Re: Are there any good writers out there ?
From: Angie (anonymous@obgyn.net)
Thu Mar 23 12:26:38 2006
Loretta,
I don't think anyone could say what we feel better than Heather did in
her survivor's letter. I have the copyrighted version of the letter
that she sent me. She doesn't want the letter given out without the
copyright info (understandable) so if you want it, email me personally
and I'll send it to you. While you are sending letters out, if you
email me, I'll give you the name and address of the jerk I encountered.
God bless and you are starting a good thing!!
--
Angie
At Thu, 23 Mar 2006, Loretta wrote:
>
>Hey everybody,
>I would like to get something started, seems to me I read a post about
>getting something written for all the bad doc's out there.
>I would love to have a letter, one I could send to every bad,unfeeling,
>uneducated, unhelpful doctor I run into, to educate him on endo and the
>way he made me feel.
>I would like it to include all the awful things we go through and how we
>are not listened to and we are not crazy or just looking for sympathy
>and are NOT just pain med addicts. That it IS a painful mis understood
>disease.
>We disearve just as much care and attention as the patients who they see
>that have any other painful conditions that send them to the clinic or
>hospital,
>we have better things to do than that, to go through the treatment that
>we do and STILL choose to go to clinic/emerg has to say SOMETHING about
>the pain we are in! Even though it is a chronic disease/pain does NOT
>disqualify us from empathetic,agressive,helpful treatment!!
>I would like them to know I am not the ONLY one out there with this
>disease! Normally as it is happening it is too emotional a time to tell
>them off, as well you don't want to sacrifice any treatment they MAY
>provide by telling them off at that moment. To send a letter to them
>and clinic/hosp would let them know without the fight.
>As well I think it is equally important to let the ones know, with
>blazing banners, that he/she has helped tremendosly with excellent
>treatment we so rarely get. To let them know how very much the Endo
>patient appreciates the treatment. That they truely are an endo friend!
>To have this all written in 2 pages or less with maximum impact would be
>a god send, if it could be written in PDF so it can be down loaded and
>printed off would be something I think would be a great help/tool for
>dealing with those who treat/didn't treat us.
>What do you guy's think? Is there a way to do it? Would anyone send such
>a letter?
>Just a thought as I hate writing individual rambling letters each time I
>want to make a statement to my care. Let me know or can we open a
>discusson?
>Loretta
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