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Re: New Here & do not know what to do. I Think I got Endo
From: Melissa (anonymous@obgyn.net)
Fri Mar 31 08:17:19 2006
Find a new doctor! It sounds like Endo to me and, but you need to find a
doctor who will listen......
At Thu, 30 Mar 2006, KayLee wrote:
>
>Hello Everyone,
>
>I have been reading many messages on this website & thought I would go
>ahed & see what some of you think about my situation. I do not know
>where to turn. I have been having chronic UTI's (or that is what I have
>advised I have been having all the years) since I was 19 years old. As
>I get older they get worse & I have had several doctors & ER rooms
>diagnose me with everything from a UTI to PID to Bacterial Vaginosis &
>they just give me antibiotics & within 2-4 weeks I am back at the doctor
>or in the ER Room. Well, about a year ago I started having more & more
>pelvic pain & they just kept giving me Flagyl & then I would get a UTI
>(or so they say) & they would give me an antiobiotic (I have had
>everything from Levequin to Bactrim to Avelox, etc.). Well then my
>pelvic pain starting getting worse & worse & the past few months I have
>chronic (its like a bloating/fullness feeling) stomach bloating. It is
>as if something is in my stomach & it will not come out. I just had an
>ultrasound & they found a (3mm(cm)---3 something) cyst but my OB/GYN
>does not think that is the cause of my problem. They did a Urine
>Culture & found nothing. They however did a Urinalysis & found blood in
>my urine & some other odd things or so they said. They did a pregnancy
>blood test & I am definitely not pregnant. I have been to an Infectious
>Disease Specialist & he tested me for Lupus & I do not have that. I
>have been to a Urologist & he has done several Catherizations along with
>a Cystoscopy & a Urethral Dilation (which hurt like hell) & within 2
>weeks I was having a problem again. I have been having chronic fatigue
>that gets worse & worse as I get older (I can barely make it to work but
>I do & when I get home I can hardly clean my house---this just about
>drives me nuts because I am a clean freak). I am having severe stabbing
>like pain around my belly button that flares down to my vagina from time
>to time & then it sometimes flares to my sides. The past few days I
>have been having severe pain in the mid section of my back that has been
>flaring to the sides too. And, I also have chronic (pain that has not
>went away for the past 2 weeks) pressure & pain all around my mid
>section region. I have times where I get very dizzy & feel like I am
>going to pass out but I am not sure if that is related. But when I get
>these pains I also have horrible naseau & hot flashes too. The ER gave
>me heavy duty pain medicine but sometimes I take it (if the pain is bad
>enough) & the pain still does not go away. Also, (I know this sounds
>funny) but during my period I have horrible bouts of diarrhea,
>constipation & gas. Also, I have noticed that within the past year I
>started cramping, clotting real bad & having tender breasts before my
>period. Prior to that I had none of that at all. My periods have
>always been regular with no pain at all, no breast tenderness. Recently
>I have noticed that my periods start off very heavy & I start spotting
>real bad afterwards which I have never had before either. My husband
>and I have been trying to get pregnant now for 2 years & I got pregnant
>once & lost the baby within 2 weeks & then the next year I actually got
>pregnant & was supposed to be 9 weeks along but ended up having a
>miscarriage at 6 weeks along & the doctor does not know what happened. I
>do know that when I was pregnant I had horrible cramping. This is weird
>too, when I ate (& this also happens now) while I was pregnant my cramps
>got so bad I did not want to eat at times (I thought that was really
>strange but did not mention it to anyone). My OB/GYN is sending me to a
>Urologist because he thinks I have Interstitial Cystitis but I do not
>think that is what I have. I have been looking on the internet & none
>of these symptoms I am having match with Interstitial Cystitis. I asked
>my OB/GYN what about Endometriosis & his response was "First of all if
>you had that you would not have been able to get pregnant in the first
>place. And, with Endometriosis you only have pain during your period.
>No, you do not have Endometriosis" Well, I am probably boring all of you
>by now.
>
>Let me know what you think!!!!
>KayLee
--
Melissa
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