ENDO Messages for March, 2006: Re: An endometriosis story to share with you all

Re: An endometriosis story to share with you all

From: Kristy (anonymous@obgyn.net)
Sun Mar 26 02:13:16 2006

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In reply to: JoCee27: "An endometriosis story to share with you all"

JoCee,

The only sure way to diagnose endo definitively is thru laparoscopy not ultrasound or a barium x-ray or any other kind of radiologic procedure.

Also, pls take a look at this link that I'm posting: http://www.hcgresources.com/malignant.htm

It does touch on some of what you said about that endo can be come cancerous but pls read the rest of the article b/c the explanation on this site is fantastic.

Also, the main thing that could happen with endo left untreated especially on the colon or bladder for example is that it can eat thru those organs, and of course the ultimate if left untreated is a ton of pain.

Endo on its own is a benign condition and doesn't kill physically. It does have characteristics similar to cancer (which may tie in to the above for some women).

If your friend has never had a lap she doesn't know for sure that she has endo.

Click on the home page and you can find lots of other info on this site. And you can also find the Survivor Letter link on this site.

One of the reasons we are having a hard time getting the word out about endo and to have it taken seriously is b/c of things like this in your friend's story so pls be careful when it comes to what you hear from others.

B/c sometimes the ones telling their story don't know all the facts about endo.

At Sat, 25 Mar 2006, JoCee27 wrote: >
>To all of my endoangel friends on this forum I'd like to share the story
>of a woman who is close to our family that is currently dying from endo.
>
>The woman I am referring to, we will call her "Mandy". Mandy is
>55-years-old. She was told several years ago that she had
>endometriosis. She did not have a lap to confirm it. It was confirmed
>through ultrasound and barium x-ray. Her endo was also accompanied by
>ovarian cysts. Doctors made her feel that her endo was nothing to worry
>about as long as it was not causing any severe pain or problems. The
>pain and discomfort that she told her doctor about "pain with bowel
>movements, pain during urination without presence of infection,
>abdominal pain, painful periods, and irregular periods" were blamed on
>IBS. Mandy is now weeks away, if not days, from dying. Mandy has
>cancer and the cancer has developed in all of the areas that
>endometriosis has attached to. Mandy also has cancer on her brain and
>in her lungs. The endometriosis went untreated and blamed on other
>things for over 20 years. Mandy's endometriosis is on her bowels,
>bladder, ovaries, kidneys, pelvic and abdominal wall, the lower portion
>of her lungs, and her brain. All of these areas are now cancer. So
>when a doctor tells you that endometriosis is nothing to worry about and
>he/or she refuses to do a lap swearing that you don't need it, please
>think of Mandy. Mandy's case is being confirmed as "Endometriosis
>Kills" and she is proof of it.
>
>--
>ENDOANGEL JOCEE
>
>Endometriosis Online Support Group
>http://com3.runboard.com/bendometriosissupportgroup
>
>Average People Group
>http://com1.runboard.com/baveragepeople
>

--
=====
Kristy :)

http://www.geocities.com/sokokl/Kristysstory.html

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Previous message: Loretta: "Re: Anyone else experience fevers?"
In reply to: JoCee27: "An endometriosis story to share with you all"

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