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Re: thank you - my story
From: Lora (anonymous@obgyn.net)
Fri Apr 28 11:57:17 2006
I am so glad your feeling better, a future FYI, my doctor put me on
Lo-Ovral (birth control) This is very low estrogen and he has me take
three packs then have a period, I really have not side effects from this
one. I hope this could help
Lora
At Fri, 28 Apr 2006, katie wrote:
>
>First of all I want to say thank you to all the people who have posted
>here before because if it wasn't for you, I wouldn't have had the
>courage to go forward in my quest for a new Dr for my endo.
>
>I had my 1st lap for suspected endo in April 2004 w/ an ob/gyn who found
>severe endo and "removed what he could" of the disease. He had first
>insisted on a bout of Lupron and the moment I heard it would put me in
>temporary menopause, I refused. I had done a ton of research before
>going to the Dr and knew what to expect. BC, Lupron (or others), pain
>meds, investigative lap. I was only 26 at the time and I work full time
>w/ the public. I don't need menopause now! I insisted on the surgery
>because I HAD to know what the hell was wrong with me and I was 99.9%
>convinced it was endo. Lo and behold, severe endo was found. Aha! The
>pain wasn't all in my head after all! Boy, was I relieved to finally
>know my problem so I could deal with it. After surgery, I started on BC
>Seasonale (active pills taken continuously for 3 months at a time, 4
>periods a year) and took it for a year. I was miserable. Not only did
>the meds make me feel very, very depressed, I still had pain all the
>time - even without my period. The pain certainly wasn't as bad as
>before surgery but was definately still a problem. I frequently called
>in to work sick and was crying all the time. My husband finally looked
>at me and asked, "WHAT is wrong with you?". So I went back to the Dr
>asking about more surgery since I had experienced some relief after the
>first one and still wasn't convinced about any medical therapy. He
>thought surgery would not help any more and insisted on Lupron. I still
>refused Lupron. I went home and cried - yet again. I felt hopeless,
>like this was it. This was going to be my life for the rest of my life.
>All this pain all the time..... Finally I decided that would NOT be my
>life. I could not believe there was not a better answer out there! I am
>still surprised by how far behind many doctors seem to be on treating
>this disease.
>
>So I did yet more research. I looked for doctors who would do surgery
>for endo and found Dr David Redwine in Oregon who does excision surgery
>and as much research as he can for endo. For all the info I have read
>on Dr Redwine, I truly believe he is sympathetic to our situations and
>without the ego! More research on excision surgery had me convinced so I
>found a Dr here in Arizona who does it. He is a gynecologist, not
>ob/gyn. I visited this Dr with only a little hope and realized I had
>found the right Dr! I had surgery almost a month ago and could
>immediately tell I felt better, even thru all that surgery pain. I
>didn't have what felt like a tight ball of rubber bands in my low belly
>any more! I am surprised and my husband and I very relieved that sex
>does not hurt AT ALL now. I still had severe endo with kissing ovaries.
>Hmmmmm...
>
>That's my story and I hope it will help someone here. I happened upon
>this forum when I felt so hopeless and read messages for a whole day,
>crying sometimes to hear the stories. We go from Dr to Dr and no one
>really understands except someone else who lives with this disease and
>it is doubly hard because many doctors don't seem to truly understand. I
>was so glad to find people who felt the same way and it made me realize
>I wasn't really crazy! It honestly gave me the courage to go forward
>with my treatment instead of giving up.
>
>My advice is to listen to your body, research, research, research as
>much as you can. Be as knowledgable as possible about your situation
>before going to the Dr because it will help you both. Find the right
>Dr. If you need treatment for endo, you need a gynecologist, NOT an
>ob/gyn.
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