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Re: chest pain...revisited-Help!!~~~Loretta

From: anonymous@obgyn.net,
Tue May 30 12:17:27 2006

At Tue, 30 May 2006, Alyson wrote: >
>Loretta,
>Thank you so much for sharing that with me. It seems that your pain is
>much more severe than mine, but I am glad to know that I am not the only
>one with this "mystery" chest pain. It is really maddening to not get
>any answers. I get so frustrated with my PCP for just writing me
>prescription after prescription hoping that one of the drugs will fix
>the problem....mind you without actually diagnosing the problem and the
>prescribing the appropriate treatment. What has happened to doctors
>these days?
>
>I had a thought...has anyone done an ultra sound of your gall bladder??
>My mother had chest pain as severe as what you are describing and it
>turned out to be an enlarged gall bladder. When my chest pain first
>started I actually thought that was what it was going to be. (no luck
>there) I did some research about gallbladder disease that indicated it
>can be found in women who essentially experience blood stasis in the
>pelvic area.
>
>Keep me posted and I'll let you know if I come up with any answers. Feel
>free to e-mail me if you'd like.
>
>--
>Alyson
>
>At Fri, 26 May 2006, anonymous@obgyn.net, wrote:
>>
>>At Thu, 25 May 2006, Alyson wrote:
>>>
>>>Hi Ladies,
>>>I know we've talked about this some before....
>>>Does anyone have any suggestions regarding chest pain?
>>>I have had chronic stabbing pain in my left chest, always the same spot,
>>>with no rhyme or reason. It doesn't matter what I eat/don't eat, if I'm
>>>excercising, lying down....
>>>My doc tried Nexium et al., anti inflamatories, sent me to the
>>>cardiologist, and GI guy. All tests come out fine and they look at me
>>>like they have no idea what to do with me. The cardiologist says I must
>>>be one of those people that has an achy chest, like some people have
>>>achy knees. I'm not totally satisfied with that explanation!! ;-)
>>>Is this just one of those mystery endo pains that no one can explain?
>>>Any opinions would be welcome!
>>>Thanks,
>>>Alyson
>>
>>--
>>Dearest Allyson
>>
>>I am having basically the same problem, thus is why I have not posted here as much
>> as I normally do, and have been away for awhile.
>> About a year ago I began to get stabbing pains in my chest, it started to
>> really worry me as I didn't have a cold, or feel congested at all. I went to
>>my Dr and had him give me an Xray. It found nothing. Thinking it may be bronchitis,
>> as I seem to get it a fair amount during my life, I was surprised that didn't show
>> to be the major culprit.
>>He gave me some antibiotics, but didn't think that was the problem anyway.
>> Months went by and it didn't get any better, in fact, it got progressively worse.
>> At Christmas time it was really bad. I would wake in the morning and it would
>>be so sore I thought for sure I had some major infection that was not being
>>caught or helped.
>> I again went to the Dr and he re ran the Xrays, still nothing showed.
>> He started to get annoyed, I could tell, but I started going back every week
>> with this complaint as I was scared. Nothing ever showed up on his tests so he
>> told me it was part of my fibromyalgia! When a Dr can't explain something
>>anymore and is tired of testing and knows I have a definite diagnosis from the
>> specialist of fibro, he pins it to that and stops looking. Makes me SO mad.
>>This spring we moved to a new town and a new Dr, right away I told him of the pain.
>>He sent me for xrays and blood tests, again nothing showed up. We started talking of
>>my endo and fibro, I asked if there was a possibility with my severe endo,
>> or my extensive adhesions, if it may have something to do with it.
>> He said no , he didn't think so, that was VERY rare. He would not proceed down
>> that path of investigation. About 6 weeks ago I awoke in the middle of the
>> night in more sever pain than I have EVER been in in my life! I felt I could
>>not breath although I was not congested. I had no cough, I could take a deep
>>breath, but it put me to my knees in pain to do it. It didn't necessarily hurt
>> more to take a deep breath than any other, but the pain was unbearable!
>>Honestly, I would take my endo, ovarian cysts, and every bowel and adhesion
>>pain all at once, than have that pain for an hour!
>>I went to the Dr again and he sent me again for more Xrays and tests and a shot,
>> while there he came to the hosp and ran a heart test to see if I was having
>>heart attack, I said, some heart attack, it has lasted months!
>>He did the test and my heart was fine but my blood pressure was through the roof,
>> he said that was from the pain and it did come down as the pain meds started to
>> take effect. He said I may be having a problem with mucus on my chest wall not
>> moving due to my meds, apparently my meds can slow the respiratory system and the
>>mucus can build up on the chest wall and do a lot of damage while making it hard
>>to breath, it also cannot be seen on Xrays.
>>So he started me on a ventilator machine of these meds to break up the mucus,
>>along with physiotherapy on my lungs 4 times a day. I went back every time but
>> the nurses became sick of taking time out of their small town emergency room
>>schedule, so they set me up with a machine to take home and taught my hubby and
>> daughter how to do the physio.
>> Today, 5 weeks later I am still in severe pain, some days are a little better
>> than others, but the pain never goes.
>>He now has me on 4 different meds to inhale 4 times a day from the mask and machine,
>>and I can only have the physio done before and after school and before bed as
>>my daughter is in school and my husband works our of town most of the time.
>> All the meds and all the physio have not made any difference what so ever, but
>> he still insists I do it.
>> 1 1/2 weeks ago I was back in the hosp as the pain again was disabling,
>>it happened again a couple days ago. It just never goes away complete, it
>>just lessons, somewhat, and all the tests so far have shown nothing more than
>>chronic bronchitis that he says would never cause this much pain.
>>He called me day the before yesterday and said he had spoke to his friend who
>>is one of the best respiratory specialists in western Canada. He says my pain and
>> the symptoms don't add up, so he wants to see me. The office will call and
>>give me an appointment but I have not heard from them yet.
>>It is very scary and very tiring, some days I can't even seem to walk far with
>> out stopping from the pain. I am so very tired as when I fall asleep the pain
>>meds wear off and the severe pain wakes me. I am getting about 3 to 4 hours
>>sleep a night, he gave me something to get more sleep but it still wakes me
>>from a deep sleep. I do all I can to ignore it or keep busy and my mind on
>>something else. I am very depressed from the pain and lack of sleep and find
>>I am highly emotional and am crying a lot. It is really scary having no idea of
>>what it is I am fighting. I am meditating on healing and praying a lot. I want
>> it just to turn out to be the fibromyalgia, but neither he or I have ever
>>heard of that symptom of it before.
>>If you find out what is causing your pain I would really appreciate you posting
>> or writing me personally and letting me know so I can tell my Dr.
>> Well, I am off to hook myself up again and write some emails to others to take
>>my mind off all of it.All the best and hope for you in finding what it is.
>>
>>I am sorry you are in so much pain yourself and if I can help at all just mail
>>me and we can talk. If I find out any reasons that we may have chest pain, or
>> if it is endo related I will post or write you right away.
>>Take care of yourself, rest and be good to you!
>> Enjoy and Cherish your pain free day's, I am sure they will find the cause for
>> you and you can find a treatment soon.
>>
>> Prayers and healing and pain free day's!
>> ~~Loretta~~
>>

--
Dearest Allyson


Thanks for that info, he didn't do an ultrasound, (strange come to think of it),
but he had mentioned the gallbladder, but only in passing.
 I wonder if you can tell things are going on with that through blood tests,
 (high w blood cell count or something), as god knows I don't have much blood
 left in my body, is is all in tubes in the lab! But so far, not much is showing up.
I did however, get some word from the specialist he wants me to see.
As a formality I am to have a lung function test next Tuesday,
( we wouldn't want to hurry this too much), (drives me crazy WAITING),
then he will make an appointment to see me. You can't help but to wonder, if they
don't know what it is, how can they be so calm in just taking their time in
seeing me, who knows what it is, and then, what is it doing to me in the meantime?
 This ventilator is not doing much of anything, I have some good, (well better),
 days, but it is still there all the time, some days are very, very bad.
It doesn't seem to have much in the way of rhyme or reason, but it was awful
 the days before and during my period, but I get my period ALL the time lately,
so it may be a coincidence. I just pray it all is resolved soon. YOURS TOO!
I will ask him about the gallbladder, good idea, perhaps the daily
 Citromag (laxative) I have had to take all year is wreaking havoc with it,
or perhaps it is gallstones, at this point in time I guess it could be just
 about anything! I will be sure to keep you posted as to what they say.
Please do same, and take good care of yourself, I know what worry this causes.
Prayers and Healing to you my friend, ~Loretta~





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