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Re: An endometriosis story to share with you all....TO KRISTY
From: Elaine (anonymous@obgyn.net)
Sun Mar 26 20:41:35 2006
joCee,
Thanks for sharing the photos! Very interesting. I am just a little
confused though. You say that the photos on your website (under the
link you provided) are photos of endometriosis appearing during a barium
xray. But they are pictures taken by surgeons. And the pictures to me
look too clear and colorful to be from a barium xray, which would be
black and white?. I also see what looks like a laparoscope appearing in
some of the photos. Are you sure these are from a barium xray? I wasn't
aware that they were able to see that much with a barium xray. I had
one done years ago when I was having symptoms but no diagnosis yet and
nothing showed up on the xrays. But when I had a laparoscopy endo
showed up on my colon and all over my uterus and ligaments, bladder, and
ovaries.
I do agree with your overall message. Endometriosis is a serious
disease that needs to be treated and taken seriously. Left untreated,
there is an increased risk of cancer, but there is also the risk of
organs being strangled and adhered together, making them hard to
function properly, and of blood supply being cut off, as well as endo
eating through the bowel wall and other places. I know a woman who had
a total hysterectomy with removal of both ovaries, was started on
estrogen replacement right away, and five years later after years of
continuing pain and no one believing her that she still had endo, she
found a doctor that did another lap and found that she still had endo
all over her intestines and adhesions strangling them in some places.
She had been having severe constipation and digestive issues.
I also found these articles regarding endometriosis and cancer that do
point to a correlation between the two diseases, though they mention
that endometriosis itself does not cause cancer. More likely, the
conditions that led to the endometriosis also increase the risk of
cancer (ie exposure to environmental pollution such as dioxins, and
exposure to hormones from foods we eat like poultry and beef). Here
they are:
http://www.infertilityphysician.com/endometriosis/cancer.html
http://web.mit.edu/newsoffice/2005/endometriosis.html
Good discussion going here guys!
At Sun, 26 Mar 2006, JoCee27 wrote:
>
>Kristy,
>
>Surely endometriosis is only diagnosed through Lap but her endo was seen
>first on her bowels by barium x-ray. See my website for pictures of
>endo appearing during a barium x-ray
>http://com3.runboard.com/bendometriosissupportgroup.ffaqforwomen.t6
>
>Also on my website you will see photos of endometriosis winding into an
>ovarian cyst and cancer was fused inside. Same link as above.
>
>JoCee,
>
>The only sure way to diagnose endo definitively is thru laparoscopy not
>ultrasound or a barium x-ray or any other kind of radiologic procedure.
>
>Also, pls take a look at this link that I'm posting:
>http://www.hcgresources.com/malignant.htm
>
>It does touch on some of what you said about that endo can be come
>cancerous but pls read the rest of the article b/c the explanation on
>this site is fantastic.
>
>Also, the main thing that could happen with endo left untreated
>especially on the colon or bladder for example is that it can eat thru
>those organs, and of course the ultimate if left untreated is a ton of
>pain.
>
>Endo on its own is a benign condition and doesn't kill physically. It
>does have characteristics similar to cancer (which may tie in to the
>above for some women).
>
>If your friend has never had a lap she doesn't know for sure that she
>has endo.
>
>Click on the home page and you can find lots of other info on this site.
>And you can also find the Survivor Letter link on this site.
>
>One of the reasons we are having a hard time getting the word out about
>endo and to have it taken seriously is b/c of things like this in your
>friend's story so pls be careful when it comes to what you hear from
>others.
>
>B/c sometimes the ones telling their story don't know all the facts
>about endo.
>
>At Sat, 25 Mar 2006, JoCee27 wrote:
>>
>>To all of my endoangel friends on this forum I'd like to share the story
>>of a woman who is close to our family that is currently dying from endo.
>>
>>The woman I am referring to, we will call her "Mandy". Mandy is
>>55-years-old. She was told several years ago that she had
>>endometriosis. She did not have a lap to confirm it. It was confirmed
>>through ultrasound and barium x-ray. Her endo was also accompanied by
>>ovarian cysts. Doctors made her feel that her endo was nothing to worry
>>about as long as it was not causing any severe pain or problems. The
>>pain and discomfort that she told her doctor about "pain with bowel
>>movements, pain during urination without presence of infection,
>>abdominal pain, painful periods, and irregular periods" were blamed on
>>IBS. Mandy is now weeks away, if not days, from dying. Mandy has
>>cancer and the cancer has developed in all of the areas that
>>endometriosis has attached to. Mandy also has cancer on her brain and
>>in her lungs. The endometriosis went untreated and blamed on other
>>things for over 20 years. Mandy's endometriosis is on her bowels,
>>bladder, ovaries, kidneys, pelvic and abdominal wall, the lower portion
>>of her lungs, and her brain. All of these areas are now cancer. So
>>when a doctor tells you that endometriosis is nothing to worry about and
>>he/or she refuses to do a lap swearing that you don't need it, please
>>think of Mandy. Mandy's case is being confirmed as "Endometriosis
>>Kills" and she is proof of it.
>>
>>--
>>ENDOANGEL JOCEE
>>
>>Endometriosis Online Support Group
>>http://com3.runboard.com/bendometriosissupportgroup
>>
>>Average People Group
>>http://com1.runboard.com/baveragepeople
>>
>--
>=====
>Kristy :)
>
>http://www.geocities.com/sokokl/Kristysstory.html
>
>--
>ENDOANGEL JOCEE
>
>Endometriosis Online Support Group
>http://com3.runboard.com/bendometriosissupportgroup
>
>Average People Group
>http://com1.runboard.com/baveragepeople
>
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