Re: Adneomyosis, having a hysterectomy this week after 25 years of fighting endo and adneo
From: Sami (anonymous@obgyn.net)
Tue Mar 28 07:01:16 2006
Hello Keri Mc,
I am sorry that you are going through such a hard time & that after such
a long battle you are still suffering.
You are so right, this is a 'crap' disease for one to have the
misfortune of having.
I asked a question in here a while back, when i first found this forum
(as anonymous) cause i didn;t have much courage then, about weather
Hysterectomy was a cure for Endo. It opened up a great discussion about
the experiences of the ladies in here & i learnt alot.
I too had hideous side effects on Mycrogynon.... I felt like i was
going mental. Finally i got my Dr to switch me (after 3 months mind
you) to Yasmin (another terrible onr for me).
Anyhow, I wish you every success with the surgery & hope that it brings
relief from the pain, sufering & roller-coaster ride....
nice to hear from you, another Aussie Lass in this forum..! :)
Kind regards, Sami koala (Australia) xXx
At Mon, 27 Mar 2006, Carma wrote:
>
>Hi, I was also diagnosed with Adneomyosis and just had a partial hysto
>on the 23rd. As for the change in sex I can't say (too soon) but as for
>the pain it really isn't as bad as I thought. I've had worse periods
>thats for sure. Hang in there and I hope you are able to keep your
>ovaries.
>
>At Mon, 27 Mar 2006, Keri wrote:
>>
>>Hi everyone,
>>
>>Its been ages since I've written a message here. had my endo under
>>control, hopefully by the alternative meds I've been on, although the
>>doc tells me its not showing in my pelvis now because as I am now OLDER
>>it disipates!!!
>>
>>Good news yes, but....I was also diagnosed with numerous probs over the
>>past five years....adneomyosis (the uterus is stuffed).....pancreatic
>>cyst (from my use of zoladex) hey but lucky there as it causes
>>pancreatic cancer in rats.....guess I had a great doctor who caught it
>>early...and in january this year....an ovarian tumour...well thankfully
>>that was benign...but then.....after my op put me on mycrogynan
>>20....extreme bleeding for 19 days...anaemia...low as hell.......and
>>since then I have been on Primulot N....!!!!!
>>
>>Great drug..NOT!!!! I have had every side effect in the book and then
>>some....have gained 1 stone and my voice has gotten deeper and I am a
>>pro singer.
>>
>>NOT HAPPY JAN!!
>>
>>The specialist gave me no options but to go on this damn drug as I would
>>have bled to death otherwise. Am sooooooo unhappy...very depressed. And
>>the great news is that I am about to go thru a hysterectomy....not my
>>choice....but all they gave me as an option.
>>
>>Am terrified...worried about what happens after. Is my sex life about
>>to change...so many head space things to consider...crying a
>>lot....tired all the time....headaches and pain.
>>
>>Have wonderful friends who are there for me...but my head is in
>>tatters.....they don't see me cry...I keep it to myself put on a brave
>>face...lots of pretend smiles.
>>
>>I am soooooooo scared about the op.....Wednesday the 29th is way too
>>close!!!
>>
>>I ahve always fought so hard to put up with this stupid disease. I have
>>been positive thru 40 ops.....and a thousand horrid hormone therapies
>>with all their crap side effects. I don't beleive in the medical
>>fraternity at all....its been one hell of a rollercoaster ride and I
>>have little faith in a hysterctomy being the big fix!!!
>>
>>I am no longer the positve self I was and am finding it sooooo dificult
>>to cope with.
>>
>>Feel very alone........
>>
>>Just had to get this off my chest.....
>>
>>love to you all and hope that you can all cope better than I am these
>>days.
>>
>>My kindest regards to all who are travelling the same road and my
>>prayers are with all who are fighting the battle against this crap
>>disease.
>>
>>love you all angels
>>
>>--
>>Keri Mc
>>Australia
>>
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