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Re: Has anyone had surgery at the CEC? Was it successfull? Any horror stories?
From: Alyson (anonymous@obgyn.net)
Tue Jul 18 10:51:06 2006
Pamela,
I have not been to the CEC, but e-mail with someone who was just there
in March. She had nothing but good things to say about her experience.
Also, I was wondering if your urologist said anything about interstitial
cystitis? Not to put you through another battery of tests, but if he
didn't already check for it, it might be something to ask about.
Alyson
At Tue, 18 Jul 2006, anonymous wrote:
>
>Pamela,
>
>I had surgery with Dr. Albee and Dr. Sinervo in August of 2004. If
>you look back through the archived posts, you will see that there is
>nothing bad to be found about either one of them or the CEC. They gave
>me a life for the first time in my life. And, I can FINALLY have sex
>pain free. I am working 40 hours a week, when I was completely bed
>ridden prior to my surgery.
>
>Good Luck, you are heading in the right direction.
>
>At Mon, 17 Jul 2006, PAMELA wrote:
>>
>>To anyone,
>>
>>I just recently had surgery for Stage II Endometriosis. The
>>Reproductive Endocrinologist gave me some souvenior pictures (There were
>>2 black spots & 2 adhesions). The Reproductive Endocrinologist who did
>>the surgery (He did Laser Ablation) said all my problems would go away.
>>The only problem that went away was my pelvic pain. That was the least
>>of my worries. All of my other problems that I am having actually got
>>worse after my surgery. The Reproductive Endocrinologist (who is
>>actually a really good doctor---but be it told he does not specialize in
>>Endometriosis) told me that Endometriosis is only in the Reproductive
>>area, when I asked him about Endometriosis being on maybe my bladder &
>>intestines. I have been having so many problems. Urine problems with
>>blood in the Urinalysis but Urine Cultures coming back negative. They
>>tell me I have a yeast infection & put me on medicine that does not get
>>rid of it & then the next thing you know they tell me I have Bacterial
>>Vaginosis & they put on meds for that & within a week I have something
>>else. Its like neverending crapola. I just had an Endoscopy &
>>Colonoscopy in which the biopsies came back negative. But I had a
>>stricture in my Esophagus so they had to dilate it. I was having
>>horrible pain in my abdomen that warranted my Colonscopy, but they found
>>nothing. Right now I am having horrible mid back pain, along with lower
>>stomach pain & pain in my abdomen (its like shart shooting pain through
>>my bellybutton that flares into my back). I have my normal constant
>>fatigue (I feel like I never get enough sleep) & irritability. I am
>>having my normal bloating feeling that I always have along with problems
>>with my bladder (It is hard to describe---kinda like a Urinary Tract
>>Infection but different symptoms that no one has yet to tell me what it
>>could be). I have my Reproductive Endocrinologist telling me to go to a
>>Urologist. The Urologist tells me its a Gynecological Issue. Then my
>>Primary Care doctor does not want to do anything with me. I have been
>>sitting to wait for someone to do something now for a month. I get so
>>depressed & aggravated sometimes just not knowing what to do, literally
>>in tears. In the meantime I am trying to keep my cool & go to work &
>>try to maintain normal life. In the meantime, I constantly wonder why I
>>have not been able to get pregnant (so I have the stress of that on top
>>of everything else). I finally, approx. 1 month ago, sent an E-mail to
>>an Endometriosis specialist asking him if he thinks my problems are all
>>Endometriosis related. He stated that they very well could be & for me
>>to send my Medical Records to The CEC (Center for Endometriosis Care in
>>Atlanta, GA) & I might get scheduled to come in for excision surgery.
>>Has anyone ever been there? If so, did you have surgery & if so did it
>>go well? If not, what complications did you have? If so, did any of your
>>Endo come back? Do you think excision is the best type of surgery for
>>Endo? Just let me know. I don't want to go somewhere without having a
>>little knowledge first from someone else's experience.
>>
>>Thanks,
>>Pamela
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