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Re: An endometriosis story to share with you all....Jocee
From: anonymous (anonymous@obgyn.net)
Mon Mar 27 08:31:58 2006
I don't believe I was upsetting anyone by my post. If I were JoCee, I
think I would feel upset by the posts from Kristy. JoCee is just trying
to share info. We do know that endo is diagnosed via lap. But what if
it is true that it could be seen the the x-ray like that? Why are you
attacking me? I'm not moaning by any means, just speaking my opinion,
like Kristy and yourself. Believe me, I've suffered from this disease
for MANY years, through MANY surgeries, and do a lot of research myself,
but that doesn't close my mind to other possibilities.
By the way, aren't you anonymous with a name like Storm anyway?
At Mon, 27 Mar 2006, Storm wrote:
>
>Hhhmmm I never thought she was calling anyone a Liar???
>
>I thought it was a Fact that Endo can only be diagnosed via a Lap?I
>think if you re read her post also she states that she or Dr's don't
>know everything there is to know about Endo?
>
>If you're in ALOT of CONSTANT pain you are not an 'average woman' and in
>my opinon would go out of your way to research and find a possible cure
>for your pain so that you CAN in fact become that super busy 'average
>woman'
>
>Really if you want to moan about other members at the very least don't
>do it as 'anonymous' we are all in pain here why the Hell upset someone
>like that?
>
>Just my two cents worth :-)
>
>--
>Storm
>
>At Mon, 27 Mar 2006, anonymous wrote:
>>
>>No offense Kristy, but you are not a doctor. Even if you were, doctors
>>don't know everything there is to know about endo either, or they'd
>>probably be a cure! Who are you to say what IS or ISN'T fact? Really.
>>You may do more research than the average woman has time to do, but that
>>doesn't give you the right to almost call someone a liar.
>>
>>Just my thoughts....
>>
>>At Mon, 27 Mar 2006, Kristy wrote:
>>>
>>>JoCee,
>>>
>>>Endo is not thick enough to see on a barium x-ray. It would be thick
>>>enough to see with colonoscopy if the endo has eaten thru all the layers
>>>of the colon. This is the same reason why ultraound can not be used as
>>>a diagnostic tool for endo lesions. Endometriomas may show up on
>>>ultrasounds but that is not indicative of a diagnosis of endo.
>>>
>>>There are a number of drs still out there that don't know that you can't
>>>diagnose endo on ultrasound.
>>>
>>>And it is true that we women with endo are prone to other cancers as
>>>well as other health issues such as RA and Lupus and even fibro (for
>>>some they get it b/c of the Lupron).
>>>
>>>Sdsuey, I've read some info that says it is the lining of the uterus
>>>that goes outside the uterus and in to the other areas but as of late
>>>what I've read has said that it is like the lining of the uterus.
>>>
>>>I think this is one other reason why we still don't understand what
>>>causes endo.
>>>
>>>I recommend everyone check out the book Endometriosis: The Complete
>>>Reference for Taking Charge of Your Health by Mary Lou Ballweg and EA.
>>>
>>>There's a ton of interesting info in there. It was in part b/c of this
>>>book that I learned that endo isn't just a gyn disorder as I had thought
>>>for such a long time.
>>>
>>>--
>>>=====
>>>Kristy :)
>>>
>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>
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