Re: Possible Adenomyosis/Severe Pelvic Pain
From: Aimee (anonymous@obgyn.net)
Fri Jun 30 05:54:08 2006
Hi Sherry,
Sorry that you're in so much pain. I suffer from both endo and
adenomyosis. When I have pain and particular when I have a trans
vaginal scan the pain is always at the lower left of my abdomen and
shoots down my thigh. I had endo on my bowels, bladder fallopian tubes
and ovaries. It was very deep on my cervix this resulting in that pain
down my thigh. Please be certain that it isn't endo do not write it
totally off as your symptoms sound very similar to mine. The deep
cervix endo wasn't found until my 2nd lap. Adenomyosis doesn't have the
same side effects as endo ie infetility but it is painful especially
during sex. I had a coil fitted to aid to try and stop this pain, it
doesn't work for all women and it's still early days for me to say
whether it's worked on me. But with adenomyosis unforunately only a
hysterectomy can totally stop the pain. Also my biggest advice to
detect endo is the laporoscopy and make sure they really look around. I
had blood tests, tv scans and instead of detecting endo they thought I
had a cyst I had a laporotomy only for them to discover they were wrong.
The best way to determine endo is the laporoscopy they need to get in
and have a look at your organs. So if you havent had that done then ask
for it. You know your body better than anyone, so listen to it and if
it isn't right for you then push them until they get to the bottom of
it. Alot of doctors will just look over it and put it down to many
other things first.
Also you can detect adenomyosis without removing the uterus. During my
2nd lap they went into my uterus with a camera and found the adenomyosis
and photographed it for me to see. It is very red and raw and look
slike how it feels bloody awful!!
Shout loudly and make sure they do everything for you that is possible.
take care xx
At Thu, 29 Jun 2006, Sherry wrote:
>
>I recently had a severe attack on the lower left side of my pelvic area.
>Went to the ER and I was admitted by my gyn. They did CT scans,
>transvaginal ultrasound, blood work and other tests. My gyn finally did
>a laparoscopy suspecting endometriosis. Everything was fine, ovaries
>looked great, no endo or adhesions or scar tissue found anywhere. When
>it was over with and I saw him again in the hospital he mentioned to me
>that he thought I could possibly have adenomyosis which is from what I
>understand endometriosis but inside the uterus, not outside. There is
>no way to tell unless and they will usually as a last resort go in and
>remove the uterus. Everything else was fine but the day of my surgery I
>started my period. I was on pain meds by IV for the first day and a
>half but came home 2 days after my surgery. On that day I had a sudden
>attack of severe pulling pain on the low left side (not the same pain
>that I went into the hospital with) and it went into my groin and down
>my leg. It was so severe that I thought we would be headed back to the
>ER! I took 800 mg ibuprofen and after a day or so I was better. I never
>had that again until this period. I have been on the pill because they
>suspected possible endo beforehand and a different dr that put me on it
>said it suppresses endo sometimes. I started to really spot bleed,
>enough that I really had to use a pantyliner and it was very dark blood
>(which I remember from before I had my kids but that was how my periods
>always were, a few days of that color blood, very light period and I was
>done) and this lasted 6 days. On the 7th day, in the morning when I
>woke up I was sitting at my computer and got this severe pulling pain
>again all of a sudden which went down into my groin and I felt pain in
>the upper part of my leg (probably radiating pain). I knew something
>was weird and low and behold I started a full on period. I knew the
>pain started as the blood started. And this has lasted for 3 days now.
>It honestly feels like someone is pulling out something from inside of
>me!! I just took a shower and it was all I could do to get through it. I
>could not stand on my left leg for very long, had to keep the weight on
>my right leg. I am on constant 800 mg ibuprofen, I cannot wait every 8
>hrs because the pain starts back up within 5-6 hrs so I push it to 6 or
>possibly 6-1/2 and then I can't take it anymore.
>
>Sorry this is so long but I am wondering if anyone has heard of this or
>has had this same type of pain. I am thinking it is not diverticulitis
>(but not sure) because the pain has now come on for the 2nd time.
>
>Please help if you have any advice or know of anyone who has had this.
>My doctor said that he wanted me to see a gastro doctor but I can't get
>into him until the middle of July and by the time he will most likely
>want to do a colonoscopy to rule out diverticulitis or anything else
>with the intestines then I will be back with my period again with this
>same pain. I have also had a tubal ligation after my second son 10
>years ago and I heard that it is more common to have adenomyosis after a
>tubal ligation. At this point, the pain is so bad that I would have a
>partial hysterectomy, he said he would only remove the uterus because
>everything else was fine but wanted to rule out the gastro stuff first.
>
>I'm really scared and if anyone has any information to pass on, please
>let me know.
>
>Thank you,
>Sherry
>
>--
>Sherry
>JFJ629x@charter.net
>
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