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thank you - my storyFrom: katie (anonymous@obgyn.net)Fri Apr 28 11:05:46 2006
First of all I want to say thank you to all the people who have posted here before because if it wasn't for you, I wouldn't have had the courage to go forward in my quest for a new Dr for my endo. I had my 1st lap for suspected endo in April 2004 w/ an ob/gyn who found severe endo and "removed what he could" of the disease. He had first insisted on a bout of Lupron and the moment I heard it would put me in temporary menopause, I refused. I had done a ton of research before going to the Dr and knew what to expect. BC, Lupron (or others), pain meds, investigative lap. I was only 26 at the time and I work full time w/ the public. I don't need menopause now! I insisted on the surgery because I HAD to know what the hell was wrong with me and I was 99.9% convinced it was endo. Lo and behold, severe endo was found. Aha! The pain wasn't all in my head after all! Boy, was I relieved to finally know my problem so I could deal with it. After surgery, I started on BC Seasonale (active pills taken continuously for 3 months at a time, 4 periods a year) and took it for a year. I was miserable. Not only did the meds make me feel very, very depressed, I still had pain all the time - even without my period. The pain certainly wasn't as bad as before surgery but was definately still a problem. I frequently called in to work sick and was crying all the time. My husband finally looked at me and asked, "WHAT is wrong with you?". So I went back to the Dr asking about more surgery since I had experienced some relief after the first one and still wasn't convinced about any medical therapy. He thought surgery would not help any more and insisted on Lupron. I still refused Lupron. I went home and cried - yet again. I felt hopeless, like this was it. This was going to be my life for the rest of my life. All this pain all the time..... Finally I decided that would NOT be my life. I could not believe there was not a better answer out there! I am still surprised by how far behind many doctors seem to be on treating this disease. So I did yet more research. I looked for doctors who would do surgery for endo and found Dr David Redwine in Oregon who does excision surgery and as much research as he can for endo. For all the info I have read on Dr Redwine, I truly believe he is sympathetic to our situations and without the ego! More research on excision surgery had me convinced so I found a Dr here in Arizona who does it. He is a gynecologist, not ob/gyn. I visited this Dr with only a little hope and realized I had found the right Dr! I had surgery almost a month ago and could immediately tell I felt better, even thru all that surgery pain. I didn't have what felt like a tight ball of rubber bands in my low belly any more! I am surprised and my husband and I very relieved that sex does not hurt AT ALL now. I still had severe endo with kissing ovaries. Hmmmmm... That's my story and I hope it will help someone here. I happened upon this forum when I felt so hopeless and read messages for a whole day, crying sometimes to hear the stories. We go from Dr to Dr and no one really understands except someone else who lives with this disease and it is doubly hard because many doctors don't seem to truly understand. I was so glad to find people who felt the same way and it made me realize I wasn't really crazy! It honestly gave me the courage to go forward with my treatment instead of giving up. My advice is to listen to your body, research, research, research as much as you can. Be as knowledgable as possible about your situation before going to the Dr because it will help you both. Find the right Dr. If you need treatment for endo, you need a gynecologist, NOT an ob/gyn.
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