ENDO Messages for July, 2006: Re: I am so uninformed. Complete hysterectomy needed?

Re: I am so uninformed. Complete hysterectomy needed?

From: Alyson (anonymous@obgyn.net)
Thu Jul 6 13:41:34 2006

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Dawn, I think anytime you are dealing with a suggestion of surgery it is a good idea to seek s second opinion. Your doctor may be thinking it would be necessary to remove your ovaries because they produce estrogen, which can drive the growth of endometriosis. That said, there is quite alot of discussion about the fact that a hysterectomy is not a cure for endo. Many women have had successful results, but many have also had there endo return not long after the proceedure. That is something to carefully weigh. There are a couple of books that are distributed by the Endometriosis Association. You can go to their web site to check out the titles. They discuss various options for endo treatments, including the pros and cons of having a hysterectomy. I believe they can be ordered through the association, but I got mine through amazon.com As for the drugs...your doc probably thinks he is providing you with something strong enough to manage your pain. It has been my experience that milder drugs often can't stand up to the intensity of endo pain. Try asking him for something milder such as Darvocet. I take that and it doesn't constipate me, but it also doesn't really relieve my pain. Unfortunately pain management can be a catch 22. If you still don't like how they are making you feel, maybe you can investigate some alternative pain management options. I tried acupuncture and it worked well for me. There are also books regarding the "endo diet" which suggest foods to stay away from to minimize endo pain. Try not to freak yourself out too much about the "c" word. I know it is impossible not to imagine the worst when your body is going hay wire. I am sure everything will be alright and I hope your doctor will provide some answers. Alyson

Here is the endo association link: http://www.endometriosisassn.org

At Thu, 6 Jul 2006, Dawn wrote: >
>I had surgery to remove my left fallopian tube 5 months ago. It was 3
>times its normal size and painful. I was told afterwards that the tube
>tested "high" for endometriosis. I'd already known I had some
>endo...had some burned off and some adhesions fixed when I got my tubes
>clamped 4 years ago(I have 3 children) and I had known the tube was over
>sized and blocked for the past 7 years but nobody ever really said
>anything about it until it started bothering me and I had it removed.
>So I had gone for my post-opp appointment back in Feb. and was told
>that I would eventually need a complete hysterectomy..including my
>ovaries.."when the pain gets bad enough" the doctor said. I was in
>shock, and did not ask many questions, but was not given any
>explainations by my doctor either.
>So lately I have been having a lot of lower abdominal pain, my left side
>really aches and it hurts when I move or stretch..even when I use the
>bathroom it hurts. My hips hurt all night too..that has been going on
>for awhile now.
>So I have an appointment today to see what the doctor will do about it.
>Honestly..all I can think is "CANCER!!!" but you'd think the Dr would
>have checked when I had my surgery 5 months ago...I think I am really
>just paranoid.
>
>What I don't understand is why I have to have my ovaries out too? My
>best friend had endo. so bad that her uterus was twisted up and she had
>a hysterectomy but got to keep her ovaries and has had no problems
>since. I don't know if I need a second opinion. I'm only 28 years old,
>and even though we will be having no children...I do not want my ovaries
>removed and to be on HRT for the rest of my life at such a young age.
>Also..the doctor keeps only giving me hydrocodone for pain. I told him
>I don't like the stuff..it makes me really sick and messes with my
>breathing. Also it causes constipation..which makes my abdominal pain
>worse! How stupid to prescribe something that causes constipation in
>women with abdominal pain...don't you think so? So I just don't take it.
>Any suggestions anyone has would be MUCH appreciated!~
>
>--
>Dawn
>

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