Re: Pain increase after seasonale? Please help!!
From: Anna (anonymous@obgyn.net)
Fri Jul 14 17:05:49 2006
Posting again..
Thank you so much for sharing your experience Alyson.. I have some more
questions for you though...I hope you'll take the time to answer them...
1. Did you feel it was worthwhile to be on seasonale ? It seems like it
just aggravated the disease...are you on it now? Basically, my doctor is
recommending I stay on it for atleast 3 months before giving up..but the
way it is now...I can;t function without a pain killer :( and earlier I
was managing great without anything at all... But its just that my
doctor totally feels that it cannot be caused by seasonale..I respect my
doctor and so I don;'t want to give up midway.. 2. The next step for
me would be a laparoscopy - since you have had one..do you think they
help...I would much rather live with my original pain...it was a mnior
annoyance comapred to what I am going through now..and I feel like
kicking myself for going on beliveing that something is wrong - getting
all those tests done -which show nothing anyway - and messing around
with my hormones..my periods were regular too before this..is it better
to leave this disease untouched rather than trying to cure it..I am not
even sure I have it to start with!
Sorry if I am sounding paranoid...but I really need to talk to somebody
and make a good decision here.. Thanks a lot! Anna
>At Fri, 14 Jul 2006, Alyson wrote:
>>
>>Anna,
>>I'm not sure how much help I can offer other than my personal
>>experience.
>>I was diagnosed a couple of years ago via laproscopy. I started seeing
>>my doc b/c I only have about one period a year when not on the pill and
>>started having pains (quick little sharp pain, nothing crazy)that I
>>associated with my ovaries. Now when I was on the pill and having a
>>period they weren't pleasant, but certainly not bad (as you said, very
>>bearable). She figured out that I have polycystic ovary syndrome (hence
>>no period) and put me back on Ortho Cyclen. I was still having the
>>pains, so she decided to do a lap to look for endo. She found endo on
>>the back of my uterus and the sacral ligament. After the diagnosis she
>>thought it would be best to put me on Seasonale to decrease the number
>>of periods. I had a bit of cramping and spotting the first couple of
>>months. When I had that first period though I thought I was going to
>>die. I had never experienced anything that horrible. I stayed on the
>>Seasonale for about a year and every period (only 4, but still...) was
>>excrutiating, knocked me to the ground. Like I said, my periods before
>>that were pretty normal. She insisted that the endo could not be
>>causing the pain because she had removed all of it a year prior and she
>>didn't think there was any way it would have continued to grow while I
>>was on the Seasonale. I sought a second opinion. He suggested surgery.
>>At that point I was so miserable I jumped at it. He went in and found
>>my pelvic cavity "full of disease" (his words), including an Orange
>>sized endo implant in my hip. My ovaries were involved, uterus front
>>and back, sacral ligament, pelvic and abdominal wall, and the hip area.
>>Quite a drastic difference since the surgery a year prior.
>>Ever since that first surgery and the Seasonale I have had chronic
>>almost daily intense pain that now includes my sciatic area on both
>>sides. I don't know why that is and am not saying that it was caused by
>>the Seasonale, only that it is completely possible to still experience
>>the pain and symptoms while taking it...and for the endo to continue to
>>grow. I have also wondered about the idea of the estrogen in bcp's. It
>>had occurred to me (and I have no idea or proof that it is true) that
>>something about the hormone levels in the Seasonale did not agree with
>>my endo. If you continue having problems with it, ask her about Yasmin.
>>Some women I've talked to here have had better luck switching to that
>>after having problems with Seasonale.
>>Feel free to e-mail me if you want to pick my brain about it at all. I'd
>>be happy to help if I can.
>>Alyson
>>
>>At Fri, 14 Jul 2006, Anna wrote:
>>>
>>>Hi ladies,
>>>My doctor suspects endo because I ahve been having severe pain on my
>>>left side on and off for more than a year..I earlier thought it was
>>>related to my colon in some way..but all the tests are normal so far
>>>(touchwood!)..I have been on seasonale for about 1.5 months...I did not
>>>have any major side effects except nausea in the morning - but my pain
>>>which was cyclic/periodic before has really shot up and I am now in pain
>>>everyday...my legs and hips pain too...which was not happening before..I
>>>am wondering if the seasonale caused this? I must mention that I ahve
>>>been under a lot of emoitional stress a month ago and am also taking
>>>anti-depressants (I started these 2 weeks after the seasonale) I asked
>>>my Doctor and she said seasonale cannot cause endo to become worse -
>>>maybe it became worse due to stress and is now out of control and is
>>>suggesting surgery...I want to avoid surgery right now becuase I am
>>>dealing with some tough times as it is ...becasue really before the
>>>sesonale _ my pain was very very bearable..Hasanybody had such an
>>>experience with Seasonale? I don't have any spotting etc..I read that
>>>endo feeds of estrogen and OCPs actually contain estrogen - so is that a
>>>possibility? Not sure....will really appreciate any response...please
>>>help!!
>>>Thanks,
>>>Vibha.
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