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Re: Amazing Doctor I had to repost this.. TO VICKI
From: anonymous@obgyn.net
Tue Apr 25 17:00:41 2006
I had 2 chocolate cysts and one had reputred. The cyst went from my
overy to my stomach. I think thats why they did emergency surgery. The
only advice I can give you is to call Dr. Liu. Google him and read
about the work he has done. He is amazing!! Even if you just fax him
your paperwork and talk to him on the phone. This doctor can get the
endo and adhesions out WITHOUT a hysterectomy. If you would like to
chat more please feel free to e-mail me anytime. Good luck and do not
give up i'm telling you there is hope!!!--vicki
At Tue, 25 Apr 2006, JoCee27 wrote:
>
>Vicki,
>
>In your post you say that
><<Last may I had cramps that
>made me drop to my knees. I went to the er and had emergency surgery. A
>laparotomy also open surgery. I was then diagnosed with
>endometriosis.>>
>
>I have just a few questions for you. How on earth did you get ER to
>send you up for surgery during your visit? I've been needing surgery for
>4 months and every trip to ER ends up the same: pain shots and a trip
>home. They tell me I need surgery as soon as possible, but do nothing
>about it. I've been told I need to get something done, make a doctor
>listen, find a doctor willing to do a hysterectomy, that age doesn't
>matter....and all of this coming from the mouths of ER nurses and docs.
>But not one of them recommended a doctor in any of my paperwork, not to
>my face, and none of them called in any on-call OB/GYN's to have a look
>at me nor did they call one of their handy surgeons in. You are not the
>first person that has told me they went to ER with pelvic pain and was
>sent straight in to surgery because of pain. I must not being something
>right because they never do anything more than pat me on the butt.
>
>At Tue, 25 Apr 2006, anonymous@obgyn.net wrote:
>>
>>I would be so happy and excited to share with you my story. lol its
>>kinda long...
>>I never had any sort of cramping in my life. Last may I had cramps that
>>made me drop to my knees. I went to the er and had emergency surgery. A
>>laparotomy also open surgery. I was then diagnosed with endometriosis.
>>The doc that did the surgery decided to give me lupron. What a mistake
>>that was!!! I was a freaken mess, i sweat like there was no tomarrow,
>>mood changes at a drop of a hat! I'm sure most woman on lupron know what
>>I mean. I had to have a blood transufsion cause the doc that did the
>>surgery made me loose to much blood i almost died the hospital had no
>>clue what was wrong with me i almost had a heart-attack from it. ok so
>>i get out of the hospital it took me 2 months for my skin to heal. They
>>had to keep stiching me up.
>>I was experiencing cramping from then on. I would sit on the toilet and
>>rock my self back and forth and cry cause of my pelvic pain. I found a
>>specialist in endo. He put me on augestin and i went threw all the
>>millagrams of it and no results. I was getting sicker put on sooo much
>>weight and days with out getting out of bed. In Oct 05 i had a
>>laprascopy. This doctor wanted to know what he was working with. Well
>>this is what he found. My right overy was gone the adhesions had
>>sufficated it. Endo and adhesions up to my breasts and down onto my
>>vagina. My pelvic area was basically "frozen" . The adhesions were on
>>everything and were causeing a lot of pain. That doctor closed me up
>>took out nothing and told me he needs to schedule for a lapratomy he
>>wanted to cut me from my breats down to take it all out. I was soo
>>scared. After that i took some time to try to relax and decided to go
>>threw with the surgery. I was living on narcotics and daily trips to
>>the er. In jan 06 the er found a tumor on my uturus the size of my
>>fist. Thats when i made the apt to be cut wide open. 2 weeks before my
>>surgery that doctor called and told me he got a transfer to Washington
>>dc and could not do my surgery. I was a basket-case. I then had my mom
>>helping me day and night to find a doctor. I had known of Dr. Liu but
>>did not know he was in the USA. So I gave it a chance and called. I
>>spoke for about 20 min to his staff. They told me to e-mail the doc as
>>he was in spain teaching. And they also gave me a date to call and talk
>>to him.It was only about 1 week to wait to talk to him. I had faxed
>>over ALL my medical records. I spoke to Dr. Liu and he told me about
>>the surgery and that he will look at all my organs and pull them apart
>>and make me normal again. The lady sandy who is Dr. Liu's secetary set
>>me paper work to fill out and fax back and RX's. They were 2
>>antiboticits, 2 meds to clean out my insides, anti-nausa med. I flew up
>>to nj where my parents are and we left for TN 1 day later. The hospital
>>called when i was in Tn to set up an apt for pre opt blood and history.
>>My insurance covers 90% and the hospital in TN will work out a payment
>>plan for what you owe them. Later that day I had an apt to meet Dr. Liu
>>and his magnaficant team. First I met the other doctor that would be
>>helping in the surgery. Dr Fur. He explained in detail about endo and
>>adhesions and about the surgery. Because i was from out of state i
>>would be spending the night in the hopspital.My mom and i spoke to
>>Dr.Fur for about 1 hour. All about my past surgerys and how this
>>surgery will go and how to stop endo from comming back. I never had
>>that much time with any doctor. Then I meet Dr. Liu!! I was beside
>>myself when i meet him i knew he was the man to fix me up. He is such a
>>soft and gentle spoken man. He explaind everything so i would
>>understand it. he again went over the surgery and how to stop it from
>>comming back. He explained I am not the only one like this. He did not
>>know how long the surgery would take could ne where from an hour to 7
>>hours. Depends what he finds.
>>So 2 days before surgery I had to start the antibotics and could eat.
>>The day before surgery i had to drink 1 bottle of citric-maganesm and
>>then followed by another gallon jug of stuff to help clean out your
>>insides also antibotics. Helpfull hint take the anti nausa meds then
>>the antibootics they made me throw up. No food that day. So on april
>>10th at 5:30 am i was brought to the hospital. The woman in the
>>hospital were amazing and made me feel so relaxed. I was in my own room
>>where the nurse started the iv. At 6:30 i left my family who go to stay
>>in the room where they hospital provided meal tickets for them and hot
>>coffie. Everyhour i was in surgery the nurse called my family and
>>talked to them about how i was and what the doctor was doing. I got
>>wheeled in Dr. Liu's own operating room where i meet everyone who would
>>be working on me and again saw dr liu and dr fur. They gave me meds to
>>calm me down which knocked me out and next thing i know i woke up in my
>>own room again. I was very groggy and could not talk and had to sleep.I
>>had tubes down my nose ( did not hurt) and was on a morphine drop. I
>>was not in a lot of pain i just had a bad headach and legs sore. i had
>>to stay in the hospital 2 days cause my heart rate was very high and i
>>had a bad headach. This had happend in my other surgeys also. I had to
>>walk around the 2nd day and could not beleave i was not in pain. It was
>>amazing. The nurses were so overly nice and so caring. If i called a
>>nurse she would be there in seconds.They also were overly nice to my
>>parents. I had surgery on a monday and was on my way back to nj on that
>>thursday. The only issue was every 2 hours we had to stop for me to
>>walk around for at least 10 min. I want you to know i never had to take
>>any pain meds once i left the hospital. I have to walk at least 1 mile
>>a day. I can do that with no problem. I can't have my period again.
>>They give you an RX for birth control and I will go back this summer to
>>have a check up. As long as i have no problems i dont have to go back
>>till every year. I can go to the bathroom and have almost no pain. I
>>am sore don't get me wrong. It feels like someone kicked me in my
>>tummy.After the surgery i could not hold food in for over a week. It's
>>very normal cause of all the antibotics and what the doc did to me. My
>>surgery was 6 and a half hours long. So this is what the doctor found.
>>a hernia in my small bowl, tumor, cysts, both tubes fused complety shut
>>he reopened them, large bowl was fused to other organs and not working
>>right., took out appendex, took out all adhesions and endo he saw. So
>>here i am 15 days later and honestely i feel 90% better. I can eat i
>>have been staying with bland foods no fried foods. I will be able to go
>>to the gym in about a month or so. I'm so excited I'm only 26 and feel
>>like my life was on hold for a year. Now my boyfriend and I can start
>>our life together. I hope this helps you and good luck in everything
>>you do. Please Please e-mail me anytime. I think he only accepts
>>insurance in TN. It was an amazing experience for me. --your in my
>>prayers vicki
>>
>>At Mon, 24 Apr 2006, Amy wrote:
>>>
>>>At Sun, 23 Apr 2006, anonymous@obgyn.net wrote:
>>>>
>>>>I suffered from sever adhesions. They covered all organs and bonded my
>>>>organs together. Both my tubes were sealed shut no hope of ever having
>>>>kids and i'm only 26. I had a hernia on my small bowl and a large
>>>>scection on my large bowl was fused to my other organs and only a small
>>>>part of my bowl was being used. I also have endometriosis. Past stage
>>>>4 of it. I could not get out of bed for days on end and was living on
>>>>nartocitis. I was getting so fed up with doctors and needed help before
>>>>everything in me killed me. I found a doctor by the name of C.Y.Liu .he
>>>>is is TN. HE accepts health insurance!! He also has an office in NY. I
>>>>want you all to know how amazing this man is. He is a saint!! I went in
>>>>for surgery with him on april 10, 2006. in TN. The surgery took 6 and
>>>>a half hours and i only have 6 half inch scares. He video tapes the
>>>>suregery so i got to see it all when i got home. I have had 2 surgerys
>>>>pryer to this and did not at any means have my hopes up. I want
>>>>everyone to know I have almost NO pain!!. This man took out a tumor,
>>>>cysts, all the endo he could see ,adhesions, fixed my organs, took out
>>>>my appendex , and made me "normal" again. He is am amazing man!!
>>>>http://www.gyndr.com/index.php this is his web site and i urge all
>>>>adhesion suffers and endo patients to call him. There is hope. He
>>>>opened up both my tubes and i can have babies now!!!I am in my
>>>>recovering stage Which wil take a while to get out of. and i have to
>>>>say i feel 95% better!! I can go to the bathroom and have no pain i used
>>>>to rock my self back and forth and cry when i had to use the bathroom
>>>>now i can go and feel ok. When i recover I can go back to work and be a
>>>>26 year old again. I wish you all well and hope everyone can get the
>>>>help they need-- please feel free to e-mail me if you would like to chat
>>>>more -- vickifl05@yahoo.com
>>>> I pray for everyone and hope you all call....
>>>
>>>Hi,
>>>I would love to hear more about your experience with Dr.Liu. I have
>>>read about him. He is an expert with lap procedures. I would consider
>>>seeing him, but I am nervous about surgery, eventhough I think it would
>>>be the right decision.
>>>
>>>Would you be willing to tell me more about how the recovery was,
>>>especially right after the surgery. Was he nice to deal with? So many
>>>doctors are so cold and uncaring.
>>>
>>>-Amy
>
>--
>ENDOANGEL JOCEE
>
>Endometriosis Online Support Group
>http://com3.runboard.com/bendometriosissupportgroup
>
>Endo Sisterhood Support Group
>http://health.groups.yahoo.com/group/EndoSisterhood/
>
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