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Adneomyosis, having a hysterectomy this week after 25 years of fighting endo and adneo

From: Keri (anonymous@obgyn.net)
Mon Mar 27 06:42:14 2006


Hi everyone,

Its been ages since I've written a message here. had my endo under control, hopefully by the alternative meds I've been on, although the doc tells me its not showing in my pelvis now because as I am now OLDER it disipates!!!

Good news yes, but....I was also diagnosed with numerous probs over the past five years....adneomyosis (the uterus is stuffed).....pancreatic cyst (from my use of zoladex) hey but lucky there as it causes pancreatic cancer in rats.....guess I had a great doctor who caught it early...and in january this year....an ovarian tumour...well thankfully that was benign...but then.....after my op put me on mycrogynan 20....extreme bleeding for 19 days...anaemia...low as hell.......and since then I have been on Primulot N....!!!!!

Great drug..NOT!!!! I have had every side effect in the book and then some....have gained 1 stone and my voice has gotten deeper and I am a pro singer.

NOT HAPPY JAN!!

The specialist gave me no options but to go on this damn drug as I would have bled to death otherwise. Am sooooooo unhappy...very depressed. And the great news is that I am about to go thru a hysterectomy....not my choice....but all they gave me as an option.

Am terrified...worried about what happens after. Is my sex life about to change...so many head space things to consider...crying a lot....tired all the time....headaches and pain.

Have wonderful friends who are there for me...but my head is in tatters.....they don't see me cry...I keep it to myself put on a brave face...lots of pretend smiles.

I am soooooooo scared about the op.....Wednesday the 29th is way too close!!!

I ahve always fought so hard to put up with this stupid disease. I have been positive thru 40 ops.....and a thousand horrid hormone therapies with all their crap side effects. I don't beleive in the medical fraternity at all....its been one hell of a rollercoaster ride and I have little faith in a hysterctomy being the big fix!!!

I am no longer the positve self I was and am finding it sooooo dificult to cope with.

Feel very alone........

Just had to get this off my chest.....

love to you all and hope that you can all cope better than I am these days.

My kindest regards to all who are travelling the same road and my prayers are with all who are fighting the battle against this crap disease.

love you all angels

--
Keri Mc
Australia



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