ENDO Messages for July, 2006: Re: just been diagnosed with Endometroisis

Re: just been diagnosed with Endometroisis

From: Alyson (anonymous@obgyn.net)
Tue Jul 18 10:47:43 2006

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Hi Katie, Welcome! You are definately not alone in your feelings regarding this disease. It is always a mixed bag of emotions going in for a surgery for something so mysterious after years of being told nothing is seriously wrong. Now that you know what you are dealing with I would suggest educating yourself as much as possible on the different treatment options available to you, especially before your next Dr. appointment. The 6-9 month injections you spoke of sound like a drug called Lupron. It is a high powered medicine that works to drastically lower your estrogen levels. The belief is that endo is fueled by estrogen and lowering the estrogen should slow down the endometriosis. I have not tried Lupron myself, but there are many women on this forum who have. I think it is a really good idea to find out all that you can about any medication before trying it. Many of the medications doctors use to treat endometriosis can come with some serious side effects. So, you really want to know what you are dealing with when making a decision about whether or not that particular treatment method is right for you. Go back through some posts and read what you can about what the ladies here have to say about different meds they are on. Just remember what does not work for one person may do wonders for another, and the opposite holds true. Here is a link to a web site I found very helpful for some general knowledge about the disease and treatment possibilities. http://www.morehead.org/wellconnected/000074.htm There are also a couple of books available through the Endometriosis Association. If you have a chance to get ahold of them, I think they are great resources. If you would like to e-mail me I can get you the titles. Alyson

At Tue, 18 Jul 2006, katie wrote: >
>hi all
>
>I am 24 years old and 2 weeks ago i was diagnosed with endometriosis via
>a laparoscopy. I have been told the endo is in my ovaries and along
>with that they found a cyst on my left ovary and my left fallopian tube
>is damaged.
>
>Ive always had bad periods, but the last couple of years they had gotten
>worse and i just couldnt take the pain and the distruption to my life
>any longer. It stopped me going out, going to work, seeing friends, my
>relationship with my boyfriend has suffered due to me feeling ill and
>not wanting to partake in certain activities!
>
>I decided to go to my doctor for the 10th time and demanded that
>something more than antibiotics be given. I had read about endo when i
>was 17 or 18 and the symptons all matched mine, but my doctor just
>thought i had a tubal infection, or just bad periods.
>
>I havnt really taken in the news yet. Its still come as a shock to me.
>I dont know if others feel the same way as i did, but i thought that
>maybe i was just overreacting to the pain that i was having and maybe it
>was all in my head. the pain was and is very real i just didnt know if
>it was as bad as i thought or compared to others.
>
>People kept telling me before surgery, youll be fine, youll be fine, and
>now that im not fine, they dont know what to say to me!
>
>My first appointment with my gynaecologist who did the surgery is on the
>2nd August and he wants to try some injections for 6-9 months that are
>going to put me in temporary menopause. Dont know what they does really
>or what the side effects are but i just want this situation to be
>resolved and for the pain to go away.
>
>anyway, just thought that i would introduce myself and if anyone can
>give me any wise words of wisdom on how you deal with endo and what
>symptons you have it would be great to hear from you.
>
>Thankyou
>
>--
>Katie
>

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