ENDO Messages for June, 2006: Re: any theories on endo? TO: JULIE

Re: any theories on endo? TO: JULIE

From: PAMELA (anonymous@obgyn.net)
Sat Jun 3 01:13:23 2006

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Julie,

I have not been on this forum very long. I have read some of the posts & I think some of the other women on here have also asked about awareness of Endo. But, I honestly do not see it. I talk to many people who know nothing about Endo. I for one would really like to do what I can to try to promote & do something, but with working & trying to make money (my spouse & I are having hard times right now) along with all my fatigue & other symtoms I just do not have the energy. This is the first time I have been in the forum in almost a month due to my medical problems. But, I hope that you & maybe whoever else can or whoever else has the time can do something about Endo awareness. Something needs to be done. For instance how is it that ADD can be considered something that an employer cannot fire you for but they can fire you for Endo. The reason why I say this was because at one time I thought I had ADD & I actually have most of the symtoms of ADD just because the problems associated with Endo gave me practically all the symtoms you would experience with ADD. Its really funny. That's just an example. If you do intend to pursue this keep us updated.

Thanks, Pamela

At Fri, 26 May 2006, anonymous@obgyn.net wrote: >
>My question for women out there is do you have any theories on where
>endo came from or why more is not being done about it?
>
>I have had Endo for over 20 years. It seems to run in my family. But I
>constantly ask myself if it isnt something in our enviroment that causes
>endo.
>
>Also why is there not a cure for this? Why is Endometriosis not
>recognized and well known as a disease? Why arent there fund raisers for
>endo like cancer or diabetis? Because its not life threatning? It is!
>How many of you women out there have either:
>1. Lost your job due to too many sick days or felt pressure from a boss
>for taking too many sick days?
>2. Had a big fight with your spouse because of elevated hormones from
>endo or the "treatments" that have emotional roller coasters as a side
>affect?
>3. How many women cant get out of bed sometimes and feel envious of
>other healthy people who are out there doing life things that you want
>to be doing/
>4. How many women cant have children due to endo or have to go to
>alternative methods to have children.
>5. How many times have you sat and prayed for menopause or for the pain
>killers to kick in so you can sleep and escape your reality?
>
>To me these are life threatning side affects of endo. My quality of
>life is greatly affected by this disease and I am one of the lucky ones.
>I only have endo pain for 3 days before my period and during. But those
>days are hard to take and I find it hard to do anything else. I have
>tried all the treatments. I mean all of them. They are temporary fixes
>and sometimes just educated guesses for a bigger issue that no one knows
>the answer to. Why?
>
>Please send me your theories. I would love to hear them.

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