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Re: Adneomyosis, having a hysterectomy this week after 25 years of fighting endo and adneo
From: Tara (anonymous@obgyn.net)
Mon Mar 27 22:41:28 2006
Hi Keri,
Please check out Yahoo groups adenomyosis and adenomyosis support
groups. Go to Yahoo main page, click Yahoo groups and enter these
titles. The women there have had many successful partial
hysterectomies. Total hysts. tend not to do well, but all of the women
with partials have been extremely happy. Good luck on your upcoming
hysts Keri and Tracie. Tracie I just read your post on the adeno site.
Sending you both lots of hugs. A great big hug for the lady with the
HRT problems. I hope your upcoming lap goes really well.
Tara
At Mon, 27 Mar 2006, Keri wrote:
>
>Hi everyone,
>
>Its been ages since I've written a message here. had my endo under
>control, hopefully by the alternative meds I've been on, although the
>doc tells me its not showing in my pelvis now because as I am now OLDER
>it disipates!!!
>
>Good news yes, but....I was also diagnosed with numerous probs over the
>past five years....adneomyosis (the uterus is stuffed).....pancreatic
>cyst (from my use of zoladex) hey but lucky there as it causes
>pancreatic cancer in rats.....guess I had a great doctor who caught it
>early...and in january this year....an ovarian tumour...well thankfully
>that was benign...but then.....after my op put me on mycrogynan
>20....extreme bleeding for 19 days...anaemia...low as hell.......and
>since then I have been on Primulot N....!!!!!
>
>Great drug..NOT!!!! I have had every side effect in the book and then
>some....have gained 1 stone and my voice has gotten deeper and I am a
>pro singer.
>
>NOT HAPPY JAN!!
>
>The specialist gave me no options but to go on this damn drug as I would
>have bled to death otherwise. Am sooooooo unhappy...very depressed. And
>the great news is that I am about to go thru a hysterectomy....not my
>choice....but all they gave me as an option.
>
>Am terrified...worried about what happens after. Is my sex life about
>to change...so many head space things to consider...crying a
>lot....tired all the time....headaches and pain.
>
>Have wonderful friends who are there for me...but my head is in
>tatters.....they don't see me cry...I keep it to myself put on a brave
>face...lots of pretend smiles.
>
>I am soooooooo scared about the op.....Wednesday the 29th is way too
>close!!!
>
>I ahve always fought so hard to put up with this stupid disease. I have
>been positive thru 40 ops.....and a thousand horrid hormone therapies
>with all their crap side effects. I don't beleive in the medical
>fraternity at all....its been one hell of a rollercoaster ride and I
>have little faith in a hysterctomy being the big fix!!!
>
>I am no longer the positve self I was and am finding it sooooo dificult
>to cope with.
>
>Feel very alone........
>
>Just had to get this off my chest.....
>
>love to you all and hope that you can all cope better than I am these
>days.
>
>My kindest regards to all who are travelling the same road and my
>prayers are with all who are fighting the battle against this crap
>disease.
>
>love you all angels
>
>--
>Keri Mc
>Australia
>
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