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Re: Feel like i am at the end of the rope... GYN.com infomationFrom: anonymous@obgyn.net,Sat May 27 13:47:40 2006
At Sat, 27 May 2006, anonymous@obgyn.net wrote: > >Kristy, >I understand whats your saying. It does cost some money to find a GREAT >doctor. It took me 12 hours from nj to get to tn. The CEC is extremely >agressive and will cut and pry at you. not a great place to go. I >havent worked since last year and i strongly beleave you do what you >have to to get better i pinched pennies. More woamn need to understand >about endo and that a bc, lupron (some reason people think thats the >miracle drug) They help control the symptoms. Endo can grow adhesions >will grow. Its like people are covering up the disease that way. They >only real way to help your self is to have surgery by a skilled surgen >.The longer you live with endo the more and more it growns. Adhesions >will keep growing. I still dont understand why woman go to a obgyn for >endo??? There speciality is babies NOT endo. I'm not upset i acutually >feel sorry for people who can't get the help they need. Good luck and i >hope you get the help you need. --vicki > >At Fri, 26 May 2006, Kristy wrote: >> >>Vicki, >> >>I don't understand why you are getting upset at Rhonda and others like >>me who can't afford to go to this dr or some of the other top >>specialists. Of course we want help for our endo but for some of us b/c >>of the way that our body deals with it (myself included) it gets >>frustrating when the endo comes back to cause problems, especially for >>those that had surgery with someone like this Dr and they thought that >>the ordeal with this disease was over. A friend of mine on one of the >>other endo lists I'm on had surgery with the drs at the CEC but she >>still has problems with her endo. And even though that's true she feels >>comfortable with them doing the multiple surgeries. That's fine. >> >>As for your comment of "It's your life, why settle for just any dr?" >>Well, I have to say I don't have "just" any gyn taking care of me on a >>local level. I have an absolutely wonderful gyn when it comes to endo. >>She's not one of the top specialists in the country but her knowledge >>about endo is absolutely amazing. And I consider her my endo >>specialist. >> >>You said that we should always "look for the best". You are right on >>target. I have found the best dr for me and my endo and it's on a local >>level and she's willing to help me deal with my endo each and every >>time. >> >>But for those like yourself that have gone to the top specialists I'm >>very happy for them that they have had success. >> >>But as I said before not everyone can afford to go to one whether they >>are in TN (which is about 14 hours North of me) in Atlanta (which is 6 >>hours north of me) or out to CA or even to LA. Pls don't get upset at >>us for not being able to get more help for our endo than our budgets and >>even overall health issues (for some) will allow. >> >>May you continue to do well. >> >>-- >>===== >>Kristy :) >> >>http://www.geocities.com/sokokl/Kristysstory.html >>
-- Dearest Vikki Not everyone even has pennies to pinch, and if they had anything left over it would still sure take a long time to save 10 - 15 thousand dollars for surgery. Just b/c some/most don't have that kind of money, does not mean they care less about their health. Many fine surgeons live all over the world, one may have just as good sucess with the one in their city as you have had with yours. Not everyone who goes to your Dr will be helped as much as you either. Each persons success and recovery is individual to them. It is great to have the "best" you can get, but that is just the point here, the "best" you can get may be in your own back yard. When I had my laparotomy surgery the "best" in the field was in Toronto, I was single and NO way could I travel to Toronto, it did not matter how much I wanted the best, it was not a reality for me to get that kind of money for the trip, and if the procedure can be done in my province health care will not cover any expenses to go elsewhere. I had to settle for a surgeon at my local hospital. It was the greatest of success's, he did an excellent job, I did not need to travel any where else to have the same outcome. And he was not a gyne specialist, he was a general surgeon. While we all would love to be able to do the things we wish, reality is often another thing all together. It does not mean we care any less about our health. I am glad your outcome was all you hoped it would be. Continued success , as you said, endo has been known to reoccure, and if I am correct, your surgery is not all that old yet. I continue to pray you stay well, and it stays that way. Good luck.Loretta
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