Re: PLEASE READ! I have a large multimedia project coming up and want to help endo sufferers...
From: Rosey (anonymous@obgyn.net)
Thu Jul 27 00:58:26 2006
Hi Lisa,
Thanks so much for replying to my message! I really appreciate your
input and will consider your idea immediately. I think you have a great
point there, and believe that if I can do that in my class, then I will
do my best to set up another online support group of some sort. I will
also be creating another website to cater for that support group, that I
will also include some information about endo (obviously!). Also, is
there any particular information you think should be on that site? Other
than the symptoms etc? I can't really go into too much detail as I'm
only a student, and I don't know overly that much about endo yet myself.
I think that awareness is the main idea I'm going for, and online
support. That in itself will probably be all I can do.
Ah..I don't know..as you can tell I'm still in the thinking process so
please forgive the confusing thoughts! I will keep you up to date, and
appreciate any more input you are able to include.
I pray you are doing well today,
Rosey.
At Wed, 26 Jul 2006, Lisa - wrote:
>
>Hi Rosie, my suggestion would be some more online support groups, I did
>a search for some, & this is the only one I found that was still active.
>Being able to talk about it when you have it is a big help, cause the
>people around you say they understand, but in all reality they don't.
>Hope this helps you.
>Lisa - Painfull in Kansas City
>
>At Tue, 25 Jul 2006, Rosey wrote:
>>
>>Hi all!
>>
>>I am a second year teachers college student and will soon be starting a
>>multimedia project for a large assessment in one of my classes. We have
>>been given the choice on what we wish to use as our purpose for the
>>project. As I have just found out about Endo and other linked problems,
>>I wanted to somehow help give awareness on those. The way in which we
>>can promote/present our ideas are through video, DVD, CD, or even
>>website (maybe other basic ways too). I am even considering targeting
>>it at tertiary students here in NZ.
>>
>>The reason I am sharing this with you all, is that I wish to have your
>>input on any ideas you may have. I want to know where you think there
>>are gaps in the internet resources on Endo, and what you would like to
>>see more of. I have found here in my city that people either know of
>>someone who has Endo, have it themselves (both of these are rare amongst
>>the people I know), or they have never heard of it before. I also know
>>that there are people at teachers college who have endo, but there is
>>nothing at teachers college to link them all together (I should think
>>about suggesting to start up a support group there...).
>>
>>So in short, please tell me what you think would have been helpful for
>>you. A website? A free and available CD-Rom with links and glossary on
>>it? Or something else? Please let me know as this is an idea I wish to
>>explore. I may not use your ideas, but they will at least form a basis
>>for further research/ideas. But I WILL recognise any person who's ideas
>>I use and also give information on this forum. But that is only if I go
>>ahead with the Endometriosis idea.
>>
>>Thanks for reading, and I would love to hear from you!
>>Rosey.
>>
>>--
>>*Everything has its time*
>>
>--
>Lisa - Painfull in Kansas City
>
--
*Everything has its time*
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