Re: useless doctors-what do you think?
From: Amelia (anonymous@obgyn.net)
Sat Mar 18 22:18:32 2006
Hi Katie,
I agree get a new doc. I am 21 now and have had endo since I was 14,
well thats when me first lapo was and it was present then. It is
thought that endometrioisis was something that women in their thirties
have. But it is becoming more widely accepting that women of all ages
can have the condition. I can not imagine how much more pain I would of
been in without the help of the meds as I was going through High School
if my doc didnt find the endo.
My vote new doc!
-Amelia
At Sat, 18 Mar 2006, Dena wrote:
>
>Hi Katie,
>
>Welcome to the forum! First of all, your doctor should be ditched. She
>doesn't sound very well educated in the area of endometriosis. Is she a
>gyn or a primary care doctor? Really, she may mean well, but ugh! I'm so
>sick of doctors like her!
>
>If the only women who have endometriosis are women in their thirties
>that have had children, why does my eighteen year old daughter have it?
>She was diagnosed a couple years ago. Also, your aunt may have it, she
>just might not have had the proper diagnosis. Some doctors don't know
>exactly what to look for. Endo can take on many colors and sizes and
>can hide quite well sometimes.
>
>My suggestion to you, since it sounds very likely that you have endo,
>would be to find another doctor and get a second opinion. If you could
>go to a specialist, that would be ideal. You may want to post where
>you're from and maybe someone can recommend a good doctor close to you.
>
>The only way to diagnose endo is through a laparoscopy, which is a
>surgical procedure where they make very small incisions (usually two or
>three, one being in your navel) and look around with small instruments
>and a camera. Normally you can go home shortly after the procedure. I
>have had operations that started as a laparoscopy, but they all ended up
>as a large incision (laparotomy)because my endo and adhesions are so
>bad. So I can not comment on the recovery from a laparoscopy. I'm sure
>you will get someone to reply who is more knowlegable. Don't be
>alarmed, you can make it clear to the surgeon that you ONLY want the
>laparoscopy if you want. Some doctors ask for permission to do a large
>incision if they think it's necessary to do a better job.
>
>I wish you the best of luck. Please feel free to ask me anything.
>Hopefully this has helped a bit.
>
>Take care.
>
>At Sat, 18 Mar 2006, katie wrote:
>>
>>I’m really hoping someone can help me and hopefully give me some
>>answers.
>>Basically my periods started when I was 13 and I started having a period
>>with just two week gaps in between and they were very heavy and so I was
>>put on the pill by my doctor and told they would sort themselves out in
>>a couple of years.
>>Although I was not having periods as regularly they were still quite
>>painful and heavy.
>>I then heard about the injection which for the short time that I was on
>>it did help my periods but I didn’t feel good in myself and so I came
>>off it and didn’t have a period for months, then when I finally did it
>>lasted for weeks and weeks!
>>I decided to give my body a break but started having periods too
>>frequently again so went back on the pill-during this time I was
>>referred to the hospital and I had an internal examination which was
>>fine and an ultrasound which was fine-that was nearly 3 years ago.
>>I soon was not getting to the end of the packet of a pill and coming on
>>regardless-so my pill was changed-also at least once in my period I will
>>use the strongest super strength tampons and bleed through it the second
>>I have put in in and have to change(which once happened a few times in a
>>row and my mom had to get something from the doctor to completely stop
>>my period) and also have to get up in the night to change my sanitary
>>towels (when I explained this to my doctor recently she said ‘yes that
>>is inconvenient!) so I have been to the doctors a few times recently but
>>as well as the above I was just told I probably have an unfortunate
>>cycle-which I suppose would be ok but I’m still a bit worried as every
>>time I go to the doctors they don’t seem to listen and I just get a re
>>prescription for the pill or a new pill-for example the last time I went
>>to the doctors(which ive vowed is the last time because I feel im making
>>a fuss and feel stupid)I went because I read an article on endometriosis
>>about a 22 year old girl and the story sounded identical to mine and
>>doctors once thought my aunty had it(she hasn’t-it was pcos) so I
>>mentioned it to the doctor who looked at me though I was mad and said
>>that if I had that I would be in excruciating pain and only women over
>>30 who’d had kids get it. And shock Horror- I was given a new pill.
>>Also lately The pain Iv had for quite a while on and off very low down
>>my abdomen(where I think the ovaries are)especially on the right side
>>has been getting worse-its only just eased up today after two weeks-it’s
>>a sharp shooting pain that comes and goes but constantly feels
>>uncomfortable in the weeks that it hurts-especially if I move
>>suddenly-also when I have a wee it really hurts just before I wee. The
>>area also feels very hard, and also seems to make the top of my leg ache
>>too? When I mentioned it to the doctor she said it could be anything and
>>probably just water retention? Im sorry but surely not? Not in a
>>pinpointed spot? And she said the best thing for me to do would be to
>>have the injection-I explained Id done that once and did not want to
>>again-and she said what I needed to do is have the injection and take
>>the pill at the same time! Which I don’t want to do if the injection
>>alone didn’t agree with me!!
>>Although Iv had an internal and an ultrasound a few years ago-Iv heard
>>the tests for endometriosis are having a scan but they have to inject
>>you with a dye or inserting a small camera through an incision above
>>your belly button?
>>I no ive gone on but if anyone could help me or has any ideas or anyone
>>does think ive just got an unfortunate cycle I would be very grateful
>>for any info or help.
>>Thanks
>
>--
>Dena
>
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