Re: need advice
From: Alyson (anonymous@obgyn.net)
Fri Jun 30 07:57:54 2006
Anna,
I am glad you have some answers as to what is happening to you. The
only thing I would suggest is to discuss with your doctor how he plans
to remove the endo. You mentioned "burning it off"...there has been
much discussion here as well as among specialists about how effective
that method of removal is. It often just removes the surface of the
implant leaving the part that has invaded your tissues behind. When
that happens it usually does not take long before the endo can start to
grow back in the same places. Many people feel that the most effective
surgical method is excision. It involves cutting the implant out with
either a laser or scalpel. Not all gynecological surgeons are
experienced with excision surgery. It usually requires finding a doctor
that specializes in endo and that type of surgery. Ask your doctor if
he is experienced with excision surgery. If not you may want to
consider asking him to refer you to a specialist who is, or if he would
bring one in to assist with your surgery (especially since it sounds
like it may be a complicated one). It is just something to think about
to be sure you get the most effective treatment possible.
Here is a link to a web site that provides patient recommended doctor
info. The main list is for the states, but I know there are links for
international sources. You may also want to ask if the ladies here on
the forum know of anyone.
http://www.geocities.com/endovictims/endodocs.html
--
Alyson
At Thu, 29 Jun 2006, anna wrote:
>
>hello and thankyou to every one for your thoughts and prayers.... i
>have been back to the dr today and it seems that the endo has spread to
>varouis parts of the body and causing a lot of bad side affects .... i
>am having surgery at the end of july to try and burn what they can off
>my bowel , colon and pelvic wall, the feelings of everything falling out
>was due to the amount of inflamation that i have from those areas, i
>have been put on a nerve tablet to block some of the nerves to help
>manage pain, have a ct scan next week to help with the op, apparently
>there is some sort of tube that connects your bowel and bladder
>together, the endeo has attacked this and poo is leaking into it and is
>coming out in my wee, so i have also had a urine test today to determine
>how big a leak it is...
>
>i will keep you all up to date on things as soon as i find out.... i
>live in australia so things sometimes are not as advanced as america so
>if anyone hears of anyother treatments avaliable please let me know...
>
>thankyou once again to all of the people have supported me... xx
>At Thu, 29 Jun 2006, Elisa wrote:
>>
>>Dear Anna~
>>
>>I just saw these posts and replies. I wish I could reach out and give
>>you a big hug right now. I can't even imagine everything tumbling down
>>as it is for you and your family right now. We are here for you. I
>>pray news in the morning will bring some results of action for you. I
>>am glad to hear Barbara say something about prolapse. I heard of only
>>one other person in my lifetime that this happened too and it didn't
>>have a name and she still is suffering. I will share that with her as
>>well.
>>
>>I pray for your husband too. I am sure the strength will come even if
>>we don't know how right now. It's hard to absorb all this I am sure.
>>Just know we are thinking of you on this end!
>>
>>Keep us posted.
>>
>>--
>>Elisa
>>
>>At Thu, 29 Jun 2006, Barbara wrote:
>>>
>>>Anna,
>>>
>>>I just saw your posts and want you to know that I am praying for you and
>>>your husband. I have been having a lot of pain today and the same
>>>thought went through my head...that I promised myself not to let endo
>>>get the best of me or keep me from my life..and yet sometimes it feels
>>>like it's just too much. I hope and pray that you find some relief soon
>>>and that your husband is able to beat his cancer as well.
>>>
>>>Barbara
>>>
>>>At Thu, 29 Jun 2006, anna wrote:
>>>>
>>>>At Wed, 28 Jun 2006, Suzie wrote:
>>>>>
>>>>>At Wed, 28 Jun 2006, anna wrote:
>>>>>>
>>>>>>i have end for about 10 yrs have had a hysterectomy march last yr to
>>>>>>remove a lot of the pain, and painful periods, i was in a good place for
>>>>>>about 6 months then the end returned and caused a lot of problems i am
>>>>>>29 and i am sick of this, i find i am straining my marriage as i cannot
>>>>>>have sex very much as it is extremely painful, over the last 2 weeks the
>>>>>>pain to pass urinr is unbearable. i have a drs appt for this fridy,last
>>>>>>night i ended up in emergency dubbled over in pain , all the dr did
>>>>>>there was administer pain killers as he said he was out of his league
>>>>>>and didnt know how else to deal with this.... it looks as if my girl
>>>>>>bits are starting to protrude outwards , he told me its probably to do
>>>>>>with the endo... i was sent home with strong painkillers and wait to
>>>>>>see my gyno on fri.... is there any one out there who can hepl or has
>>>>>>been through this.... thanx a lot anna
>>>>>
>>>>>It could be either a prolapsing uterus or prolapsing vagina. When the
>>>>>abdominal, bladder, vaginal, or uterine muscles are damaged or weakened,
>>>>>such as through surgery, they lose the ability to hold themselves up &
>>>>>in where they belong. They "prolapse",which basically means they begin
>>>>>to fall downwards and possibly stick out. It would look & feel like a
>>>>>bubble of flesh coming out of your vaginal opening. Usually Drs can put
>>>>>everything back in where it belongs, sometimes requiring minimal
>>>>>surgery. Generally, it can cause serious pain and infections, which
>>>>>usually will go away after being repaired. Try to lie down or sit on a
>>>>>donut until your appt. Small kiddie float rings work well as
>>>>>inexpensive donut pillows.
>>>>>Good luck!
>>>>
>>>>thanx for you advice suzie, i am just worried that i cannot continue
>>>>work as the pain has already kept me from working for the last 2 weeks,
>>>>i think im annoyed because i told myself that i was not going to let
>>>>endo destroy my life, at this stage i feel like giving in..... i have 3
>>>>beautiful kids and a husband who has cancer and isnt expected to survive
>>>>, so for the sake of my family i need to be the best i can be ! and
>>>>finding it very difficult.....thanx once again for your help suzie...
>>>
>>>--
>>>Barbara Clowser
>>>
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