ENDO Messages for March, 2006: Re: Allen-Masters syndrome, pubic symphysis and endo

Re: Allen-Masters syndrome, pubic symphysis and endo

From: sunny (anonymous@obgyn.net)
Tue Mar 14 17:38:06 2006

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At Tue, 28 Sep 2004, Tricia wrote: >
>At Tue, 28 Sep 2004, Marinda wrote:
>>
>>Two years ago, I found out that I have Allen-Masters Syndrome,
>>Endometriosis, Cervical Cancer, Protein S Deficiency, and Protein C
>>Deficiency. That's a lot to take in at the age of 23! I have undergone
>>several surgeries for the Endometriosis and the Cervical Cancer, but my
>>doctor had never seen the Allen-Masters Syndrome. He's done a lot of
>>research and has come to the conclusion that there is no "cure" for this
>>disease. I am now taking BC continuously to help ease the pain and
>>"shut down" my system. But I am still hemmoraging quite a bit. This is
>>the first time I am trying to get some information myself as I have two
>>young children and don't usually have the time for research. Have you
>>found anything that truly helps this pain? Is there a "cure" for
>>Allen-Masters Syndrome or am I to live in pain until my required
>>hysterectomy in another 2 years?
>
>I have something called a Allen-Masters Windo dose this have any thing
>to do with your Allen-Masters Syndrome? I have had two sugerys this year
>to help me with the pain, plus Lupron for six months and it is up on the
>20th of next month. My only thing I can do now is go back on Depo-vera
>shot so I do not have my monthly sicals. I sill have a lot of pain when
>I move around to much. Plus my tummy will swell up every night that
>hurts really badly. I am 24 and I also have two boys but, I can not get
>fixed tell I am 40 or over.
>Tricia

--
I had Allen-Masters syndrome and required a hysterectomy at age 23.  I seen several doctors and had lots of pain.  Many young doctors have not heard of this and I have to explain it, (I keep a print out of what it is). First of all, please discuss with your doctors all diagnosis options (I had all and laproscopy was only one that was he was able to diagonois it with)and treatment options.  I feel much better now.  Have since found out in the last 20 years this is something that runs on my mother's side of the family as many of the females have been diagnois with it during family tree research so it can be heritary to a point.

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