Re: ANYONE ELSE OUT THERE WITH BLADDER & INTESTINAL ISSUES? TO: ELISA
From: PAMELA (anonymous@obgyn.net)
Fri Jul 21 18:07:29 2006
Elisa,
Thanks for the input. Yes this does help. Sometimes even with everyone
giving me their input I still just do not know what to do. I am in SO
much PAIN right now it is not even funny. I do not know if it is my
bladder, my abdomen, my pelvis or what is going on. I do have a history
of 2 bulging discs but this pain is different that I am having right
now. It is more of an internal pain (I try to explain that to
doctors---but they do not listen---they just tell me is is related to my
back pain). See what I just posted Entitle: ANYONE ELSE OUT THERE WITH
LOWER BACK PAIN??? (or something like that---I have done forgotten what
it was). I just posted it about 10-15 minutes ago. I am just wondering
if all my problems with my Urinary Tract & Stomach might be related to
the ENDO. And, I just started worrying about a week ago if all this is
messing up my kidneys. But, I thought "Wouldn't it show up on a
urinalysis & Urine Culture if I was having problems with my Kidneys?"
The ER just recently did a CT Scan & said all my organs were fine. I
would guess that it would show up on that too. Am I wrong? I don't
know. I just don't know what to do sometimes. I am just waiting
patiently to save up the time to get to the CEC in Atlanta, GA. I am
still trying to get all my medical records together to send to them to
review & let me know if they think all this is related to Endo or not.
Thanks again,
Pamela
At Wed, 19 Jul 2006, Elisa wrote:
>
>Hi There~
>
>Yes, I have bladder issues and retroperitoneal fibrosis. It turns out
>years ago I had a cyst on my right ovary that ruptured it was the size
>of a grapefruit when the found it then it ruputured and it has created a
>big nightmare ever since. That was in the mid 80's and it didn't get
>discovered until 1994. By then both of my ureters where like cement and
>my bladder did not function properly. I could stand up and urine would
>flow out of me without control. I also had and still have
>hydronephrosis and a dialated ureter even after a "Bioari Flap" was
>created in 1998 to by pass and cut out the right ureter and redirect it
>and put it in the middle of my stomach. I had relief for almost 8 years
>and now the flap may have scarring which is to be expected and the right
>kidney can only function at 46% because of the scarring. There is no
>guarantee on these areas but the temp. relief and removal of endo back
>in those areas was a BIG relief without all the colicky attacks and
>various Dr's wanting to remove this and that until all organs where
>removed on the right side and then they said it was in my head. I
>joined an Endo support group who lead me to specialist in 1994 and they
>found it was in my urinary tract which at that time only 3% of women
>could get. I have seen this is so regular now...I know the numbers are
>up. It took them doing a laparotomy or the Nezhat's who specialize with
>scoping in unique ways to get to those ureters and find it. Some only
>look topically which is frustrating since you spend all that money and
>hope they are doing a complete review of all the areas it can go.
>
>I even had great urologist who where not endo specialist looking on
>renal scans and IVP's and could see a slight stricture in the ureter at
>the UPJ (uterine pelvic junction) but thought auh..that is a tight area
>that is to be expected. Well it was kinked back there so I can see how
>they would have thought one thing but it was truly something else that
>needed further review.
>
>Hope this helps.
>
>--
>Elisa :)
>
>At Wed, 19 Jul 2006, Angie wrote:
>>
>>Are you taking a narcotic for the pain because some of the symptoms you
>>are talking about, specifically itching, can be a side effect of
>>hydrocodiene and the like.
>>
>>At Tue, 18 Jul 2006, PAMELA wrote:
>>>
>>>To anyone who will listen,
>>>
>>>I just had Laser Ablation for Stage II Endometriosis. The only thing
>>>that the surgery got rid of was my pain in my pelvic region. However,
>>>all of the problems that I was having before my surgery are still here.
>>>They are actually worse. I could have dealt with the pain. It is all
>>>these problems together that I just have a hard time dealing with. Has
>>>anyone out there found that they are having alot of other issues & they
>>>think it might be related to the Endometriosis & that they may have it
>>>in other areas of the body? Do you think that if you already have Endo
>>>in one place isn't it very likely that it is somewhere else if you start
>>>having other problems? My Reproductive Endocrinologist did not even
>>>check anywhere else in my body when he did the surgery. He said that
>>>Endo is only in the Reproductive region. How do I know that I may not
>>>have it in the bladder or the intestines? I have been having alot of
>>>abdominal pain (of which no one can tell me the cause) & urinary
>>>problems (alot of urine retention with urinalysis that shows blood cells
>>>but negative urine cultures). The past 3 days I have been having
>>>horrible middle back pain that radiates into my chest (just below my rib
>>>region). The pain is pretty bad & I do not know what is causing that. I
>>>just had an Endoscopy & Colonoscopy & they did a Biopsy on both with
>>>showed nothing at all wrong with me. Everything was completely normal.
>>>They did have to Dilate my Esophagus. It had a stricture & they could
>>>not tell me why I had a stricture (They said it was normal for my
>>>age---I am only 32 years old---how is that normal). Of course I also
>>>have the severe fatigue. I also have pretty severe hot flashes at times
>>>& my hair has been falling out pretty bad for the past 5 years or so. At
>>>times I have severe nausea & dizziness (I have not had that as much
>>>though since I had the surgery). I also get this itching all over my
>>>body. It is not in any specific area. I just itch & itch & cannot stop
>>>itching. I have no idea what causes that. I have been told 2 times
>>>that I have a cyst on my ovary (about 3.0 cm) but everytime the CT is
>>>done in the ER they tell me it is not causing my pain. Of course, I
>>>have the pain too. My pelvic pain is gone since I had the surgery. Now,
>>>I am still having pain in my belly button. Sometimes I have sharp pains
>>>that shoot through my sides too. Does anyone else have any or some of
>>>these symptoms? Was it Endo? If not, what was it? I am just feeling so
>>>bad all the time & I want some answers (I am in the process of maybe
>>>going to the CEC to get surgery, but right now I do not have the money
>>>or the time saved up from work so I am just having to sit around & live
>>>with this for the time being).
>>>
>>>Thank god for this forum:)
>>>Pamela
>>
>>--
>>Personally I'm always ready to learn, although I do not always like being taught.
>><br>-Sir Winston Churchill
>>
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