 |
 |
 |
|
|
|||
|
|
||||
|
||||
|
|
Re: chest pain...revisited-Help!!~~~LorettaFrom: anonymous@obgyn.net,Tue May 30 18:04:50 2006
At Tue, 30 May 2006, Alyson wrote: > >Loretta, >I know the ho hum attitude you refer to all too well. I am really >starting to feel like the docs just think I am a hypochondriac. Which >is exactly why I am glad to hear that I am not alone in this weirdness. >I hope your tests bring you some answers. I am heading in for a cardio >stress test first thing in the morning. I think the cardiologist is >just trying to appease me. He doesn't think there is anything wrong. >Its not as though I want to have a heart problem! I just find it hard >that anyone would have significant pain like this without a CAUSE!! >Ugg.. >Lets keep each other posted...e-mail me anytime you'd like. >Alyson > >At Tue, 30 May 2006, anonymous@obgyn.net, wrote: >> >>At Tue, 30 May 2006, Alyson wrote: >>> >>>Loretta, >>>Thank you so much for sharing that with me. It seems that your pain is >>>much more severe than mine, but I am glad to know that I am not the only >>>one with this "mystery" chest pain. It is really maddening to not get >>>any answers. I get so frustrated with my PCP for just writing me >>>prescription after prescription hoping that one of the drugs will fix >>>the problem....mind you without actually diagnosing the problem and the >>>prescribing the appropriate treatment. What has happened to doctors >>>these days? >>> >>>I had a thought...has anyone done an ultra sound of your gall bladder?? >>>My mother had chest pain as severe as what you are describing and it >>>turned out to be an enlarged gall bladder. When my chest pain first >>>started I actually thought that was what it was going to be. (no luck >>>there) I did some research about gallbladder disease that indicated it >>>can be found in women who essentially experience blood stasis in the >>>pelvic area. >>> >>>Keep me posted and I'll let you know if I come up with any answers. Feel >>>free to e-mail me if you'd like. >>> >>>-- >>>Alyson >>> >>>At Fri, 26 May 2006, anonymous@obgyn.net, wrote: >>>> >>>>At Thu, 25 May 2006, Alyson wrote: >>>>> >>>>>Hi Ladies, >>>>>I know we've talked about this some before.... >>>>>Does anyone have any suggestions regarding chest pain? >>>>>I have had chronic stabbing pain in my left chest, always the same spot, >>>>>with no rhyme or reason. It doesn't matter what I eat/don't eat, if I'm >>>>>excercising, lying down.... >>>>>My doc tried Nexium et al., anti inflamatories, sent me to the >>>>>cardiologist, and GI guy. All tests come out fine and they look at me >>>>>like they have no idea what to do with me. The cardiologist says I must >>>>>be one of those people that has an achy chest, like some people have >>>>>achy knees. I'm not totally satisfied with that explanation!! ;-) >>>>>Is this just one of those mystery endo pains that no one can explain? >>>>>Any opinions would be welcome! >>>>>Thanks, >>>>>Alyson >>>> >>>>-- >>>>Dearest Allyson >>>> >>>>I am having basically the same problem, thus is why I have not posted here as much >>>> as I normally do, and have been away for awhile. >>>> About a year ago I began to get stabbing pains in my chest, it started to >>>> really worry me as I didn't have a cold, or feel congested at all. I went to >>>>my Dr and had him give me an Xray. It found nothing. Thinking it may be bronchitis, >>>> as I seem to get it a fair amount during my life, I was surprised that didn't show >>>> to be the major culprit. >>>>He gave me some antibiotics, but didn't think that was the problem anyway. >>>> Months went by and it didn't get any better, in fact, it got progressively worse. >>>> At Christmas time it was really bad. I would wake in the morning and it would >>>>be so sore I thought for sure I had some major infection that was not being >>>>caught or helped. >>>> I again went to the Dr and he re ran the Xrays, still nothing showed. >>>> He started to get annoyed, I could tell, but I started going back every week >>>> with this complaint as I was scared. Nothing ever showed up on his tests so he >>>> told me it was part of my fibromyalgia! When a Dr can't explain something >>>>anymore and is tired of testing and knows I have a definite diagnosis from the >>>> specialist of fibro, he pins it to that and stops looking. Makes me SO mad. >>>>This spring we moved to a new town and a new Dr, right away I told him of the pain. >>>>He sent me for xrays and blood tests, again nothing showed up. We started talking of >>>>my endo and fibro, I asked if there was a possibility with my severe endo, >>>> or my extensive adhesions, if it may have something to do with it. >>>> He said no , he didn't think so, that was VERY rare. He would not proceed down >>>> that path of investigation. About 6 weeks ago I awoke in the middle of the >>>> night in more sever pain than I have EVER been in in my life! I felt I could >>>>not breath although I was not congested. I had no cough, I could take a deep >>>>breath, but it put me to my knees in pain to do it. It didn't necessarily hurt >>>> more to take a deep breath than any other, but the pain was unbearable! >>>>Honestly, I would take my endo, ovarian cysts, and every bowel and adhesion >>>>pain all at once, than have that pain for an hour! >>>>I went to the Dr again and he sent me again for more Xrays and tests and a shot, >>>> while there he came to the hosp and ran a heart test to see if I was having >>>>heart attack, I said, some heart attack, it has lasted months! >>>>He did the test and my heart was fine but my blood pressure was through the roof, >>>> he said that was from the pain and it did come down as the pain meds started to >>>> take effect. He said I may be having a problem with mucus on my chest wall not >>>> moving due to my meds, apparently my meds can slow the respiratory system and the >>>>mucus can build up on the chest wall and do a lot of damage while making it hard >>>>to breath, it also cannot be seen on Xrays. >>>>So he started me on a ventilator machine of these meds to break up the mucus, >>>>along with physiotherapy on my lungs 4 times a day. I went back every time but >>>> the nurses became sick of taking time out of their small town emergency room >>>>schedule, so they set me up with a machine to take home and taught my hubby and >>>> daughter how to do the physio. >>>> Today, 5 weeks later I am still in severe pain, some days are a little better >>>> than others, but the pain never goes. >>>>He now has me on 4 different meds to inhale 4 times a day from the mask and machine, >>>>and I can only have the physio done before and after school and before bed as >>>>my daughter is in school and my husband works our of town most of the time. >>>> All the meds and all the physio have not made any difference what so ever, but >>>> he still insists I do it. >>>> 1 1/2 weeks ago I was back in the hosp as the pain again was disabling, >>>>it happened again a couple days ago. It just never goes away complete, it >>>>just lessons, somewhat, and all the tests so far have shown nothing more than >>>>chronic bronchitis that he says would never cause this much pain. >>>>He called me day the before yesterday and said he had spoke to his friend who >>>>is one of the best respiratory specialists in western Canada. He says my pain and >>>> the symptoms don't add up, so he wants to see me. The office will call and >>>>give me an appointment but I have not heard from them yet. >>>>It is very scary and very tiring, some days I can't even seem to walk far with >>>> out stopping from the pain. I am so very tired as when I fall asleep the pain >>>>meds wear off and the severe pain wakes me. I am getting about 3 to 4 hours >>>>sleep a night, he gave me something to get more sleep but it still wakes me >>>>from a deep sleep. I do all I can to ignore it or keep busy and my mind on >>>>something else. I am very depressed from the pain and lack of sleep and find >>>>I am highly emotional and am crying a lot. It is really scary having no idea of >>>>what it is I am fighting. I am meditating on healing and praying a lot. I want >>>> it just to turn out to be the fibromyalgia, but neither he or I have ever >>>>heard of that symptom of it before. >>>>If you find out what is causing your pain I would really appreciate you posting >>>> or writing me personally and letting me know so I can tell my Dr. >>>> Well, I am off to hook myself up again and write some emails to others to take >>>>my mind off all of it.All the best and hope for you in finding what it is. >>>> >>>>I am sorry you are in so much pain yourself and if I can help at all just mail >>>>me and we can talk. If I find out any reasons that we may have chest pain, or >>>> if it is endo related I will post or write you right away. >>>>Take care of yourself, rest and be good to you! >>>> Enjoy and Cherish your pain free day's, I am sure they will find the cause for >>>> you and you can find a treatment soon. >>>> >>>> Prayers and healing and pain free day's! >>>> ~~Loretta~~ >>>> >>-- >>Dearest Allyson >> >>Thanks for that info, he didn't do an ultrasound, (strange come to think of it), >>but he had mentioned the gallbladder, but only in passing. >> I wonder if you can tell things are going on with that through blood tests, >> (high w blood cell count or something), as god knows I don't have much blood >> left in my body, is is all in tubes in the lab! But so far, not much is showing up. >>I did however, get some word from the specialist he wants me to see. >>As a formality I am to have a lung function test next Tuesday, >>( we wouldn't want to hurry this too much), (drives me crazy WAITING), >>then he will make an appointment to see me. You can't help but to wonder, if they >>don't know what it is, how can they be so calm in just taking their time in >>seeing me, who knows what it is, and then, what is it doing to me in the meantime? >> This ventilator is not doing much of anything, I have some good, (well better), >> days, but it is still there all the time, some days are very, very bad. >>It doesn't seem to have much in the way of rhyme or reason, but it was awful >> the days before and during my period, but I get my period ALL the time lately, >>so it may be a coincidence. I just pray it all is resolved soon. YOURS TOO! >>I will ask him about the gallbladder, good idea, perhaps the daily >> Citromag (laxative) I have had to take all year is wreaking havoc with it, >>or perhaps it is gallstones, at this point in time I guess it could be just >> about anything! I will be sure to keep you posted as to what they say. >>Please do same, and take good care of yourself, I know what worry this causes. >>Prayers and Healing to you my friend, ~Loretta~ >>
-- Dearest Alyson, HERE HERE!!!! WHO WANTS to have this OR all these inconvenient tests done! I for one must travel 3 hours to the city to have most of them done. I also won't drive in the dark on this treacherous and logging truck filled highway at night, so by the time I get there, go to my appt, it is getting dark. A 3+ hour ride home then is not happening. I have to get a hotel, stay the night, and drive back in the morning. That is a lot of expense for a test, let alone if I have many over a period of weeks! So, OH YES, I really want to do that AND waist everybody's time and energy, AND my money, just because I am having a little discomfort! IF it wasn't this bad, OR I felt I could handle it I certainly wouldn't be going this far. AND let's talk prescription costs of all these darn inhalers and the ventilator they have me on, that may be for nothing, as I sure the heck am not finding a whole lot of relief with all that. AND THEN, lets talk about time! So to get the ho hum attitude drives me CRAZY!
|
|
Return to ![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)
Technical Problems: webmaster@obgyn.net
Last Updated: Thu Oct 2 03:52:11 2008