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Re: Cystitis or Endometriosis on the Bladder? TO: ALYSON
From: Alyson (anonymous@obgyn.net)
Sun Jul 23 18:48:24 2006
Pamela,
I wish I could help you with this one. I don't have any experience
beyond my doctor testing me to rule it out. That was why I mentioned
it. I know that several women here have it. You might be able to read
back through some posts or post a question here to get some help. I
know there is also a similar web site to this one that deals with
interstitial cystitis. Maybe if you google it the wrb site will come
up.
Sorry I can't be of more help!
Alyson
At Tue, 18 Jul 2006, PAMELA wrote:
>
>Alyson,
>
>I went to a Urologist around the beginning of last year. His assistant
>told me that out of all the tests I had done at the ER (I gave them
>results of several of my urinalysis results & urine culture results)
>only a few were Urinary Tract Infections. He said most of them were not
>even infections & I should not have been prescribed antibiotics. They
>did several Catherizations, a Cystoscopy & a Urodynamics Studay. They
>told me that I was retaining Urine which was causing bacteria to remain
>in my bladder---or something like that. So, he did a Urethral Dilation
>& said that should help. He said sometimes it helps for a while but
>sometimes it does not. He said it depends on the person & how long the
>dilation lasts. I was back in the ER in about 2-4 weeks after the
>dilation. I was never able to go back to the Urologist after that
>because my job was on my case at that time about missing so many days
>going to doctors appts & having tests. (I tried to make another appt
>with the same Urologist a couple of weeks ago, but now they will not see
>me because I have bills that are unpaid---& I cannot pay them right now
>due to money issues---what a bummer). The Urologist never mentioned
>Cystitis. But, I have been researching the net for several weeks now &
>I have read where Cystitis is very similar to having Endometriosis on
>the Bladder. How do they even diagnose Cystitis? I wonder why the
>Urologist never mentioned it when he did the Cystoscopy. He said that
>my bladder was not getting rid of bacteria like it should & that is why
>they did the Urodynamics Study on me. He said it had something to do
>with me being to anxious & getting up off the toilet too quick before I
>finish peeing (or something like that). But, lately I sit & sit & try
>to pee but I just can't go anymore & then about 10 minutes later I am
>back in the bathroom. Do you have Cystitis? How do you differentiate
>Cystitis from Endometriosis on the Bladder? What if a Urologist is not
>very familiar with Enometriosis on the bladder? Do you think he could
>misdiagnose? Let me know what you think?
>
>Thanks,
>Pamela
>
>At Tue, 18 Jul 2006, Alyson wrote:
>>
>>Pamela,
>>I have not been to the CEC, but e-mail with someone who was just there
>>in March. She had nothing but good things to say about her experience.
>>Also, I was wondering if your urologist said anything about interstitial
>>cystitis? Not to put you through another battery of tests, but if he
>>didn't already check for it, it might be something to ask about.
>>Alyson
>>
>>At Tue, 18 Jul 2006, anonymous wrote:
>>>
>>>Pamela,
>>>
>>>I had surgery with Dr. Albee and Dr. Sinervo in August of 2004. If
>>>you look back through the archived posts, you will see that there is
>>>nothing bad to be found about either one of them or the CEC. They gave
>>>me a life for the first time in my life. And, I can FINALLY have sex
>>>pain free. I am working 40 hours a week, when I was completely bed
>>>ridden prior to my surgery.
>>>
>>>Good Luck, you are heading in the right direction.
>>>
>>>At Mon, 17 Jul 2006, PAMELA wrote:
>>>>
>>>>To anyone,
>>>>
>>>>I just recently had surgery for Stage II Endometriosis. The
>>>>Reproductive Endocrinologist gave me some souvenior pictures (There were
>>>>2 black spots & 2 adhesions). The Reproductive Endocrinologist who did
>>>>the surgery (He did Laser Ablation) said all my problems would go away.
>>>>The only problem that went away was my pelvic pain. That was the least
>>>>of my worries. All of my other problems that I am having actually got
>>>>worse after my surgery. The Reproductive Endocrinologist (who is
>>>>actually a really good doctor---but be it told he does not specialize in
>>>>Endometriosis) told me that Endometriosis is only in the Reproductive
>>>>area, when I asked him about Endometriosis being on maybe my bladder &
>>>>intestines. I have been having so many problems. Urine problems with
>>>>blood in the Urinalysis but Urine Cultures coming back negative. They
>>>>tell me I have a yeast infection & put me on medicine that does not get
>>>>rid of it & then the next thing you know they tell me I have Bacterial
>>>>Vaginosis & they put on meds for that & within a week I have something
>>>>else. Its like neverending crapola. I just had an Endoscopy &
>>>>Colonoscopy in which the biopsies came back negative. But I had a
>>>>stricture in my Esophagus so they had to dilate it. I was having
>>>>horrible pain in my abdomen that warranted my Colonscopy, but they found
>>>>nothing. Right now I am having horrible mid back pain, along with lower
>>>>stomach pain & pain in my abdomen (its like shart shooting pain through
>>>>my bellybutton that flares into my back). I have my normal constant
>>>>fatigue (I feel like I never get enough sleep) & irritability. I am
>>>>having my normal bloating feeling that I always have along with problems
>>>>with my bladder (It is hard to describe---kinda like a Urinary Tract
>>>>Infection but different symptoms that no one has yet to tell me what it
>>>>could be). I have my Reproductive Endocrinologist telling me to go to a
>>>>Urologist. The Urologist tells me its a Gynecological Issue. Then my
>>>>Primary Care doctor does not want to do anything with me. I have been
>>>>sitting to wait for someone to do something now for a month. I get so
>>>>depressed & aggravated sometimes just not knowing what to do, literally
>>>>in tears. In the meantime I am trying to keep my cool & go to work &
>>>>try to maintain normal life. In the meantime, I constantly wonder why I
>>>>have not been able to get pregnant (so I have the stress of that on top
>>>>of everything else). I finally, approx. 1 month ago, sent an E-mail to
>>>>an Endometriosis specialist asking him if he thinks my problems are all
>>>>Endometriosis related. He stated that they very well could be & for me
>>>>to send my Medical Records to The CEC (Center for Endometriosis Care in
>>>>Atlanta, GA) & I might get scheduled to come in for excision surgery.
>>>>Has anyone ever been there? If so, did you have surgery & if so did it
>>>>go well? If not, what complications did you have? If so, did any of your
>>>>Endo come back? Do you think excision is the best type of surgery for
>>>>Endo? Just let me know. I don't want to go somewhere without having a
>>>>little knowledge first from someone else's experience.
>>>>
>>>>Thanks,
>>>>Pamela
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