Re: Are there any good writers out there ?
From: Angie (anonymous@obgyn.net)
Thu Mar 23 12:51:58 2006
Loretta,
Sorry, I forgot to leave my email address although I think it comes
through anyway. karaokehstess33@aol.com
At Thu, 23 Mar 2006, Angie wrote:
>
>Loretta,
>
>I don't think anyone could say what we feel better than Heather did in
>her survivor's letter. I have the copyrighted version of the letter
>that she sent me. She doesn't want the letter given out without the
>copyright info (understandable) so if you want it, email me personally
>and I'll send it to you. While you are sending letters out, if you
>email me, I'll give you the name and address of the jerk I encountered.
>
>God bless and you are starting a good thing!!
>
>--
>Angie
>
>At Thu, 23 Mar 2006, Loretta wrote:
>>
>>Hey everybody,
>>I would like to get something started, seems to me I read a post about
>>getting something written for all the bad doc's out there.
>>I would love to have a letter, one I could send to every bad,unfeeling,
>>uneducated, unhelpful doctor I run into, to educate him on endo and the
>>way he made me feel.
>>I would like it to include all the awful things we go through and how we
>>are not listened to and we are not crazy or just looking for sympathy
>>and are NOT just pain med addicts. That it IS a painful mis understood
>>disease.
>>We disearve just as much care and attention as the patients who they see
>>that have any other painful conditions that send them to the clinic or
>>hospital,
>>we have better things to do than that, to go through the treatment that
>>we do and STILL choose to go to clinic/emerg has to say SOMETHING about
>>the pain we are in! Even though it is a chronic disease/pain does NOT
>>disqualify us from empathetic,agressive,helpful treatment!!
>>I would like them to know I am not the ONLY one out there with this
>>disease! Normally as it is happening it is too emotional a time to tell
>>them off, as well you don't want to sacrifice any treatment they MAY
>>provide by telling them off at that moment. To send a letter to them
>>and clinic/hosp would let them know without the fight.
>>As well I think it is equally important to let the ones know, with
>>blazing banners, that he/she has helped tremendosly with excellent
>>treatment we so rarely get. To let them know how very much the Endo
>>patient appreciates the treatment. That they truely are an endo friend!
>>To have this all written in 2 pages or less with maximum impact would be
>>a god send, if it could be written in PDF so it can be down loaded and
>>printed off would be something I think would be a great help/tool for
>>dealing with those who treat/didn't treat us.
>>What do you guy's think? Is there a way to do it? Would anyone send such
>>a letter?
>>Just a thought as I hate writing individual rambling letters each time I
>>want to make a statement to my care. Let me know or can we open a
>>discusson?
>>Loretta
>
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