Re: Crying In Pain with Endo/Adenomyosis ~ Sharon Ann....
From: Elisa (anonymous@obgyn.net)
Thu Jul 6 10:04:43 2006
Dear Sharon~
My heart is going out to you right now. Sounds like your spirit is so
low. I agree with Dena, we need to let go and take what ever help we
can get to keep comfortable. There are surgeries still after
hysterectomies. Maybe not as often but they are still happening. Please
take them if you need them. My Dr's. finally said no more because of
the thick density of scarring that occurs from a lot of surgeries. It's
a catch 22. Taking the meds helps maintain some type of balance while
we are "stuck" if you will.
It's Ok...your body needs this and so do you. Hang in there! Let us
know how your surgery goes.
--
Elisa
At Thu, 6 Jul 2006, Dena wrote:
>
>Sharon Ann,
>
>I'm so sorry you are going through this. I have also had a hysterectomy
>and am looking at me second laparotomy since the hyst. I think doctors
>are finally (well, at least the ones who stay current) realizing that
>they should not recommend a hyst for endo. It just doesn't do any good,
>just adds one more surgery to our already long list.
>
>I know you said you don't want to be dependant on pain meds, but you
>might want to reconsider if you want some happiness. Granted, I'm on
>pain meds and am not happy all the time, or even half the time lately ;)
>but without them where would I be? I would have NO life what so ever.
>Please remember, pain medication is there for people like us who need
>it. Don't let anyone else's opinion of medicine interfere with your own
>life and enjoyment of it.
>
>Wishing you pain free days....
>
>At Thu, 6 Jul 2006, Sharon wrote:
>>
>>Its 4:49am EST.
>>
>>Crying in pain ,I just woke my husband up because its thats bad and I
>>dont like taking pain meds but I know I have to.
>>Im 42 and since 1994 after having a complete hysterctomy and 14
>>surgeries ,which includes several Laps, Salopingos, 5 -c-cection for
>>endometreomas that ruptured.
>>I have been on lupron injections several times,It didnt help me.
>>I 've been on Synarel Nasal Spray
>>So many dam alt meds.
>>herbs
>>I think I have been in every hospitals in the nj shore
>>Bayshore
>>Monmouth Medical
>>Jersey Shore
>>River View, Rd bank
>>Columbus Hospital newark
>>
>>Listen I just want all new comers to know That a hysterctomy is no dam
>>cure and if i knew now what i didnt know then I wouldnt have it dont but
>>oh well.
>>
>>And another thing They claim Endo is no real threat then why did my
>>doctors say to me "Sharon I can not operate on you again so soon I could
>>lose you on the table because we have done t many surgeries.
>>So I would say they are wrong about that who ever said Endo is no real
>>health threat.
>>
>>So now its been 3 yrs since my last two and Im facing another just so
>>scared :""( because I dont have my parents and because of endo I have
>>this medical phobia just scared to die.:""(
>>
>>So Please If theres any body out there thats know of some miracle please
>>share:"""(
>>
>>So much Love to all The EndoAngels & all Ladies who just suffer.
>>
>>To me Endo has stolen my life, Im a great singer but I can do shit:"""(
>>witout being in pain , I had to run off stage because I almost fell from
>>pain attack , I proberly should have just took my meds before but i dont
>>want to depend on them.
>>so I dont perform live anymore:"(
>>I almost crashed my 2006 malibu from a pain attack
>>its so unfair
>>I wish I could get this miracle and make all better.
>>
>>So much Love to all The EndoAngels
>>God Bless You All
>>If anybody needs a friend Im here
>>Im on aol
>>endoangel2006@aol.com
>
>--
>Dena
>
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