Re: Too tired
From: Elisa (anonymous@obgyn.net)
Thu Jun 29 15:39:28 2006
Jenny:
Thanks for this info. I get emails from sister suffers who don't know
where to turn on a fixed or low income. This was very enlightening.
Anon :) Thanks for sharing your pacing story. I am sorry you are
suffering like this too. It's nice to know that at the oddest hours so
many of us are up and wondering what to do until the next dose of
medicine.
I like this site because anytime of day you can sit down and type your
pain to a place where others can truly understand. Hang in there as
good as you can. Write away...I bet you will find someone who is up too
with you :) Hugs..from Illinois..
--
Elisa
At Thu, 29 Jun 2006, Jenny wrote:
>
>Anon ~ Hang in there!! My heart goes out to you. If you open my diary
>from a few months ago you will see that I wrote, "It's 3AM and I'm
>crying, I'm tired, and hopeless. The pain woke me up again and I am
>tired of living in this messed up body. Is this going to be my life
>forever?!"
>
>Had two surgeries in the last year that did not totally get rid of the
>pain. I felt pretty scared that nothing would make me feel better. I
>could see my friends wondering internally if I was just crazy.
>
>If you need surgery, check into this: people donate to hospitals to help
>people like us. I received a grant for $2,500 to apply for my first
>surgery when I wasn't insured.
>
>Anon, I was taking Vicodin 3x a day, everyday of the month to help with
>the pain. I now take Advil when I menstrate or ovulate. What is
>helping me? I know I sound like a broken record on this forum, but
>acupuncture is what has helped me. My acupuncturist also does
>chiropractic work on me. I've been at it for almost a couple of months.
>Expensive?-no, it is $32 a session, and I save by not buying pain meds.
>
>You're not being punished. You are going to be ok. Oh, and also what
>helps me - counseling!!! I go to someplace that bases your fee on your
>income. (Mine is only $18!) Please try counseling if you can afford it.
>Going has made me feel clearer about my life and it has made me feel in
>control of the things I can control. Our friends/family are great to
>talk to, but endo can be overwhelming to them. The therapist is focused
>on helping you make your life better. Sending a prayer to you through
>our computers...
>
>~Jenny
>
>At Thu, 29 Jun 2006, anonymous@obgyn.net wrote:
>>
>>Dear anonymous:
>>
>>You are not alone. I hope that by the time you read this your pain will
>>have subsided. I'm glad you have your fur babies to keep you company. I
>>know that they can make a world of difference when we are in so much
>>pain that we'd rather just have someone knock us on the head so we can
>>escape from the pain for even just a little while.
>>
>>If you find peace is prayer, keep praying. Try applying to your
>>hospital for better care. Sometimes (or so I've heard) they will help
>>people who don't have the finances. Do you have a teaching hospital
>>near by? If you post your location other women here might be able to
>>point you in the right direction for better care.
>>
>>Always come here for support no matter when you need it. The women here
>>are phenomenol and we all know of the pain you are speaking about. We
>>have all been there and we all hope for you to have a better, pain free
>>day tomorrow.
>>
>>My thoughts are with you.
>>
>>Alexis.
>>
>>At Thu, 29 Jun 2006, anonymous wrote:
>>>
>>>I am awake at 3am. The pain is so severe that I am pacing the floors. I
>>>am crying quietly so that I do not wake my husband or the kids. My cats
>>>pace with me, my only company. I am too tired of the pain, too tired of
>>>the drugged feeling, too tired to go on. I cannot seek medical care
>>>that I cannot afford. The pain-killers do not help, the diet makes me
>>>ill. I pray, but the answers are not forthcoming. Am I being punished?
>>>Am I meant to be in this living hell of constant misery? I hurt so bad,
>>>I cannot take much more. The pain keeps getting worse. Now I must pace
>>>some more, and hope to exhaust myself.
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