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Re: Another great support group. For LIsa or anyone else
From: Misty (anonymous@obgyn.net)
Thu Jul 27 08:52:43 2006
Lisa,
I learned from another member on this site about another great support
group. It is called EndoSisterhood@yahoo group.com. The ladies at this
site are very nice and the creators of this site also suffer. Once a
week they offer a conference where you instant message each other. They
welcome you with open arms. Give it a try. I look at both this site
and the other one on a daily basis. I think it is good to know possible
different treatments. I believe the group right now has less than 35
members so it is a very pesonal site to get to know other sufferers.
They are also trying to work on getting a counselor on the site to help
us cope and to help inform our family and friends. I hope you try it
and enjoy getting to know these people.
Misty
At Thu, 27 Jul 2006, Rosey wrote:
>
>Hi Lisa,
>
>Thanks so much for replying to my message! I really appreciate your
>input and will consider your idea immediately. I think you have a great
>point there, and believe that if I can do that in my class, then I will
>do my best to set up another online support group of some sort. I will
>also be creating another website to cater for that support group, that I
>will also include some information about endo (obviously!). Also, is
>there any particular information you think should be on that site? Other
>than the symptoms etc? I can't really go into too much detail as I'm
>only a student, and I don't know overly that much about endo yet myself.
>I think that awareness is the main idea I'm going for, and online
>support. That in itself will probably be all I can do.
>
>Ah..I don't know..as you can tell I'm still in the thinking process so
>please forgive the confusing thoughts! I will keep you up to date, and
>appreciate any more input you are able to include.
>
>I pray you are doing well today,
>Rosey.
>
>At Wed, 26 Jul 2006, Lisa - wrote:
>>
>>Hi Rosie, my suggestion would be some more online support groups, I did
>>a search for some, & this is the only one I found that was still active.
>>Being able to talk about it when you have it is a big help, cause the
>>people around you say they understand, but in all reality they don't.
>>Hope this helps you.
>>Lisa - Painfull in Kansas City
>>
>>At Tue, 25 Jul 2006, Rosey wrote:
>>>
>>>Hi all!
>>>
>>>I am a second year teachers college student and will soon be starting a
>>>multimedia project for a large assessment in one of my classes. We have
>>>been given the choice on what we wish to use as our purpose for the
>>>project. As I have just found out about Endo and other linked problems,
>>>I wanted to somehow help give awareness on those. The way in which we
>>>can promote/present our ideas are through video, DVD, CD, or even
>>>website (maybe other basic ways too). I am even considering targeting
>>>it at tertiary students here in NZ.
>>>
>>>The reason I am sharing this with you all, is that I wish to have your
>>>input on any ideas you may have. I want to know where you think there
>>>are gaps in the internet resources on Endo, and what you would like to
>>>see more of. I have found here in my city that people either know of
>>>someone who has Endo, have it themselves (both of these are rare amongst
>>>the people I know), or they have never heard of it before. I also know
>>>that there are people at teachers college who have endo, but there is
>>>nothing at teachers college to link them all together (I should think
>>>about suggesting to start up a support group there...).
>>>
>>>So in short, please tell me what you think would have been helpful for
>>>you. A website? A free and available CD-Rom with links and glossary on
>>>it? Or something else? Please let me know as this is an idea I wish to
>>>explore. I may not use your ideas, but they will at least form a basis
>>>for further research/ideas. But I WILL recognise any person who's ideas
>>>I use and also give information on this forum. But that is only if I go
>>>ahead with the Endometriosis idea.
>>>
>>>Thanks for reading, and I would love to hear from you!
>>>Rosey.
>>>
>>>--
>>>*Everything has its time*
>>>
>>--
>>Lisa - Painfull in Kansas City
>>
>--
>*Everything has its time*
>
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