|
Re: what do you know about diagnosing adenomyosis?
From: Aimee (anonymous@obgyn.net)
Wed Jul 12 15:12:51 2006
I'm glad you re-posted, obviously I'm not glad with what you had to go
through, I'm sorry to hear all that. But by posting more detail about
what you went through shows that you didn't just make a quick decision
to have a removal. I'm sure that decision is not easy no matter what
age, kids or no kids, it's very brave. Amazing to hear you'r adopting I
really hope that runs smoothly for you unlike all the adeno and endo
rubbish you've had to go through. I hope I'm a success story but
understandably I'm not hugely positive as I'm sure most women on here
aren't at times! take care xx
At Wed, 12 Jul 2006, Dawn wrote:
>
>I can only speak for myself, but, I just could not endure the pain from
>the adeno anymore, and that is why I had my hyst. The terrible pain
>started when I was in my teens, and I was 37 when I finally had the
>hyst. It was crippling pain, and I mean literally when it hit me I
>could not stand up or walk. And I was tired of spending my life on pain
>killers. I tried every treatment out there, from laps to Lupron to BCP,
>to Depo Provera, to natural progesterone cream/supplements, you name it,
>I tried it. I never had kids, but we are in the process of adoption
>right now. Good luck to you. I pray you are one of the success
>stories!
>
>At Wed, 12 Jul 2006, anonymous@obgyn.net wrote:
>>
>>I just think we need to be careful saying on here that hysterectomy is
>>the only way. It can undoubtedly be the definitive answer to diagnosis
>>(but in some cases even after removal it still isn't clear) but as I've
>>mentioned in my case I WAS diagnosed through a hysteroscopy. So I
>>wouldn't want all women reading on here to believe the only way is a
>>hysterectomy. In my case i haven't had kids and I want to at some point
>>so a hysterectomy wouldn't be the answer. I would hate the thought of
>>someone not trying all the options before they think hysterectomy is the
>>only way when they haven't had children. But believe me once I've had
>>my kid I will have it removed! x
>>
>>At Wed, 12 Jul 2006, Dawn wrote:
>>>
>>>I went to an endo specialist, and he told me that the only way to
>>>diagnose adeno for sure was by testing after a uterus has been removed
>>>from the body. The other diagnostic tools can cause the doctor to
>>>highly suspect it. Here are a couple of good articles on adeno:
>>>http://www.endometriosistreatment.org/html/adenomyosis.html
>>>http://www.centerforendo.com/articles/adenomyosis.htm
>>>BTW, my dr. said he suspected it because my uterus was enlarged, soft,
>>>and boggy, and I did go ahead and have a hyst, and sure enough, the
>>>pathology report confirmed it.
>>>
>>>At Tue, 11 Jul 2006, Hannah wrote:
>>>>
>>>>There are a few of us on this forum trying to gather info re: diagnosing
>>>>adenomyosis. The most common thought is that it can only really be
>>>>diagnosed after biopsing the uterus via hysterectomy (removing only the
>>>>uterus,leaving the ovaries). So far we are hearing from our dr's that
>>>>they just try to rule everything else out, including GI problems, before
>>>>opting for surgery. Basically that you go into such a serious surgery
>>>>without knowing it's definitely the right thing to do?! Also-any
>>>>experience on whether adeno can be genetic (occuring in siblings or
>>>>moms/daughters)?
>>>>
>>>>Thanks!
>>>>Hannah
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)