Cystitis or Endometriosis on the Bladder? TO: ALYSON
From: PAMELA (anonymous@obgyn.net)
Tue Jul 18 17:02:05 2006
Alyson,
I went to a Urologist around the beginning of last year. His assistant
told me that out of all the tests I had done at the ER (I gave them
results of several of my urinalysis results & urine culture results)
only a few were Urinary Tract Infections. He said most of them were not
even infections & I should not have been prescribed antibiotics. They
did several Catherizations, a Cystoscopy & a Urodynamics Studay. They
told me that I was retaining Urine which was causing bacteria to remain
in my bladder---or something like that. So, he did a Urethral Dilation
& said that should help. He said sometimes it helps for a while but
sometimes it does not. He said it depends on the person & how long the
dilation lasts. I was back in the ER in about 2-4 weeks after the
dilation. I was never able to go back to the Urologist after that
because my job was on my case at that time about missing so many days
going to doctors appts & having tests. (I tried to make another appt
with the same Urologist a couple of weeks ago, but now they will not see
me because I have bills that are unpaid---& I cannot pay them right now
due to money issues---what a bummer). The Urologist never mentioned
Cystitis. But, I have been researching the net for several weeks now &
I have read where Cystitis is very similar to having Endometriosis on
the Bladder. How do they even diagnose Cystitis? I wonder why the
Urologist never mentioned it when he did the Cystoscopy. He said that
my bladder was not getting rid of bacteria like it should & that is why
they did the Urodynamics Study on me. He said it had something to do
with me being to anxious & getting up off the toilet too quick before I
finish peeing (or something like that). But, lately I sit & sit & try
to pee but I just can't go anymore & then about 10 minutes later I am
back in the bathroom. Do you have Cystitis? How do you differentiate
Cystitis from Endometriosis on the Bladder? What if a Urologist is not
very familiar with Enometriosis on the bladder? Do you think he could
misdiagnose? Let me know what you think?
Thanks,
Pamela
At Tue, 18 Jul 2006, Alyson wrote:
>
>Pamela,
>I have not been to the CEC, but e-mail with someone who was just there
>in March. She had nothing but good things to say about her experience.
>Also, I was wondering if your urologist said anything about interstitial
>cystitis? Not to put you through another battery of tests, but if he
>didn't already check for it, it might be something to ask about.
>Alyson
>
>At Tue, 18 Jul 2006, anonymous wrote:
>>
>>Pamela,
>>
>>I had surgery with Dr. Albee and Dr. Sinervo in August of 2004. If
>>you look back through the archived posts, you will see that there is
>>nothing bad to be found about either one of them or the CEC. They gave
>>me a life for the first time in my life. And, I can FINALLY have sex
>>pain free. I am working 40 hours a week, when I was completely bed
>>ridden prior to my surgery.
>>
>>Good Luck, you are heading in the right direction.
>>
>>At Mon, 17 Jul 2006, PAMELA wrote:
>>>
>>>To anyone,
>>>
>>>I just recently had surgery for Stage II Endometriosis. The
>>>Reproductive Endocrinologist gave me some souvenior pictures (There were
>>>2 black spots & 2 adhesions). The Reproductive Endocrinologist who did
>>>the surgery (He did Laser Ablation) said all my problems would go away.
>>>The only problem that went away was my pelvic pain. That was the least
>>>of my worries. All of my other problems that I am having actually got
>>>worse after my surgery. The Reproductive Endocrinologist (who is
>>>actually a really good doctor---but be it told he does not specialize in
>>>Endometriosis) told me that Endometriosis is only in the Reproductive
>>>area, when I asked him about Endometriosis being on maybe my bladder &
>>>intestines. I have been having so many problems. Urine problems with
>>>blood in the Urinalysis but Urine Cultures coming back negative. They
>>>tell me I have a yeast infection & put me on medicine that does not get
>>>rid of it & then the next thing you know they tell me I have Bacterial
>>>Vaginosis & they put on meds for that & within a week I have something
>>>else. Its like neverending crapola. I just had an Endoscopy &
>>>Colonoscopy in which the biopsies came back negative. But I had a
>>>stricture in my Esophagus so they had to dilate it. I was having
>>>horrible pain in my abdomen that warranted my Colonscopy, but they found
>>>nothing. Right now I am having horrible mid back pain, along with lower
>>>stomach pain & pain in my abdomen (its like shart shooting pain through
>>>my bellybutton that flares into my back). I have my normal constant
>>>fatigue (I feel like I never get enough sleep) & irritability. I am
>>>having my normal bloating feeling that I always have along with problems
>>>with my bladder (It is hard to describe---kinda like a Urinary Tract
>>>Infection but different symptoms that no one has yet to tell me what it
>>>could be). I have my Reproductive Endocrinologist telling me to go to a
>>>Urologist. The Urologist tells me its a Gynecological Issue. Then my
>>>Primary Care doctor does not want to do anything with me. I have been
>>>sitting to wait for someone to do something now for a month. I get so
>>>depressed & aggravated sometimes just not knowing what to do, literally
>>>in tears. In the meantime I am trying to keep my cool & go to work &
>>>try to maintain normal life. In the meantime, I constantly wonder why I
>>>have not been able to get pregnant (so I have the stress of that on top
>>>of everything else). I finally, approx. 1 month ago, sent an E-mail to
>>>an Endometriosis specialist asking him if he thinks my problems are all
>>>Endometriosis related. He stated that they very well could be & for me
>>>to send my Medical Records to The CEC (Center for Endometriosis Care in
>>>Atlanta, GA) & I might get scheduled to come in for excision surgery.
>>>Has anyone ever been there? If so, did you have surgery & if so did it
>>>go well? If not, what complications did you have? If so, did any of your
>>>Endo come back? Do you think excision is the best type of surgery for
>>>Endo? Just let me know. I don't want to go somewhere without having a
>>>little knowledge first from someone else's experience.
>>>
>>>Thanks,
>>>Pamela
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