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Tired Of IsolationFrom: Jess (anonymous@obgyn.net)Tue Jul 4 04:49:31 2006
Hello, I am a 26yr old female who has severe endometriosis, irritable bowel syndrome, interstitial cystitis and a herniated disc in my lower back. I am unable to work due to severe pelvic pain on a daily basis. I'm wondering if there are other women who are unable to work due to pain and if they are finding themselves becoming isolated with the limitations that this pain can cause. I do not have any support groups in my area and am looking to email with anyone who would like to share coping methods (physical/mental), support, friendship through the challenging times, as well as the stable ones. I believe that endo affects so many aspects of a womans life and its really important that we have someone to speak to along the way. I'm recently realizing that I don't have anyone to really talk to about how this disease has affected me or my lifestyle and its become really unhealthy the way ive become isolated with my pain. Ive become sort of like this quiet sufferer who just fakes that i feel ok around family so as to not bother them with my ailments. Does anyone else feel like their pain is a burden on others? I also am interested in speaking to women about relationships and the affect that endo has upon them. I have been single for 2 or 3 years now (lost track!) my last relationship felt heaven-sent since i had someone who was supportive and gentle and understanding of my pain issues. I didnt mind being single before i was diagnosed and enjoyed being independent- but now its a different story.. i fear that people are downright cold towards people who aren't completely healthy and maybe wouldnt put up with someone who suffers from chronic pain processes. I've tried to make myself forget about being intimate with anyone again because of the physical pain it causes. To me, this is really unhealthy and not by choice and i wonder if anyone else is affected to this extent too. (i had someone literally joke and make fun of me that i could be a nun now) I was diagnosed with severe endo stage 5 in 2002 and since then have had numerous surgeries (all operative on endo) and have been on all sorts of treatments and meds to control it. After all thats been done, i have not improved, i have actually worsened to the point i cannot work at all now. It would be great to talk to anyone who is interested in sharing coping methods/thoughts/support.. feel free to write me directly at Skoolphunk@aol.com Thanks much for reading this long post! may your day be pain-free, full of love and inspiration! jess
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