ENDO Messages for June, 2006: Re: An EA Debate

Re: An EA Debate

From: Sasha (anonymous@obgyn.net)
Sun Jun 18 11:11:22 2006

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I am sure that I am one of the people that you are referring to in this message...funny thing is that I totally agree with you! :)

Please allow me to introduce myself ~ Several years ago, I was a regular participant in several online forums, including this one (under a different email address). In fact, I was a co-moderator for the AOL message board for three years back in the late 90's. I enjoyed reading what other women were experiencing, especially if it related to my personal situation. It is also a good feeling to be able to share something with a fellow "endo sister" that will make her feel understood, supported, or even to find some relief.

Through online forums like this one, I met many women that encouraged me to join the Endometriosis Association. From there, I became a support leader and then a member of the Board of Directors. As I'm sure you can understand, the time I used to spend online is now spent on those endeavors. In addition, I was fortunate enough to have a daughter and she now commands a lot of my time - which I give willingly because I take her to be a complete blessing. Although I still browse the posts, I do not have the time to respond to people like I once did.

Additionally, now that I have taken on these two leadership roles with the EA, I have to be careful what I post online. People assume that I am speaking for the organization and that is NOT the case. I am one of those people that "shoots from the hip" and can only support what I feel to be true. However, if I post something about my *personal* experience with Lupron, for example, some people get angry with me because they feel that the *EA is endorsing Lupron.* I ASSURE YOU THAT IS NOT THE CASE! However, I hope you can respect that I have to be more careful now about what I share about my personal experiences.

I hope you don't feel that you should vote the way that I would, simply because I posted a message here. What I DO hope is that women will read the information, check out the links that share the more detailed information, and make whatever choice they feel comfortable with in this situation.

You should know that I was asked to post my thoughts on this board by a few women that were concerned that FACTS were not being presented. As a person who is very involved in the current "debate" they felt that I would be a good person to post regarding the true reasons for the current election / issues.

I hope you don't hold that against me personally. :) This is an EXCELLENT forum for women to share their ideas, opinions, and support and I applaud all of those people that have make it a successful haven for women with endometriosis.

The best case scenario is that more women will get involved OVERALL! More women will participate in the EA's election, other organizations, and online forums because they will realize how precious these resources are to them.

This is my hope.

~ Sasha

At Sat, 17 Jun 2006, anonymous wrote: >
>As a member I feel like I deserve the chance to submit a little feedback
>here on all of this EA stuff I see popping up everywhere. I've been a
>member of this site for a long time, and I've spent a lot of time here
>over the past 5 months, especially since things with my health have gone
>completely upside down.
>
>Why is it I am seeing names on this forum that weren't ever there any
>other time? The name I most remember seeing on this board has been that
>of Lea Harth. I haven't seen any other EA official on this board
>posting anything to our members, unless it was a very brief post which
>happened one time per month, or every 4 months, or every year, as far as
>that goes. Votes go to people who we know will do something for the
>good, and the better, of all members involved with this forum. I think
>most of us would hardly vote for, or take the advice of anyone that
>doesn't attend and participate in this online forum. The support of
>your voters starts with the support of your members. If I don't see you
>here, I don't know you.
>
>And newsletters... I've yet to get the first newsletter from this
>website. I signed up for every informative and educational piece of
>material that I could retrieve from this website, and have yet to
>receive anything other than a mass mailing of the forum posts for a 24
>hour period. I've never received anything from this website by regular
>mail, either.
>
>So the best way to gain supporters, is by being a supporter. And if I
>get a phone call from anyone asking me to tack on my vote in support for
>someone I don't know, you can surely bet I'll hang up the phone.

Next message: Sasha: "Re: ~EA Elections - Act by June 29, 2006~"
Previous message: Silvia: "Novasure and lap the same thing?"
In reply to: anonymous: "An EA Debate"
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