some sort. I will
>>also be creating another website to cater for that support group, that I
>>will also include some information about endo (obviously!). Also, is
>>there any particular information you think should be on that site? Other
>>than the symptoms etc? I can't really go into too much detail as I'm
>>only a student, and I don't know overly that much about endo yet myself.
>>I think that awareness is the main idea I'm going for, and online
>>support. That in itself will probably be all I can do.
>>
>>Ah..I don't know..as you can tell I'm still in the thinking process so
>>please forgive the confusing thoughts! I will keep you up to date, and
>>appreciate any more input you are able to include.
>>
>>I pray you are doing well today,
>>Rosey.
>>
>>At Wed, 26 Jul 2006, Lisa - wrote:
>>>
>>>Hi Rosie, my suggestion would be some more online support groups, I did
>>>a search for some, & this is the only one I found that was still active.
>>>Being able to talk about it when you have it is a big help, cause the
>>>people around you say they understand, but in all reality they don't.
>>>Hope this helps you.
>>>Lisa - Painfull in Kansas City
>>>
>>>At Tue, 25 Jul 2006, Rosey wrote:
>>>>
>>>>Hi all!
>>>>
>>>>I am a second year teachers college student and will soon be starting a
>>>>multimedia project for a large assessment in one of my classes. We have
>>>>been given the choice on what we wish to use as our purpose for the
>>>>project. As I have just found out about Endo and other linked problems,
>>>>I wanted to somehow help give awareness on those. The way in which we
>>>>can promote/present our ideas are through video, DVD, CD, or even
>>>>website (maybe other basic ways too). I am even considering targeting
>>>>it at tertiary students here in NZ.
>>>>
>>>>The reason I am sharing this with you all, is that I wish to have your
>>>>input on any ideas you may have. I want to know where you think there
>>>>are gaps in the internet resources on Endo, and what you would like to
>>>>see more of. I have found here in my city that people either know of
>>>>someone who has Endo, have it themselves (both of these are rare amongst
>>>>the people I know), or they have never heard of it before. I also know
>>>>that there are people at teachers college who have endo, but there is
>>>>nothing at teachers college to link them all together (I should think
>>>>about suggesting to start up a support group there...).
>>>>
>>>>So in short, please tell me what you think would have been helpful for
>>>>you. A website? A free and available CD-Rom with links and glossary on
>>>>it? Or something else? Please let me know as this is an idea I wish to
>>>>explore. I may not use your ideas, but they will at least form a basis
>>>>for further research/ideas. But I WILL recognise any person who's ideas
>>>>I use and also give information on this forum. But that is only if I go
>>>>ahead with the Endometriosis idea.
>>>>
>>>>Thanks for reading, and I would love to hear from you!
>>>>Rosey.
>>>>
>>>>--
>>>>*Everything has its time*
>>>>
>>>--
>>>Lisa - Painfull in Kansas City
>>>
>>--
>>*Everything has its time*
>>
--
ENDO SISTERHOOD:
http://health.groups.yahoo.com/group/EndoSisterhood/
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)