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Re: endo does it ever end

From: Alyson (anonymous@obgyn.net)
Wed Mar 15 06:46:40 2006


Hasina, I completely understand your frustration. I've had two laps now, a year apart. The doctor that did the first insisted there was no way I could have any endo to remove only a year after the first surgery. The new doc went in and found that I was full of it, including an orange sized pocket of it in my hip. I was both devastated and excited. I couldn't understand how I could have progressed that quickly, but at the same time I was excited that I had someone to do something about it. Two months later the pain was back and it has been getting steadily worse. I wish there was some way to tell you how quickly it will spread for you, but it certainly depends on the individual. I sit here almost every day feeling this pain and wonder the same thing you do. What does my future hold, what kind of decisions am I going to have to make about my body? It can be so overwhealming. It got to be so hard to deal with that I recently started to see a therapist. She told me no matter what I do I have to recognize my loss and stop worrying about the future because it is beyond my control and I need to take it as it comes. Easier said than done, I know. It has helped though to have someone completely impartial talk me through it and calm me down. So, I am sorry I can't give you any brilliant advice. I just wanted to let you know I understand. Alyson

At Wed, 15 Mar 2006, hasina wrote: >
>Hi im 23 with endo this is my first time on this website. I'm curently
>waiting for surgery, oh waiting lists this will be my 4th laparoscopy I
>had one last month they found a lot of endo I've been sick off work
>since november I have to wait a couple of months till they remove it. At
>least I feel a little better after laparoscopy find it a bit easier to
>walk & do things. Physio helps alot especicialy with the back and ribs.
>
>For some reason this time it hit me. I got realy scared on how my life
>is spinning out of control. Is this going to be my life forever? Ive
>been getting this every year at around the same time for the last three
>years, I,ve spent about half of that time sick, hurting to move walk
>with atacks and cramps. I try 2 keep healthy & I'm going to try even
>harder. I'm just scared its going to get worst by the time I have
>surgery. how quick does it spread?
>
>Thanks for letting me get some things of my chest




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