ENDO Messages for June, 2006: Re: ...at my witts end and don't know what to do

Re: ...at my witts end and don't know what to do

From: anonymous@obgyn.net
Thu Jun 22 09:12:49 2006

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At Thu, 22 Jun 2006, Alexis wrote: >
>So I'm awake and in pain, again. My meds don't work, except for the
>really strong ones, but they knock me off my ass and make me sick to my
>stomach. I hate taking them. When I do I can't function as a normal
>person. Hell, I can't drive when I take them! Sorry for the cursing,
>it's just one of those days.
>
>I'm at the point where my pain is affecting my ability to do my job. I
>come home exhausted and nap every day after work for a minimum of 2
>hours. I'm in pain all day and managing an office is difficult when
>you're in pain. I've posted earlier this week that I can't even wear
>normal clothing because it hurts too much. I'm at the point where I
>don't know what to do. I can't function normally with this pain. I've
>done Lupron, BCP, surgery. I'm waiting the long process of having OHIP
>approve a surgery in the States (I'm Canadian and they don't seem to
>want to do excision surgeries up here...just the crap laser and
>cauterization that doesn't really cut out the endo, just the surface). I
>force myself to the gym twice a week where a personal trainer puts up me
>with me for one hour and helps me do whatever exercises my body can
>handle on that particular day. I've broken down on her because I hate
>the fact that I can't do what normal people can do. I hate the fact
>that my body won't let me take care of it. I hate the fact that I'm 26
>years old but have to do exercises designed for senior citizens. It
>brings me to tears.
>
>I hate the fact that I have to justify my pain! Why won't people
>understand what this disease does to us? WHY can't I get some credit for
>doing what I do with the pain that I have to live with? Why can't I get
>any help in this country? Why do I feel like doctors just pass me along
>to the next specialist without trying to help me themselves (gyne -> GI
>-> gyne -> GI)?
>
>What do you think I should do ladies? I can't quit my job but my
>benefits do include disability, short and long term? I don't want to be
>THAT person who can't work. I'm just so sick of this. I just don't
>know what to do any more.

If you can come to the states ther eis an amazing doctor here in TN and NY. http://www.gyndr.com/ he accepts insurance in the tn office he won the award for the best doc in the world--good luck

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