Re: ANGRY & CONFUSED (Long but worth it!)
From: Dena (anonymous@obgyn.net)
Fri Mar 10 18:17:27 2006
Oh JoCee, I feel for you hun. I have been in that same place and it
sometimes hurts more than the pain itself. My husband and I had to
fight like the world was coming to an end, at one point in this long
endo battle, just to get a little pain relief with medication. He would
become so infuriated with the dim-wit doctors and I would just cry and
wish I were dead.
I have stage four endo and I've experienced all the pain you explained.
My heart goes out to you. I've just had the most gut wrenching
flashback.
I know there have been a few posts regarding finding a new doctor, which
I TOTALLY agree with, but have you ever considered trying to find a
doctor that specializes in pain management also? I have been so lucky to
find my pain doctor. He not only specializes in pain, but pelvic pain
as well! I don't know where I'd be right now without him. (I'm assuming
in the nut house, jail for killing doctors that don't want to help with
pain :), or six feet under because I couldn't handle it anymore.)
If you could search around to see if there is such a place near you, it
would definately be worth looking into. And remember, (I say this all
the time I probably sound like a broken record) if you take pain
medication to get some quality of life, you are not an addict.. You are
dependant.
And finally, If that damn #$*^! doctor had ever experienced the pain
that you go through, you bet your ass you'd have something to help you
with the pain! It should be mandatory in medical school that doctors in
training be put through a series of examples of non-stop pain. It
should be a required two year long course!
At Thu, 9 Mar 2006, JoCee27 wrote:
>
>I called my doctor yesterday to ask about refilling my pain medication
>because I am still hurting. They called and left a message on my
>machine at 4:15 pm asking me to call them back. I call back--thinking
>they close at 5 like every other physicians office--and a recording
>tells me that they closed at 4. I look at my husband and go, "How the
>heck did she expect me to call her back if the darn office is closed?" I
>had my mother-in-law call this morning at 8:30 and speak with the nurse
>because when I talked to her the day before she sounded like she was
>none too happy to hear a request for a pain med refill. My MIL goes
>into detail telling her what's going on with me. The nurse calls me at
>work to hear it from me all the while I had this mental picture of her
>rolling her eyes up to the ceiling while listening to me tell her how
>badly I was hurting. She promises to call back with word from the
>doctor about whether or not they are going to fill my pain meds.
>
>I hadn't heard anything by 2 pm so I called them back. The same nurse
>tells me that the doctor hasn't been able to get to it yet and she will
>call me back as soon as she hears something but she said it very rudely.
>I told her, "I'm not trying to sound impatient here, but I am seriously
>hurting. I called one time yesterday and patiently waited all day for a
>return phone call. This is the second call I've made and you make me
>out to be like a nuisance. If you would have told me at 8:30 this
>morning when we spoke that it might be a while, I would have went on to
>the ER and let them treat me; but you didn't indicate that it would take
>all day for me to hear something back; you said you'd call me right
>back. Now forgive me if I'm being rude but before I'm made to feel bad
>for calling my own doctor you need to understand where I'm coming from
>and I am certainly not calling down there trying to wear out my welcome;
>I've only called because the staff has neglected to call me back." She
>said, "Well it's going to be after she sees her office patients that she
>gets to your request for a refill." I said, "Thank you for telling me
>that now after I've sat here all day expecting a call anytime. If you
>had told me that in the first place I wouldn't have assumed that your
>"call you right back" meant within an hour or so." I HATED HER!!! UGH!!!
>
>Anyway, the doctor finally calls at 4:15 and basically jumps my butt
>about the pain meds. She tells me that she doesn't understand why I am
>having pain when I have a bowel movement, pain in my rectum, pain in my
>ovaries, and pain in my pelvic area when I urinate. I said, "Endo,
>right?" She said, "Endo doesn't cause those problems; you need to see a
>GI doctor." I am thinking at this point, "What the hell?" So I told her
>how almost all of you that have been diagnosed with endo are suffering
>with the same problems I am having and how we all pretty much agree it's
>endo related and she says to me, "That's not possible. Endometriosis
>only affects the reproductive system. Only in extreme cases does it
>carry that far... You need to follow up with a Gastrointerologist and
>see if there's not some evidence of IBS, Chron's disease, or Colitis
>going on. I don't believe pain of that type is endo related."
>
>You would think as a medical doctor that she would put two and two
>together to realize that "hey this is freaking endo we're dealing with"
>but nooooo. She doesn't want to investigate any further than the
>reproductive system!! She didn't even say, "I'll refer you to the GI,"
>she just told me if the pain kept going on in those areas that she would
>no longer be able to prescribe pain medicine for me unless it affected
>the reproductive system and the cause of the pain was NOT coming from
>the body's waste system. She's not offered to remove the 4.5 painful
>ovary that is clustered with cysts. She's not bothered to do anything
>but push me out the door with a pat on the butt saying, "Wait until
>you're 35 and we'll help you." I am not asking for miracles but if she
>isn't trying to perform any and all I'm doing is sitting around hurting
>day in and day out the least she could do is make me comfortable while
>we "wait until I'm freaking 35!!"
>
>Sorry.......I HAD to vent!
>
>JoCee
>
>--
>Endometriosis Online Support Group
>http://com3.runboard.com/bendometriosissupportgroup
>
>Average People Group
>http://com1.runboard.com/baveragepeople
>
--
Dena
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