Re: Possible Adenomyosis/Severe Pelvic Pain
From: JoCee27 (anonymous@obgyn.net)
Fri Jun 30 13:05:55 2006
Hi Sherry.
First of all, honey I'm sorry you are having such a hard time with
everything going on inside your body. I know exactly what you are
dealing with, and believe me, I know your fears as well. I want to say
that Adenomyosis is like Endo in that it does not go away, or so I am
told. I have a friend that has Endometriosis and Adenomyosis. She used
to have cysts, but she had a complete Hysterectomy 19 years ago. She
told me that Adenomyosis, like Endometriosis, doesn't go away. She
still has problems with both. I took her to ER 6 months ago because her
vaginal walls had literally fallen out of her vagina and the ER doctor
stitched them back in place. This was supposed to be done via the OR,
but they couldn't get her up there in time out of fear that she would
hemmorage or bleed to death. He said she was having a sudden attack of
Endo and Adeno. Neither of the two, according to him, are resolved with
a hysterectomy, and both are very painful. Another thing, almost ALL
OB/Gyn's dealing with women who have Endo or Adeno want their patients
to see a Gastroenterologist to be examined for Gastro problems of IBS,
Chron's Disease, Ulcerative Colitis, or Diverticulitis. I wish I knew
the answer to why that is, but it's a common thing that OB/Gyn's seem to
do. Almost all women on this forum have been told that their Endo pain
or symptoms are not just "all Endo" but more or less related to the
bowels and digestive system. And almost all women have went through
colonoscopies, endoscopies, and CT's to be told they are clean and clear
of any bowel problems. That's not to say you might be one of the few
that may have an IBD problem. Definitely go to a GI so you can rule
that out; but it seems to be standard procedure of OB/Gyn's to want to
go that route.
JoCee
My Endo Support Site
http://health.groups.yahoo.com/group/EndoSisterhood/
At Thu, 29 Jun 2006, Sherry wrote:
>
>I recently had a severe attack on the lower left side of my pelvic area.
>Went to the ER and I was admitted by my gyn. They did CT scans,
>transvaginal ultrasound, blood work and other tests. My gyn finally did
>a laparoscopy suspecting endometriosis. Everything was fine, ovaries
>looked great, no endo or adhesions or scar tissue found anywhere. When
>it was over with and I saw him again in the hospital he mentioned to me
>that he thought I could possibly have adenomyosis which is from what I
>understand endometriosis but inside the uterus, not outside. There is
>no way to tell unless and they will usually as a last resort go in and
>remove the uterus. Everything else was fine but the day of my surgery I
>started my period. I was on pain meds by IV for the first day and a
>half but came home 2 days after my surgery. On that day I had a sudden
>attack of severe pulling pain on the low left side (not the same pain
>that I went into the hospital with) and it went into my groin and down
>my leg. It was so severe that I thought we would be headed back to the
>ER! I took 800 mg ibuprofen and after a day or so I was better. I never
>had that again until this period. I have been on the pill because they
>suspected possible endo beforehand and a different dr that put me on it
>said it suppresses endo sometimes. I started to really spot bleed,
>enough that I really had to use a pantyliner and it was very dark blood
>(which I remember from before I had my kids but that was how my periods
>always were, a few days of that color blood, very light period and I was
>done) and this lasted 6 days. On the 7th day, in the morning when I
>woke up I was sitting at my computer and got this severe pulling pain
>again all of a sudden which went down into my groin and I felt pain in
>the upper part of my leg (probably radiating pain). I knew something
>was weird and low and behold I started a full on period. I knew the
>pain started as the blood started. And this has lasted for 3 days now.
>It honestly feels like someone is pulling out something from inside of
>me!! I just took a shower and it was all I could do to get through it. I
>could not stand on my left leg for very long, had to keep the weight on
>my right leg. I am on constant 800 mg ibuprofen, I cannot wait every 8
>hrs because the pain starts back up within 5-6 hrs so I push it to 6 or
>possibly 6-1/2 and then I can't take it anymore.
>
>Sorry this is so long but I am wondering if anyone has heard of this or
>has had this same type of pain. I am thinking it is not diverticulitis
>(but not sure) because the pain has now come on for the 2nd time.
>
>Please help if you have any advice or know of anyone who has had this.
>My doctor said that he wanted me to see a gastro doctor but I can't get
>into him until the middle of July and by the time he will most likely
>want to do a colonoscopy to rule out diverticulitis or anything else
>with the intestines then I will be back with my period again with this
>same pain. I have also had a tubal ligation after my second son 10
>years ago and I heard that it is more common to have adenomyosis after a
>tubal ligation. At this point, the pain is so bad that I would have a
>partial hysterectomy, he said he would only remove the uterus because
>everything else was fine but wanted to rule out the gastro stuff first.
>
>I'm really scared and if anyone has any information to pass on, please
>let me know.
>
>Thank you,
>Sherry
>
>--
>Sherry
>JFJ629x@charter.net
>
--
ENDOANGEL JOCEE
Law & Crime
http://redraven.iblogs.com/
Endo Sisterhood Support Group
http://health.groups.yahoo.com/group/EndoSisterhood/
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