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Re: CINDY - PAIN UNDER RIGHT RIB
From: char (anonymous@obgyn.net)
Sat Jun 17 00:24:11 2006
Wow! Interesting connection. I also have endometriosis and during my
pregnancy I had horrible right rib pain. Got the gallbladder checked
and everything. Docs couldn't figure out what was wrong. It was also
tender and would hurt if I even touched the skin. Does anyone else have
this problem?
Thanks char
At Wed, 15 Dec 2004, Emily wrote:
>
>I believe that the pain is from endo. I have the same pain under my
>right rib and have also had my gallbladder checked etc. The Dr. does
>not know what exactly is causing this but does believe that it has to do
>with endo. If your Dr. thinks that the pain is in your head or that
>you need to see a therapist or something then I would consider looking
>for a new Dr. because he obviously has no idea of the pain that can be
>involved with endo!!!
>~emily
>
>Tue, 23 Nov 2004, Penny wrote:
>>
>>Dear Cindy, Ruthie and Jennifer: I am so glad I found your chat page. I
>>have been trying to figure out what is wrong with me for months. May
>>2004 I started having pain under my right rib. Dr. sent me to the
>>emergency room, thinking it was gallstones. I had a catscan and
>>ultrasound. I have a kidney stone, but they don't believe that is
>>causing the pain. They simply can't figure it out. The pain comes and
>>goes but intermittently gets really bad. I also have endometriosis.
>>NEVER would have linked the two together. Another thing that is strange
>>is that 2 years ago I started having migraine headaches and dizziness. I
>>had never had a migraine in my life. I had MRIs and all kinds of
>>testing and they could never find any thing wrong. Maybe it is all
>>hormonal. I am 38 years old. Was never able to conceive due to the
>>location of the endometriosis and lack of ovulation. If you have any
>>advice on how I should proceed please let me know. Right now I am
>>taking Motrin and Hydrocodone for pain. They keep telling me they
>>believe it is inflammation in the muscle under my rib (I'm not buying
>>it)and to be patient. One doctor even wanted me to take a pain
>>management class. I think they believe I am nuts! I now have two
>>illnesses they can't cure! Penny
>>
>>At Mon, 3 Sep 2001, Jennifer wrote:
>>>
>>>Dear Cindy and Ruthie- I have the same pain under my right rib- had all the
>>>same tests- exactly the same tests! I can't believe there are others with
>>>the same problem??!! But I am so excited (kinda sick huh) somebody else had
>>>or has what I had. My pain is now intermittant- never shows up on any
>>>diagnostic tests. Dr Redwine thought I might have had endo on my diaghram-
>>>he did a chart review for me. I had a Hyst on Oct 18, 2000. The pain came
>>>back about one month after surgery and the Dr said it was all in my head!
>>>Yippeee, it's not in my head. There are others, sorry about your pain
>>>though, but it is nice to know that I am not the only one. I think it is
>>>definately endo. Hope you feel better, I have never found anything to help
>>>that pain either. I'm with you on this, if I hear or find anything to help I
>>>will write ou back.
>>>Wow- validation Thank you both for being here
>>>Jenn
>>>
>>>>>>>----- Original Message -----
>>>From: "Ruthie" <anonymous@obgyn.net>
>>>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>>>Sent: Monday, September 03, 2001 3:21 PM
>>>Subject: Re: CINDY - PAIN UNDER RIGHT RIB
>>>
>>>> Dear Cindy,
>>>>
>>>> I was scanning through all the messages posted on this chat site, and
>>>> when I saw your message about pain under the right rib I was surprised
>>>> because that is exactly what I have been having too! I also have a
>>>> diagnosis of Endometriosis, my mother and sisters have it too. I am 44
>>>> now and after enduring the most wretched periods since I was 11 years
>>>> old, I had a laparoscopic assisted vaginal hysterectomy. This was just
>>>> two weeks ago. My doctor left the ovaries intact because he found no
>>>> endo lesions on them and because he felt that 99% of my pain was coming
>>>> from the endo invaded uterus. When endometriosis invades into the
>>>> muscular walls of the uterus, it is called "Adenomyosis" and it causes
>>>> you to have the most excruciating cramps and your periods are heavy and
>>>> liver like tissue and sometimes red sand like grains of blood and tissue
>>>> come out too. It's really gross and totally interferes with your life!
>>>> Up to a week or more out of every month is a waste unless you take some
>>>> very powerful painkillers. My pain and the horrible backache would be
>>>> so severe that I would be rocking in the fetal position before I
>>>> discovered the prescription painkiller called Ultram. This stuff worked
>>>> better than anything I had ever taken before to control the pain.
>>>> Getting back to the right rib pain, I first had that happen suddenly on
>>>> the first day of my period March 31rst of this year. It came on and
>>>> felt like a knife was lodged directly under my bottom right rib, and it
>>>> was severe and burning. So bad that I couldn't take any deep breaths or
>>>> barely move. The only position I could try to sleep in was flat on my
>>>> back. I even took Ultram and that dampened it a bit, tried heating
>>>> pads, massage made it worse. I went into my regular doctor and she
>>>> thought it was a gallbladder stone or inflammation at first, so I went
>>>> in to the hospital for a barium swallow and CAT scan. They didn't find
>>>> anything, regular x-rays don't show gall stones if they don't have
>>>> calcium in them. The majority of gallstones are made out of
>>>> cholesterol. My pain subsided gradually after about 6 days of agony. I
>>>> was walking around hunched over like I was 90 years old! After the
>>>> ultrasound and CAT SCAN revealed nothing, I just was glad that the pain
>>>> finally went away. They didn't know what was causing this. Then my
>>>> doctor said to me that she saw a case just like mine once before in med
>>>> school, the lady had also had a history of endometriosis! She was
>>>> suspicious that it had to do with this. She said for me to keep track
>>>> of when this pain happened, and to see if it coincided with my periods!
>>>> Remember the first attack came exactly on my period. Well, I had the
>>>> hysterectomy which was an easy, fast and not painful operation which
>>>> only took 1 hour for my OBGYN to do. He knew about my right side pain
>>>> and he said that he was going to look for lesions in that area. After
>>>> the surgery he said that he couldn't find anything there and that it
>>>> might have just been what's called "Referred pain" from the uterus. We
>>>> both thought that it was going to be over after the uterus was removed.
>>>> I was enjoying feeling better than ever for two weeks, and then suddenly
>>>> two days ago, WHAMMMO! It happened again!!!! I was in shock, and then I
>>>> looked on my calendar and counted the days since my last and final
>>>> period. Exactly to the day, my period was to have started! So if this
>>>> sounds like something that you are having as well, it has got to be
>>>> linked to our hormones. You didn't have a hysterectomy yet, correct? So
>>>> if you are still producing hormones and you see a consistent pattern
>>>> like this it could very well be a hidden endo lesion tucked under the
>>>> liver or near the gall bladder or embedded into the wall of the
>>>> diaphragm. Each month when the level of hormone (I can't remember which
>>>> one is highest at this time, I think it's estrogen) kicks in on day one
>>>> of the period, this hidden blob of endo gets activated and produces pain
>>>> by making prostaglandins or whatever mechanism the pain from endo is
>>>> caused. I'm curios to see what you think, whether you have this pattern
>>>> and post to others to see what we can dig up! You can email me anytime!
>>>>
>>>> Good luck!
>>>>
>>>> --
>>>> Ruthie
>>>>
>--
>Emily
>
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