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Re: CINDY - PAIN UNDER RIGHT RIB

From: Claire (anonymous@obgyn.net)
Sat Jun 17 01:07:01 2006


Hi, newbie here...

I get this also! I have managed to pinpoint it down to the days leading up to ovulation when I have a surge in oestrogen. My acupuncturist however thinks it has to do with a weakness of my liver?

--
Claire

At Sat, 17 Jun 2006, char wrote: > >Wow! Interesting connection. I also have endometriosis and during my >pregnancy I had horrible right rib pain. Got the gallbladder checked >and everything. Docs couldn't figure out what was wrong. It was also >tender and would hurt if I even touched the skin. Does anyone else have >this problem? >Thanks char >At Wed, 15 Dec 2004, Emily wrote: >> >>I believe that the pain is from endo. I have the same pain under my >>right rib and have also had my gallbladder checked etc. The Dr. does >>not know what exactly is causing this but does believe that it has to do >>with endo. If your Dr. thinks that the pain is in your head or that >>you need to see a therapist or something then I would consider looking >>for a new Dr. because he obviously has no idea of the pain that can be >>involved with endo!!! >>~emily >> >>Tue, 23 Nov 2004, Penny wrote: >>> >>>Dear Cindy, Ruthie and Jennifer: I am so glad I found your chat page. I >>>have been trying to figure out what is wrong with me for months. May >>>2004 I started having pain under my right rib. Dr. sent me to the >>>emergency room, thinking it was gallstones. I had a catscan and >>>ultrasound. I have a kidney stone, but they don't believe that is >>>causing the pain. They simply can't figure it out. The pain comes and >>>goes but intermittently gets really bad. I also have endometriosis. >>>NEVER would have linked the two together. Another thing that is strange >>>is that 2 years ago I started having migraine headaches and dizziness. I >>>had never had a migraine in my life. I had MRIs and all kinds of >>>testing and they could never find any thing wrong. Maybe it is all >>>hormonal. I am 38 years old. Was never able to conceive due to the >>>location of the endometriosis and lack of ovulation. If you have any >>>advice on how I should proceed please let me know. Right now I am >>>taking Motrin and Hydrocodone for pain. They keep telling me they >>>believe it is inflammation in the muscle under my rib (I'm not buying >>>it)and to be patient. One doctor even wanted me to take a pain >>>management class. I think they believe I am nuts! I now have two >>>illnesses they can't cure! Penny >>> >>>At Mon, 3 Sep 2001, Jennifer wrote: >>>> >>>>Dear Cindy and Ruthie- I have the same pain under my right rib- had all the >>>>same tests- exactly the same tests! I can't believe there are others with >>>>the same problem??!! But I am so excited (kinda sick huh) somebody else had >>>>or has what I had. My pain is now intermittant- never shows up on any >>>>diagnostic tests. Dr Redwine thought I might have had endo on my diaghram- >>>>he did a chart review for me. I had a Hyst on Oct 18, 2000. The pain came >>>>back about one month after surgery and the Dr said it was all in my head! >>>>Yippeee, it's not in my head. There are others, sorry about your pain >>>>though, but it is nice to know that I am not the only one. I think it is >>>>definately endo. Hope you feel better, I have never found anything to help >>>>that pain either. I'm with you on this, if I hear or find anything to help I >>>>will write ou back. >>>>Wow- validation Thank you both for being here >>>>Jenn >>>>

>>>>>>>>>----- Original Message ----- >>>>From: "Ruthie" <anonymous@obgyn.net> >>>>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net> >>>>Sent: Monday, September 03, 2001 3:21 PM >>>>Subject: Re: CINDY - PAIN UNDER RIGHT RIB >>>> >>>>> Dear Cindy, >>>>> >>>>> I was scanning through all the messages posted on this chat site, and >>>>> when I saw your message about pain under the right rib I was surprised >>>>> because that is exactly what I have been having too! I also have a >>>>> diagnosis of Endometriosis, my mother and sisters have it too. I am 44 >>>>> now and after enduring the most wretched periods since I was 11 years >>>>> old, I had a laparoscopic assisted vaginal hysterectomy. This was just >>>>> two weeks ago. My doctor left the ovaries intact because he found no >>>>> endo lesions on them and because he felt that 99% of my pain was coming >>>>> from the endo invaded uterus. When endometriosis invades into the >>>>> muscular walls of the uterus, it is called "Adenomyosis" and it causes >>>>> you to have the most excruciating cramps and your periods are heavy and >>>>> liver like tissue and sometimes red sand like grains of blood and tissue >>>>> come out too. It's really gross and totally interferes with your life! >>>>> Up to a week or more out of every month is a waste unless you take some >>>>> very powerful painkillers. My pain and the horrible backache would be >>>>> so severe that I would be rocking in the fetal position before I >>>>> discovered the prescription painkiller called Ultram. This stuff worked >>>>> better than anything I had ever taken before to control the pain. >>>>> Getting back to the right rib pain, I first had that happen suddenly on >>>>> the first day of my period March 31rst of this year. It came on and >>>>> felt like a knife was lodged directly under my bottom right rib, and it >>>>> was severe and burning. So bad that I couldn't take any deep breaths or >>>>> barely move. The only position I could try to sleep in was flat on my >>>>> back. I even took Ultram and that dampened it a bit, tried heating >>>>> pads, massage made it worse. I went into my regular doctor and she >>>>> thought it was a gallbladder stone or inflammation at first, so I went >>>>> in to the hospital for a barium swallow and CAT scan. They didn't find >>>>> anything, regular x-rays don't show gall stones if they don't have >>>>> calcium in them. The majority of gallstones are made out of >>>>> cholesterol. My pain subsided gradually after about 6 days of agony. I >>>>> was walking around hunched over like I was 90 years old! After the >>>>> ultrasound and CAT SCAN revealed nothing, I just was glad that the pain >>>>> finally went away. They didn't know what was causing this. Then my >>>>> doctor said to me that she saw a case just like mine once before in med >>>>> school, the lady had also had a history of endometriosis! She was >>>>> suspicious that it had to do with this. She said for me to keep track >>>>> of when this pain happened, and to see if it coincided with my periods! >>>>> Remember the first attack came exactly on my period. Well, I had the >>>>> hysterectomy which was an easy, fast and not painful operation which >>>>> only took 1 hour for my OBGYN to do. He knew about my right side pain >>>>> and he said that he was going to look for lesions in that area. After >>>>> the surgery he said that he couldn't find anything there and that it >>>>> might have just been what's called "Referred pain" from the uterus. We >>>>> both thought that it was going to be over after the uterus was removed. >>>>> I was enjoying feeling better than ever for two weeks, and then suddenly >>>>> two days ago, WHAMMMO! It happened again!!!! I was in shock, and then I >>>>> looked on my calendar and counted the days since my last and final >>>>> period. Exactly to the day, my period was to have started! So if this >>>>> sounds like something that you are having as well, it has got to be >>>>> linked to our hormones. You didn't have a hysterectomy yet, correct? So >>>>> if you are still producing hormones and you see a consistent pattern >>>>> like this it could very well be a hidden endo lesion tucked under the >>>>> liver or near the gall bladder or embedded into the wall of the >>>>> diaphragm. Each month when the level of hormone (I can't remember which >>>>> one is highest at this time, I think it's estrogen) kicks in on day one >>>>> of the period, this hidden blob of endo gets activated and produces pain >>>>> by making prostaglandins or whatever mechanism the pain from endo is >>>>> caused. I'm curios to see what you think, whether you have this pattern >>>>> and post to others to see what we can dig up! You can email me anytime! >>>>> >>>>> Good luck! >>>>> >>>>> -- >>>>> Ruthie >>>>> >>-- >>Emily >>




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