ENDO Messages for May, 2006: Re: Endo questions and concerns

Re: Endo questions and concerns

From: Alyson (anonymous@obgyn.net)
Wed May 31 19:01:16 2006

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In reply to: Kim: "Endo questions and concerns"

Kim,

Check out this web-site:

http://www.morehead.org/wellconnected/000074.htm

I think it is very accurate on explaining terminology of endo, possible treatment options, etc. I believe it also shows a diagram (and explanation) of the endo stages. I don't know if you could necessarily see stage IV endo on an ultra sound. Keep in mind that the amount of endo you have does not necessarily correlate to the amount of endo you have. You could have a very small amount and be in extreme pain or vice versa.

As for the pain relief...I personally have not had alot of luck with that. Everyone is different though. It is important to get a diagnosis if nothing else. And it is my personal belief that removing the endometriosis is beneficial even if you don't end up experiencing significant pain relief. The best thing you can hope for is to remove the endo and work with your doctor to find something that works for you to manage the endo (i.e. suppress the growth) following surgery.

Good luck and keep asking questions! Alyson

At Wed, 31 May 2006, Kim wrote: >
>Hi,
>
>I joined this forum a couple weeks ago, and since then i've found a lot
>of helpful information from those of you on here. but this forum has
>also opened some new questions for me. i'm 23 years old, and i was
>diagnosed with endometriosis about 9 months ago. i'd been avoiding
>surgery because it's something i hoped i'd never have to do, but the
>pain is so bad and all encompassing at this point that i've finally
>scheduled my surgery for july. at first i was really scared, then i
>started to come to terms with it, but now i'm really scared again after
>reading about some of the really unfortunate things that have happened
>to people.
>
>My questions are, what is stage 4 endometriosis, and how do you know you
>have it? could someone have endometriosis for years and only "feel" it
>when it gets really bad? if my organs were somehow fused together from
>endo, would it have shown up on my ultrasound? also, has anyone
>experience significant and longterm pain relief from surgery and/or
>treatment? my mother had endo in her late 30s, and only had surgery once
>before going into menopause (around 39 i believe. i hope i'm as
>lucky/luckier). she didn't seem to suffer much at all from endo before
>or after her surgery though, but mine is very painful and affects my
>entire body. she had kids at my age though, and had 3 total so i'm
>thinking this was delaying her pain. i don't plan on ever having
>children, so is endo pain something i should resign myself to living
>with forever?
>
>Any helpful info/advice would be appreciated.
>
>Thanks.
>
>--
>Kim
>

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