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Re: To Vickifl05
From: anonymous@obgyn.net
Thu Apr 27 07:47:25 2006
Where do you live??? Are you willing to see a doctor in Tn or NY???
At Thu, 27 Apr 2006, JoCee27 wrote:
>
>Hi Vicki.
>
>Thanks for responding back. I was just wondering what happened with you
>in ER that got that surgery up and going so fast. Thanks for letting me
>know. I've just been in and out of ER until I find a doctor willing to
>do more than throw my age up in my face as if I am not old enough to
>make decisions for myself. I just figured with all the problems I keep
>having and all the pain, that someone in ER would have another
>suggestion about what to do besides, "Keep looking for a doctor." That
>gets annoying after a while. Sometimes they can make me feel like I am
>not really trying to help myself. I am doing everything that I can to
>find a doctor here willing to do what I ask; but it's been hard. I'm
>not even sure I can handle hearing "you're too young" again without
>exploding at them with something along the lines of, "Well apparently a
>29 year old can't make a medical decision, but they are old enough to
>send to Iraq to get their head blown off." My father served in Dessert
>Storm and in Iraqi Freedom and he is about to hit officially hit the
>roof as he says that the government will send doctors overseas to
>perform surgeries--like the one I require--on a whole tribe of women to
>keep the population down so the government can save money on caring for
>them, yet our doctors over here won't do the surgery where it is
>"medically needed" rather than "government ordered." You'd be surprised
>at some of things he's told me about health care over there. Did you
>know that with $50 you can get a Hysterectomy in Africa? Where I live it
>costs about $1500. For $30 you can get a upper and lower dental plate?
>Here it's $1200. It's something else over there!
>
><
>I had 2 chocolate cysts and one had reputred. The cyst went from my
>overy to my stomach. I think thats why they did emergency surgery. The
>only advice I can give you is to call Dr. Liu. Google him and read
>about the work he has done. He is amazing!! Even if you just fax him
>your paperwork and talk to him on the phone. This doctor can get the
>endo and adhesions out WITHOUT a hysterectomy. If you would like to
>chat more please feel free to e-mail me anytime. Good luck and do not
>give up i'm telling you there is hope!!!--vicki
>
>At Tue, 25 Apr 2006, JoCee27 wrote:
>>
>>Vicki,
>>
>>In your post you say that
>><<Last may I had cramps that
>>made me drop to my knees. I went to the er and had emergency surgery. A
>>laparotomy also open surgery. I was then diagnosed with
>>endometriosis.>>
>>
>>I have just a few questions for you. How on earth did you get ER to
>>send you up for surgery during your visit? I've been needing surgery for
>>4 months and every trip to ER ends up the same: pain shots and a trip
>>home. They tell me I need surgery as soon as possible, but do nothing
>>about it. I've been told I need to get something done, make a doctor
>>listen, find a doctor willing to do a hysterectomy, that age doesn't
>>matter....and all of this coming from the mouths of ER nurses and docs.
>>But not one of them recommended a doctor in any of my paperwork, not to
>>my face, and none of them called in any on-call OB/GYN's to have a look
>>at me nor did they call one of their handy surgeons in. You are not the
>>first person that has told me they went to ER with pelvic pain and was
>>sent straight in to surgery because of pain. I must not being something
>>right because they never do anything more than pat me on the butt.
>>
>>At Tue, 25 Apr 2006, anonymous@obgyn.net wrote:
>>>
>>>I would be so happy and excited to share with you my story. lol its
>>>kinda long...
>>>I never had any sort of cramping in my life. Last may I had cramps that
>>>made me drop to my knees. I went to the er and had emergency surgery. A
>>>laparotomy also open surgery. I was then diagnosed with endometriosis.
>>>The doc that did the surgery decided to give me lupron. What a mistake
>>>that was!!! I was a freaken mess, i sweat like there was no tomarrow,
>>>mood changes at a drop of a hat! I'm sure most woman on lupron know what
>>>I mean. I had to have a blood transufsion cause the doc that did the
>>>surgery made me loose to much blood i almost died the hospital had no
>>>clue what was wrong with me i almost had a heart-attack from it. ok so
>>>i get out of the hospital it took me 2 months for my skin to heal. They
>>>had to keep stiching me up.
>>>I was experiencing cramping from then on. I would sit on the toilet and
>>>rock my self back and forth and cry cause of my pelvic pain. I found a
>>>specialist in endo. He put me on augestin and i went threw all the
>>>millagrams of it and no results. I was getting sicker put on sooo much
>>>weight and days with out getting out of bed. In Oct 05 i had a
>>>laprascopy. This doctor wanted to know what he was working with. Well
>>>this is what he found. My right overy was gone the adhesions had
>>>sufficated it. Endo and adhesions up to my breasts and down onto my
>>>vagina. My pelvic area was basically "frozen" . The adhesions were on
>>>everything and were causeing a lot of pain. That doctor closed me up
>>>took out nothing and told me he needs to schedule for a lapratomy he
>>>wanted to cut me from my breats down to take it all out. I was soo
>>>scared. After that i took some time to try to relax and decided to go
>>>threw with the surgery. I was living on narcotics and daily trips to
>>>the er. In jan 06 the er found a tumor on my uturus the size of my
>>>fist. Thats when i made the apt to be cut wide open. 2 weeks before my
>>>surgery that doctor called and told me he got a transfer to Washington
>>>dc and could not do my surgery. I was a basket-case. I then had my mom
>>>helping me day and night to find a doctor. I had known of Dr. Liu but
>>>did not know he was in the USA. So I gave it a chance and called. I
>>>spoke for about 20 min to his staff. They told me to e-mail the doc as
>>>he was in spain teaching. And they also gave me a date to call and talk
>>>to him.It was only about 1 week to wait to talk to him. I had faxed
>>>over ALL my medical records. I spoke to Dr. Liu and he told me about
>>>the surgery and that he will look at all my organs and pull them apart
>>>and make me normal again. The lady sandy who is Dr. Liu's secetary set
>>>me paper work to fill out and fax back and RX's. They were 2
>>>antiboticits, 2 meds to clean out my insides, anti-nausa med. I flew up
>>>to nj where my parents are and we left for TN 1 day later. The hospital
>>>called when i was in Tn to set up an apt for pre opt blood and history.
>>>My insurance covers 90% and the hospital in TN will work out a payment
>>>plan for what you owe them. Later that day I had an apt to meet Dr. Liu
>>>and his magnaficant team. First I met the other doctor that would be
>>>helping in the surgery. Dr Fur. He explained in detail about endo and
>>>adhesions and about the surgery. Because i was from out of state i
>>>would be spending the night in the hopspital.My mom and i spoke to
>>>Dr.Fur for about 1 hour. All about my past surgerys and how this
>>>surgery will go and how to stop endo from comming back. I never had
>>>that much time with any doctor. Then I meet Dr. Liu!! I was beside
>>>myself when i meet him i knew he was the man to fix me up. He is such a
>>>soft and gentle spoken man. He explaind everything so i would
>>>understand it. he again went over the surgery and how to stop it from
>>>comming back. He explained I am not the only one like this. He did not
>>>know how long the surgery would take could ne where from an hour to 7
>>>hours. Depends what he finds.
>>>So 2 days before surgery I had to start the antibotics and could eat.
>>>The day before surgery i had to drink 1 bottle of citric-maganesm and
>>>then followed by another gallon jug of stuff to help clean out your
>>>insides also antibotics. Helpfull hint take the anti nausa meds then
>>>the antibootics they made me throw up. No food that day. So on april
>>>10th at 5:30 am i was brought to the hospital. The woman in the
>>>hospital were amazing and made me feel so relaxed. I was in my own room
>>>where the nurse started the iv. At 6:30 i left my family who go to stay
>>>in the room where they hospital provided meal tickets for them and hot
>>>coffie. Everyhour i was in surgery the nurse called my family and
>>>talked to them about how i was and what the doctor was doing. I got
>>>wheeled in Dr. Liu's own operating room where i meet everyone who would
>>>be working on me and again saw dr liu and dr fur. They gave me meds to
>>>calm me down which knocked me out and next thing i know i woke up in my
>>>own room again. I was very groggy and could not talk and had to sleep.I
>>>had tubes down my nose ( did not hurt) and was on a morphine drop. I
>>>was not in a lot of pain i just had a bad headach and legs sore. i had
>>>to stay in the hospital 2 days cause my heart rate was very high and i
>>>had a bad headach. This had happend in my other surgeys also. I had to
>>>walk around the 2nd day and could not beleave i was not in pain. It was
>>>amazing. The nurses were so overly nice and so caring. If i called a
>>>nurse she would be there in seconds.They also were overly nice to my
>>>parents. I had surgery on a monday and was on my way back to nj on that
>>>thursday. The only issue was every 2 hours we had to stop for me to
>>>walk around for at least 10 min. I want you to know i never had to take
>>>any pain meds once i left the hospital. I have to walk at least 1 mile
>>>a day. I can do that with no problem. I can't have my period again.
>>>They give you an RX for birth control and I will go back this summer to
>>>have a check up. As long as i have no problems i dont have to go back
>>>till every year. I can go to the bathroom and have almost no pain. I
>>>am sore don't get me wrong. It feels like someone kicked me in my
>>>tummy.After the surgery i could not hold food in for over a week. It's
>>>very normal cause of all the antibotics and what the doc did to me. My
>>>surgery was 6 and a half hours long. So this is what the doctor found.
>>>a hernia in my small bowl, tumor, cysts, both tubes fused complety shut
>>>he reopened them, large bowl was fused to other organs and not working
>>>right., took out appendex, took out all adhesions and endo he saw. So
>>>here i am 15 days later and honestely i feel 90% better. I can eat i
>>>have been staying with bland foods no fried foods. I will be able to go
>>>to the gym in about a month or so. I'm so excited I'm only 26 and feel
>>>like my life was on hold for a year. Now my boyfriend and I can start
>>>our life together. I hope this helps you and good luck in everything
>>>you do. Please Please e-mail me anytime. I think he only accepts
>>>insurance in TN. It was an amazing experience for me. --your in my
>>>prayers vicki
>>>
>>>At Mon, 24 Apr 2006, Amy wrote:
>>>>
>>>>At Sun, 23 Apr 2006, anonymous@obgyn.net wrote:
>>>>>
>>>>>I suffered from sever adhesions. They covered all organs and bonded my
>>>>>organs together. Both my tubes were sealed shut no hope of ever having
>>>>>kids and i'm only 26. I had a hernia on my small bowl and a large
>>>>>scection on my large bowl was fused to my other organs and only a small
>>>>>part of my bowl was being used. I also have endometriosis. Past stage
>>>>>4 of it. I could not get out of bed for days on end and was living on
>>>>>nartocitis. I was getting so fed up with doctors and needed help before
>>>>>everything in me killed me. I found a doctor by the name of C.Y.Liu .he
>>>>>is is TN. HE accepts health insurance!! He also has an office in NY. I
>>>>>want you all to know how amazing this man is. He is a saint!! I went in
>>>>>for surgery with him on april 10, 2006. in TN. The surgery took 6 and
>>>>>a half hours and i only have 6 half inch scares. He video tapes the
>>>>>suregery so i got to see it all when i got home. I have had 2 surgerys
>>>>>pryer to this and did not at any means have my hopes up. I want
>>>>>everyone to know I have almost NO pain!!. This man took out a tumor,
>>>>>cysts, all the endo he could see ,adhesions, fixed my organs, took out
>>>>>my appendex , and made me "normal" again. He is am amazing man!!
>>>>>http://www.gyndr.com/index.php this is his web site and i urge all
>>>>>adhesion suffers and endo patients to call him. There is hope. He
>>>>>opened up both my tubes and i can have babies now!!!I am in my
>>>>>recovering stage Which wil take a while to get out of. and i have to
>>>>>say i feel 95% better!! I can go to the bathroom and have no pain i used
>>>>>to rock my self back and forth and cry when i had to use the bathroom
>>>>>now i can go and feel ok. When i recover I can go back to work and be a
>>>>>26 year old again. I wish you all well and hope everyone can get the
>>>>>help they need-- please feel free to e-mail me if you would like to chat
>>>>>more -- vickifl05@yahoo.com
>>>>> I pray for everyone and hope you all call....
>>>>
>>>>Hi,
>>>>I would love to hear more about your experience with Dr.Liu. I have
>>>>read about him. He is an expert with lap procedures. I would consider
>>>>seeing him, but I am nervous about surgery, eventhough I think it would
>>>>be the right decision.
>>>>
>>>>Would you be willing to tell me more about how the recovery was,
>>>>especially right after the surgery. Was he nice to deal with? So many
>>>>doctors are so cold and uncaring.
>>>>
>>>>-Amy
>>
>>--
>>ENDOANGEL JOCEE
>>
>>Endometriosis Online Support Group
>>http://com3.runboard.com/bendometriosissupportgroup
>>
>>Endo Sisterhood Support Group
>>http://health.groups.yahoo.com/group/EndoSisterhood/
>>
>--
>ENDOANGEL JOCEE
>
>Endometriosis Online Support Group
>http://com3.runboard.com/bendometriosissupportgroup
>
>Endo Sisterhood Support Group
>http://health.groups.yahoo.com/group/EndoSisterhood/
>
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