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Re: Adneomyosis, having a hysterectomy this week after 25 years of fighting endo and adneo
From: Carma (anonymous@obgyn.net)
Mon Mar 27 15:50:02 2006
Hi, I was also diagnosed with Adneomyosis and just had a partial hysto
on the 23rd. As for the change in sex I can't say (too soon) but as for
the pain it really isn't as bad as I thought. I've had worse periods
thats for sure. Hang in there and I hope you are able to keep your
ovaries.
At Mon, 27 Mar 2006, Keri wrote:
>
>Hi everyone,
>
>Its been ages since I've written a message here. had my endo under
>control, hopefully by the alternative meds I've been on, although the
>doc tells me its not showing in my pelvis now because as I am now OLDER
>it disipates!!!
>
>Good news yes, but....I was also diagnosed with numerous probs over the
>past five years....adneomyosis (the uterus is stuffed).....pancreatic
>cyst (from my use of zoladex) hey but lucky there as it causes
>pancreatic cancer in rats.....guess I had a great doctor who caught it
>early...and in january this year....an ovarian tumour...well thankfully
>that was benign...but then.....after my op put me on mycrogynan
>20....extreme bleeding for 19 days...anaemia...low as hell.......and
>since then I have been on Primulot N....!!!!!
>
>Great drug..NOT!!!! I have had every side effect in the book and then
>some....have gained 1 stone and my voice has gotten deeper and I am a
>pro singer.
>
>NOT HAPPY JAN!!
>
>The specialist gave me no options but to go on this damn drug as I would
>have bled to death otherwise. Am sooooooo unhappy...very depressed. And
>the great news is that I am about to go thru a hysterectomy....not my
>choice....but all they gave me as an option.
>
>Am terrified...worried about what happens after. Is my sex life about
>to change...so many head space things to consider...crying a
>lot....tired all the time....headaches and pain.
>
>Have wonderful friends who are there for me...but my head is in
>tatters.....they don't see me cry...I keep it to myself put on a brave
>face...lots of pretend smiles.
>
>I am soooooooo scared about the op.....Wednesday the 29th is way too
>close!!!
>
>I ahve always fought so hard to put up with this stupid disease. I have
>been positive thru 40 ops.....and a thousand horrid hormone therapies
>with all their crap side effects. I don't beleive in the medical
>fraternity at all....its been one hell of a rollercoaster ride and I
>have little faith in a hysterctomy being the big fix!!!
>
>I am no longer the positve self I was and am finding it sooooo dificult
>to cope with.
>
>Feel very alone........
>
>Just had to get this off my chest.....
>
>love to you all and hope that you can all cope better than I am these
>days.
>
>My kindest regards to all who are travelling the same road and my
>prayers are with all who are fighting the battle against this crap
>disease.
>
>love you all angels
>
>--
>Keri Mc
>Australia
>
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