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Re: chest pain...revisited-Help!!~~~Loretta
From: Alyson (anonymous@obgyn.net)
Tue May 30 13:04:46 2006
Loretta,
I know the ho hum attitude you refer to all too well. I am really
starting to feel like the docs just think I am a hypochondriac. Which
is exactly why I am glad to hear that I am not alone in this weirdness.
I hope your tests bring you some answers. I am heading in for a cardio
stress test first thing in the morning. I think the cardiologist is
just trying to appease me. He doesn't think there is anything wrong.
Its not as though I want to have a heart problem! I just find it hard
that anyone would have significant pain like this without a CAUSE!!
Ugg..
Lets keep each other posted...e-mail me anytime you'd like.
Alyson
At Tue, 30 May 2006, anonymous@obgyn.net, wrote:
>
>At Tue, 30 May 2006, Alyson wrote:
>>
>>Loretta,
>>Thank you so much for sharing that with me. It seems that your pain is
>>much more severe than mine, but I am glad to know that I am not the only
>>one with this "mystery" chest pain. It is really maddening to not get
>>any answers. I get so frustrated with my PCP for just writing me
>>prescription after prescription hoping that one of the drugs will fix
>>the problem....mind you without actually diagnosing the problem and the
>>prescribing the appropriate treatment. What has happened to doctors
>>these days?
>>
>>I had a thought...has anyone done an ultra sound of your gall bladder??
>>My mother had chest pain as severe as what you are describing and it
>>turned out to be an enlarged gall bladder. When my chest pain first
>>started I actually thought that was what it was going to be. (no luck
>>there) I did some research about gallbladder disease that indicated it
>>can be found in women who essentially experience blood stasis in the
>>pelvic area.
>>
>>Keep me posted and I'll let you know if I come up with any answers. Feel
>>free to e-mail me if you'd like.
>>
>>--
>>Alyson
>>
>>At Fri, 26 May 2006, anonymous@obgyn.net, wrote:
>>>
>>>At Thu, 25 May 2006, Alyson wrote:
>>>>
>>>>Hi Ladies,
>>>>I know we've talked about this some before....
>>>>Does anyone have any suggestions regarding chest pain?
>>>>I have had chronic stabbing pain in my left chest, always the same spot,
>>>>with no rhyme or reason. It doesn't matter what I eat/don't eat, if I'm
>>>>excercising, lying down....
>>>>My doc tried Nexium et al., anti inflamatories, sent me to the
>>>>cardiologist, and GI guy. All tests come out fine and they look at me
>>>>like they have no idea what to do with me. The cardiologist says I must
>>>>be one of those people that has an achy chest, like some people have
>>>>achy knees. I'm not totally satisfied with that explanation!! ;-)
>>>>Is this just one of those mystery endo pains that no one can explain?
>>>>Any opinions would be welcome!
>>>>Thanks,
>>>>Alyson
>>>
>>>--
>>>Dearest Allyson
>>>
>>>I am having basically the same problem, thus is why I have not posted here as much
>>> as I normally do, and have been away for awhile.
>>> About a year ago I began to get stabbing pains in my chest, it started to
>>> really worry me as I didn't have a cold, or feel congested at all. I went to
>>>my Dr and had him give me an Xray. It found nothing. Thinking it may be bronchitis,
>>> as I seem to get it a fair amount during my life, I was surprised that didn't show
>>> to be the major culprit.
>>>He gave me some antibiotics, but didn't think that was the problem anyway.
>>> Months went by and it didn't get any better, in fact, it got progressively worse.
>>> At Christmas time it was really bad. I would wake in the morning and it would
>>>be so sore I thought for sure I had some major infection that was not being
>>>caught or helped.
>>> I again went to the Dr and he re ran the Xrays, still nothing showed.
>>> He started to get annoyed, I could tell, but I started going back every week
>>> with this complaint as I was scared. Nothing ever showed up on his tests so he
>>> told me it was part of my fibromyalgia! When a Dr can't explain something
>>>anymore and is tired of testing and knows I have a definite diagnosis from the
>>> specialist of fibro, he pins it to that and stops looking. Makes me SO mad.
>>>This spring we moved to a new town and a new Dr, right away I told him of the pain.
>>>He sent me for xrays and blood tests, again nothing showed up. We started talking of
>>>my endo and fibro, I asked if there was a possibility with my severe endo,
>>> or my extensive adhesions, if it may have something to do with it.
>>> He said no , he didn't think so, that was VERY rare. He would not proceed down
>>> that path of investigation. About 6 weeks ago I awoke in the middle of the
>>> night in more sever pain than I have EVER been in in my life! I felt I could
>>>not breath although I was not congested. I had no cough, I could take a deep
>>>breath, but it put me to my knees in pain to do it. It didn't necessarily hurt
>>> more to take a deep breath than any other, but the pain was unbearable!
>>>Honestly, I would take my endo, ovarian cysts, and every bowel and adhesion
>>>pain all at once, than have that pain for an hour!
>>>I went to the Dr again and he sent me again for more Xrays and tests and a shot,
>>> while there he came to the hosp and ran a heart test to see if I was having
>>>heart attack, I said, some heart attack, it has lasted months!
>>>He did the test and my heart was fine but my blood pressure was through the roof,
>>> he said that was from the pain and it did come down as the pain meds started to
>>> take effect. He said I may be having a problem with mucus on my chest wall not
>>> moving due to my meds, apparently my meds can slow the respiratory system and the
>>>mucus can build up on the chest wall and do a lot of damage while making it hard
>>>to breath, it also cannot be seen on Xrays.
>>>So he started me on a ventilator machine of these meds to break up the mucus,
>>>along with physiotherapy on my lungs 4 times a day. I went back every time but
>>> the nurses became sick of taking time out of their small town emergency room
>>>schedule, so they set me up with a machine to take home and taught my hubby and
>>> daughter how to do the physio.
>>> Today, 5 weeks later I am still in severe pain, some days are a little better
>>> than others, but the pain never goes.
>>>He now has me on 4 different meds to inhale 4 times a day from the mask and machine,
>>>and I can only have the physio done before and after school and before bed as
>>>my daughter is in school and my husband works our of town most of the time.
>>> All the meds and all the physio have not made any difference what so ever, but
>>> he still insists I do it.
>>> 1 1/2 weeks ago I was back in the hosp as the pain again was disabling,
>>>it happened again a couple days ago. It just never goes away complete, it
>>>just lessons, somewhat, and all the tests so far have shown nothing more than
>>>chronic bronchitis that he says would never cause this much pain.
>>>He called me day the before yesterday and said he had spoke to his friend who
>>>is one of the best respiratory specialists in western Canada. He says my pain and
>>> the symptoms don't add up, so he wants to see me. The office will call and
>>>give me an appointment but I have not heard from them yet.
>>>It is very scary and very tiring, some days I can't even seem to walk far with
>>> out stopping from the pain. I am so very tired as when I fall asleep the pain
>>>meds wear off and the severe pain wakes me. I am getting about 3 to 4 hours
>>>sleep a night, he gave me something to get more sleep but it still wakes me
>>>from a deep sleep. I do all I can to ignore it or keep busy and my mind on
>>>something else. I am very depressed from the pain and lack of sleep and find
>>>I am highly emotional and am crying a lot. It is really scary having no idea of
>>>what it is I am fighting. I am meditating on healing and praying a lot. I want
>>> it just to turn out to be the fibromyalgia, but neither he or I have ever
>>>heard of that symptom of it before.
>>>If you find out what is causing your pain I would really appreciate you posting
>>> or writing me personally and letting me know so I can tell my Dr.
>>> Well, I am off to hook myself up again and write some emails to others to take
>>>my mind off all of it.All the best and hope for you in finding what it is.
>>>
>>>I am sorry you are in so much pain yourself and if I can help at all just mail
>>>me and we can talk. If I find out any reasons that we may have chest pain, or
>>> if it is endo related I will post or write you right away.
>>>Take care of yourself, rest and be good to you!
>>> Enjoy and Cherish your pain free day's, I am sure they will find the cause for
>>> you and you can find a treatment soon.
>>>
>>> Prayers and healing and pain free day's!
>>> ~~Loretta~~
>>>
>--
>Dearest Allyson
>
>Thanks for that info, he didn't do an ultrasound, (strange come to think of it),
>but he had mentioned the gallbladder, but only in passing.
> I wonder if you can tell things are going on with that through blood tests,
> (high w blood cell count or something), as god knows I don't have much blood
> left in my body, is is all in tubes in the lab! But so far, not much is showing up.
>I did however, get some word from the specialist he wants me to see.
>As a formality I am to have a lung function test next Tuesday,
>( we wouldn't want to hurry this too much), (drives me crazy WAITING),
>then he will make an appointment to see me. You can't help but to wonder, if they
>don't know what it is, how can they be so calm in just taking their time in
>seeing me, who knows what it is, and then, what is it doing to me in the meantime?
> This ventilator is not doing much of anything, I have some good, (well better),
> days, but it is still there all the time, some days are very, very bad.
>It doesn't seem to have much in the way of rhyme or reason, but it was awful
> the days before and during my period, but I get my period ALL the time lately,
>so it may be a coincidence. I just pray it all is resolved soon. YOURS TOO!
>I will ask him about the gallbladder, good idea, perhaps the daily
> Citromag (laxative) I have had to take all year is wreaking havoc with it,
>or perhaps it is gallstones, at this point in time I guess it could be just
> about anything! I will be sure to keep you posted as to what they say.
>Please do same, and take good care of yourself, I know what worry this causes.
>Prayers and Healing to you my friend, ~Loretta~
>
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